Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed


Breaux

Recommended Posts

Breaux Newbie

Hello,

I never thought I would be on a celiacs forum, but here I am and I 'm glad that there is a community to help folks on their journey to feeling better and gaining a better understanding of what celiacs is. 

My diagnosis took 3 1/2 years, which from reading other peoples experiences isn't uncommon. I know that during this span, I have been gradually feeling worse and having a really difficult time figuring out, why? My symptoms seem a little atypical; started out with upper right abdominal fullness that came and went for 2 years, which progressed to upper left and right fullness/pain that is fairly persistent. I haven't had what I would consider a normal bathroom visit during this time- probably to much information, but again from what I have read it comes with the territory. I'll list some other symptoms just in the chance someone reads this and find themselves in the same boat: hair thinning, floating stools, dark circles under eyes, occasional rash and itching, headaches, yellow'ish tongue(mostly in the morning), low energy, and brain fog. 

I started my diet today. I'll give some updates and hopefully someone out there reads this one day and it helps. 

Cheer,

Breaux

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Breaux!  Welcome to the forum! :)

I hope you enjoy your time here and can learn some helpful things.  There is a sticky thread in the Coping With Celiac forum section called Newbie 101 that has some tips for you.i

Other than that we generally suggest people stick to whole foods for at least a few months and avoid dairy.  Eating out in restaurants is a bad idea for a beginner also.  There's a few other things to learn about celiac disease so feel free to ask questions.  Someone may have a good answer! :)

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,723
    • Most Online (within 30 mins)
      7,748

    twestcds
    Newest Member
    twestcds
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Idnam
      They do work for me. I am feeling much better now that I am watching my histamine intake and only take the DAO once  a day.   I had acid reflux for 12 years and was prescribed PPI's.  which I refused to take. Ranitidine was prescribed as an option that I did use only as and when I had chest pain. They were prescribed for me to reduce the acid in my body.
    • Yaya
      This is difficult for me to deal with.  B complex is what stands between me and migraines.  Whenever I stop B for just a few days, I get a migraine.  All my adult life I would get a violent migraine for 3 days like clockwork until a doctor told me to try B complex and it worked.  The only time I get a migraine is when I've run out of B.  This has worked for me for over 15 years.  I am soon to be 79.   My cardiologist has me stop all vitamins for about 3 days and I always have a migraine when I go in for the bloodwork.   D level is nearly at optimal.  I don't take A, I get enough from food.   What a dilemma!
    • Scott Adams
      I think the best approach is to lean how to read product labels, especially the allergen warnings, and these lists might be helpful:      
    • Scott Adams
      It looks like you are referring to this product: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Their site says: "Made with gluten-free wheat starch to give baked goods incredible taste and texture, it’s ideal for classic yeasted recipes like artisan boules, bagels, cinnamon rolls, and burger buns", and it is true that Codex quality wheat starch is gluten-free, and does make better baked goods. However, it also contains very low levels of gluten (under 20ppm), and some celiacs do react to this level, so if you are super sensitive it's best to avoid it. They also make this very similar product, which doesn't include any wheat ingredient, and is certified gluten-free: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Although labeling products in the USA as "gluten-free" that contain such wheat starch is relatively new, it has been offered in Europe for decades. You can read more about studies on it here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • DebJ14
      Our Functional Medicine doctor has always ordered the Spectracell Test for Micronutrient Deficiencies.  It tests the intracellular levels of the nutrients, not blood levels.  When high dose, targeted supplementation did not resolve the deficiencies after retesting at 6 months and then a year, he ordered genetic tests.  I have a genetic inability to process Vitamin D, B12 and antioxidants, so I am on high doses of those for life.  The rest of the initial deficiencies resolved within 6 months to a year and a good multi vitamin is sufficient to address those.  My husband has historically had high homocysteine levels and his low folate, B 12 and B6  levels are because of his MTHFR gene mutation.  Always good to get to the root cause!
×
×
  • Create New...