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Uncontrollable acid reflux

Anne01
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Anne01 Rookie
Anne01
Posted

I was diagnosed 5 years ago, and like many on here my primary symptom was severe acid reflux.  

I have been diligently gluten free since diagnosis and i have removed all foods i can think as triggers... eggs, dairy, cucumber, tomatoes, fatty foods.... etc .  I am currently taking 40mg tecta 2xdaily with up to 12 Gaviscon tablets daily to control breakthroughs.. 

i dont smoke, rarely drink, exercise daily ... im a few lbs overweight but currently working on losing the last bit. Maybe 15 lbs over the bmi . 

Does anyone have any suggestions on what else i can do? I would really love to sleep a full night without waking up to acid.  Lol.  Also, i dont get any heart burn with it. ?‍♀️

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Michelle1234 Contributor
Michelle1234
Posted

I stop eating at 5 p.m. and take Acid Sooth right before bedtime, around 11 p.m.

https://www.amazon.com/Enzymedica-Occasional-Heartburn-Indigestion-Capsules/dp/B00L2LP7YU?hvadid=241930076102&hvdev=c&hvlocphy=9028797&hvnetw=g&hvpos=1t2&hvqmt=e&hvrand=5131258299988324394&hvtargid=kwd-392895349644&keywords=acid+sooth&qid=1540657732&sr=8-1-spons&tag=googhydr-20&ref=sr_1_1_sspa&psc=1

Ennis-TX Grand Master
Ennis-TX
Posted
3 hours ago, Anne01 said:

I was diagnosed 5 years ago, and like many on here my primary symptom was severe acid reflux.  

I have been diligently gluten free since diagnosis and i have removed all foods i can think as triggers... eggs, dairy, cucumber, tomatoes, fatty foods.... etc .  I am currently taking 40mg tecta 2xdaily with up to 12 Gaviscon tablets daily to control breakthroughs.. 

i dont smoke, rarely drink, exercise daily ... im a few lbs overweight but currently working on losing the last bit. Maybe 15 lbs over the bmi . 

Does anyone have any suggestions on what else i can do? I would really love to sleep a full night without waking up to acid.  Lol.  Also, i dont get any heart burn with it. ?‍♀️

I messed up my stomach as a kid almost ODing on energy drinks to the point of vomiting blood. Ever since then I always would be burping up acid, or having it just come up in my mouth making me spit it up...at night I would just hack it up. Seems the pumps would never turn off, doctors but me on a crazy regiment of Nexium and Ranidine. It does have some other issues I think it has cause, but If I get off of them the problem returns. But I take both twice a day before breakfast and dinner. Been on this since around 15 years.

cyclinglady Grand Master
cyclinglady
Posted

Is your celiac disease active?   When was the last time your antibodies were measured?  Maybe it is time for another endoscopy.  It might not be celiac related at all.   

My celiac disease is not active.  A recent endoscopy revealed healed villi, but biopsies revealed autoimmune gastritis (AG).  That was the cause of my acid reflux.  It was a relief to know I was doing well in the gluten-free diet.  

When my AG acts up, I sleep elevated and avoid all food hours prior to bedtime.  

Posterboy Mentor
Posterboy
Posted
8 hours ago, Anne01 said:

I was diagnosed 5 years ago, and like many on here my primary symptom was severe acid reflux.  

I have been diligently gluten free since diagnosis and i have removed all foods i can think as triggers... eggs, dairy, cucumber, tomatoes, fatty foods.... etc .  I am currently taking 40mg tecta 2xdaily with up to 12 Gaviscon tablets daily to control breakthroughs.. 

i dont smoke, rarely drink, exercise daily ... im a few lbs overweight but currently working on losing the last bit. Maybe 15 lbs over the bmi . 

Does anyone have any suggestions on what else i can do? I would really love to sleep a full night without waking up to acid.  Lol.  Also, i dont get any heart burn with it. ?‍♀️

Anne01,

See this thread.

https://www.celiac.com/forums/topic/122303-extreme-bloat-help/

try taking some BetaineHCL (powdered stomach acid) of 4 or 5 capsules with a meal and be sure to drink at least a couple glasses of water/tea which ever you prefer.

Water activates the BetaineHCL. .... so more is better. 

Never take BetaineHCL on an empty stomach because it could cause burning.

Never take it without drinking water because water helps it work properly.

if this helps then you have low stomach acid being misdiagnosed.

Here is my story.

https://www.celiac.com/blogs/entry/2106-is-ncgs-andor-celiac-disease-really-low-stomach-acid-misdiagnosed/

good luck on your continued journey.

I hope it helps I only know it helped me.

This is not medical advice but I hope it is helpful.

2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things.

Posterboy by the Grace of God,

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