Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does this look like DH?


RobinJ2780

Recommended Posts

RobinJ2780 Newbie
(edited)

Hello,

i have a terrible itchy rash on my left elbow and right hand that make me wonder if they could be DH. I did a celiac panel several months ago that came back negative. I have other autoimmune problems (thyroid, ITP, daily history of lupus and get achey joints). Does this look like it could be DH?

o3faq.webp

 

Edited by RobinJ2780

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Sorry, I can not open your file.  DH mimics so many rashes.  The only way to know for sure is a skin biopsy done by a Dermatologist who is hopefully celiac savvy.  

Open Original Shared Link

 

Posterboy Mentor

Robin,

They can be connected diseases.

Here is a good article about their connection.

Open Original Shared Link

They have a separate break out paragraph on the celiac and SLE connection(s).

quoting

Celiac disease

"The coexistence of SLE and celiac disease is rare. So far, only 17 cases have been reported in the literature. Both diseases have an autoimmune nature and share HLA-B8 and HLA-DR3 histocompatibility antigens[Open Original Shared Link]. Celiac disease can occur before or after the diagnosis of lupus[Open Original Shared Link]. Most patients have positive serum antigliadin antibodies and histological findings of duodenal biopsy which are consonant with celiac disease."

Though they call it rare . . . .it is mainly because no body is looking for the connections. 17 different case (etal &etc.)showing common origination but they are distinctly different diagnoses.  Stop the madness!  Admit they are connected and find the common cause to treat the underlying cause!

quoting again for emphasis in Lupus patients they readily admit

"Most patients have positive serum antigliadin antibodies and histological findings of duodenal biopsy which are consonant with celiac disease."

medicine want's distinctly defined conditions .... but co-morbidity is more common than we often like to admit.

at least on researcher admitted their mistake.  It just took years to correct.

see this link entitled "Coeliac disease in systemic lupus erythematosus: a case report"

Open Original Shared Link

quoting their quality research/abstract on this topic.

"The case of a rare coexistence of systemic lupus erythematosus (SLE) with coeliac disease (celiac disease) is described. Systemic lupus erythematosus was diagnosed prior to celiac disease and initially SLE treatment was administered. After several years, when celiac disease symptoms developed, the diagnosis was corrected and additional treatment with a gluten-free diet was applied with beneficial effects."

also see this article on celiac/gluten connection in IBS.

https://www.celiac.com/celiac-disease/large-number-of-irritable-bowel-syndrome-patients-sensitive-to-gluten-r3442/

quoting

"Nearly 84% of the gluten-free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group (p < 0.001)." but essentially the IBS diagnosis was retained and not NCGS which is probably the better diagnosis.

I found treating my low stomach acid being misdiangosed helped many of GI problems the same was NCGS is being diagnosed as IBS in 84% of the cases.

see my blog post about the connection to low stomach acid in NCGS or undiagnosed Celaics.

https://www.celiac.com/blogs/entry/2106-is-ncgs-andor-celiac-disease-really-low-stomach-acid-misdiagnosed/

Low stomach acid or Gastroparesis is also common or at least associated with your Lupus as well.

See this research entitled "Gastroparesis in Systemic Lupus Erythematosus: A Case Report"

Open Original Shared Link

Gastritis commonly caused by low stomach acid is also common in thyroid patients commonly underdiagnosed/or over loooked because co-morbidity is not well accepted in medical science.

see this link Open Original Shared Link entitled "Atrophic Body Gastritis in Patients With Autoimmune Thyroid Disease An Underdiagnosed Association"

these connections are common . . . .but not commonly diagnosed (together) because that would be too messy or at least an admittance they don't know which it is . . . the chicken or the egg?

Did your Celiac or Lupus come first????? I don't know but you can find out if they are are related by going gluten free!

Or try treating your low stomach acid undiagnosed to see if it helps both these conditions.  Because both are associated with low stomach acid. . . but the connection/association is not often made.

see this post on Extreme bloating and see how treating her gastroparesis  (GERD, nausea etc.) helped many of  her (Brandi1969s) GI problems because the stomach comes before the small intestine in the GI tract and it first should be ruled out as a cause of your lower GI problems because digestion is a north south process.

https://www.celiac.com/forums/topic/122303-extreme-bloat-help/

or see this thread for more information on the possible link between your GI problems and your many autoimmune conditions including gastritis.

https://www.celiac.com/forums/topic/122641-gluten-sensitivity-and-gastritis-maybe/?tab=comments#comment-996653

I hope this is helpful but it is not medical advice.

I must stop for now but your rash is common in both diseases . . .now you must decide which one is the chicken or the egg?

For me it helped me to treat my stomach issues first (t)hen see if my lower GI symptom's didn't also improve.

Good luck on your continued journey.

As always "Consider what I say; and the Lord give thee understanding in all things."  2 Timothy 2:7

Posterboy by the Grace of God,

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,340
    • Most Online (within 30 mins)
      7,748

    Rachel Hill
    Newest Member
    Rachel Hill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...