Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Testing for My Kids

ThisGalsGlutenFree
 Share

Recommended Posts

ThisGalsGlutenFree Rookie
ThisGalsGlutenFree
Posted

Hi! I was diagnosed with celiac disease in 2014 on the basis of a positive tTG-IgG test. My doctor ordered only tTG-IgA and tTG-IgG tests for me; I tested negative on the IgA test, but didn't have a total serum IgA test, so I don't know if I'm deficient. I didn't have a biopsy, but my life changed dramatically for the better after adopting the gluten-free diet, so I've been satisfied with the  celiac diagnosis. 

I had my kids tested after my diagnosis. Each tested negative then, but now my son has a couple of symptoms that make me suspect the development of the disease. I'm looking for the most inexpensive but reliable way to test him (we have to pay out of pocket for these tests). Does it stand to reason that I could request only  tTG-IgA and tTG-IgG tests for him, since they were sufficient for me? 

Thanks in advance for your insight!

Lynda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

If they are very young, consider adding the DGP tests.   Small children, especially toddlers, often do not test positive to the TTG tests.  For my teen, I make sure the entire set of tests are ordered since I only test positive to the DGP IgA (and I am NOT a toddler ?).  

Shop around for lab prices.  Sometimes offering cold hard cash can yield a decent discount.  Everything is negotiable or at least worth a try.  

Make sure your son has been in a gluten diet for at least two months.  I am trying to get my kid retested but I think I am going to have to wait until she is back at school.  Our house is gluten free, so getting her to consume gluten daily has been a hassle.  She does not have serious symptoms (neither did I), but it would be nice to prevent other autoimmune issues (that is based on my own non medical theories).  AI issues run strongly on both sides of our family.  

  • 3 weeks later...
ThisGalsGlutenFree Rookie
ThisGalsGlutenFree
Posted
  • Author

Thank you for your reply! We’ll shop around and try to find a good discount. I hope that your daughter (and my son) is in the clear!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,702
    • Most Online (within 30 mins)
      7,748
    Kelly mora
    Newest Member
    Kelly mora
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Sanna King
      Any bad experience with King Arthur Gluten-free bread flour

      By Sanna King · Posted

      King Arthur Gluten-free bread flour contains wheat starch, but has had the gluten removed. According to the FDA, it meets the FDA's gluten-free standard of less than 20 parts per million (ppm) of gluten. Has anyone here tried to bake bread from this? If yes, did you have a reaction? Thank you in advance for your time and attention. 
    • Gliadingoaway
      Biopsy confirmed no celiac, low gliadin igg but high gliadin iga?

      By Gliadingoaway · Posted

      Thank you!
    • Gliadingoaway
      Biopsy confirmed no celiac, low gliadin igg but high gliadin iga?

      By Gliadingoaway · Posted

      So i was eating tons of gluten my whole life until two months ago when i had high gliadin iga. At that time, i tested negative ttg and biopsy confirmed no celiac. I had h pylori and severe gastritis (no atrophy or ulcers).   fast forward today, i avoided gluten and had antibiotic treatment to erradicate the h pylori. I am feeling much better. A few days ago is when i tested negative for ttg, gliadin igg, endomysial iga. But i did test positive for gliadin iga. Pretty strange because i had gluten three days ago (accidently ate mac and cheese and fried chicken after taking the tests) and i feel fine
    • knitty kitty
      Help needed

      By knitty kitty · Posted

      @nanny marley, Are you having an endoscopy at the same appointment as your colonoscopy?  You said you have been going through testing for Celiac.  An endoscopy with several biopsies from the small intestine (after the stomach at the beginning of the digestive tract) is the gold standard for diagnosing Celiac Disease.  Celiac cannot be diagnosed by examining the large intestine and colon.  Colitis occurs at that end of the digestive tract.  I understand you are being checked for Colitis.  Are your doctors also going to do an endoscopy with biopsies at the same appointment to check for Celiac?  Even if you are too unhealthy to undergo a gluten challenge prior to an endoscopy, there are changes consistent with Celiac Disease that can be found by biopsy and microscopic examination.  Also get checked for nutritional deficiencies.  Many of your health complaints you've mentioned in other posts can be connected with vitamin and mineral deficits.  
    • Scott Adams
      Lab results

      By Scott Adams · Posted

      You might find some of these articles interesting--research that shows a connection between celiac disease and some cases of MS: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/multiple-sclerosis-and-celiac-disease/
×
×
  • Create New...