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What is a high level of antibodies for someone with celiac?

Mharzbarz9959

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Mharzbarz9959 Apprentice
Mharzbarz9959
Posted

I have recieved the results of the blood test for the increased number of antibodies and I have tested positive at a level of 155. Is this a high number of antiobodies or not? Has anyone had higher or lower and been diagnosed?

I will be getting a biopsy in around 4 weeks.

thanks in advance.

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ravenwoodglass Mentor
ravenwoodglass
Posted

Yes that is high. If it was say 20 or so I would ask what the normal ranges were but 155 is far above any normal ranges I have ever seen. Do make sure you keep eating gluten until your endo is done. After the endo you can go gluten free and should no matter what the endo results. Damage can be patchy and get missed so positive blood test trumps negative biopsy. I hope you heal quickly.

Mharzbarz9959 Apprentice
Mharzbarz9959
Posted
  • Author

I am sorry but I forgot to mention that although I know this is a US site I am actually from the UK because this was the best site I could find. (and under the NHS) so could the range of antibodies be different to the US ranges? Maybe that would explain why 155 is so high because my gastroentoligest told us that 50-60 is the normal range for people without celiac disease. Sorry if this changes it a bit.

ravenwoodglass Mentor
ravenwoodglass
Posted

that is still 3x the normal range. Not much doubt about your being celiac. We have many members from other countries including the UK. All are welcome. If needed you can ask about UK specific brands etc in the products section and folks from your country may be able to help.

Welcome to the club you never wanted to join. We are here to help in any ways we can.

Mharzbarz9959 Apprentice
Mharzbarz9959
Posted
  • Author

Thank you for all your help. ?

Mharzbarz9959 Apprentice
Mharzbarz9959
Posted
  • Author

I will make sure to eat gluten until I have been properly diagnosed and everythings done ?. Not looking forward to all the symptoms of eating gluten though. Sorry forgot to put this in my reply above 

ravenwoodglass Mentor
ravenwoodglass
Posted

Some find it helpful to eat their daily 'dose' in the evening. You don't have to eat a lot. A couple slices of bread worth of gluten is enough. If your symptoms are severe your doctor may be able to give you some medication to help. Immodium can be helpful if you need to leave the house and Pepto Bismal liquid can help if you get stomach pain. If you have favorite gluten items that you think you will miss now is the time to have them. Use the time also to start preparing your home and pantry for after the endo.

If your symptoms become very severe do contact your doctor.

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Mharzbarz9959 Apprentice
Mharzbarz9959
Posted
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Yes, I usually have a breakfast or lunch and a dinner that contains gluten. I usually dont suffer “excruciating” stomach pains but they are not too nice either. I have already had a toasted sandwhich and am planning on eating a pizza before my endoscopy. Will cause my intestine to hate me but its worth it for a last pizza ever ?

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