Celiac disease and intestinal bleeding?

[Sarahcat58]

I’m new to all this Celiac and gluten free stuff so I apologize if I come off as ignorant. I’ve been to two Gastroenterologists are both have told me that my Gluten issues where not Celiac, I do get stomache cramps when I eat gluten, and if I eat gluten consistently I suddenly become allergic to my cat! Still, my symptoms are nothing compared to the pain that diagnosed Celiacs have described. I’ve taken the blood test to see if I am Celiac, and it came back negative. But Ever since my Gluten issues came about (stomach pain constantly, skin issues, other allergies) so have my diary issues. If I eat Dairy I either get constipation or diarrhea, and if I continue it for a few days I get minimal rectal bleeding, which is a little scary. This is definitely a symptom of dairy intolerance and not gluten intolerance right? I asked the Gastroenterologist about it, and they said it’s most likely just IBS. She said I’m too young for a lot of gastrointestinal issues (I’m 22, in good health). She also said rectal bleeding is really only a concern if it’s enough to fill up a toilet bowl, and mine is only when I wipe, while obviously eating dairy (or maybe gluten? I’m not sure). Has anyone experienced anything like this? I want to get a Colonoscopy at some point, although my Doctor told me I don’t really need too. But rectal bleeding is pretty scary for me. 

[Ennis-TX]

Red blood means it is in your large intestine, if it was tar then further up. NOW I am not diagnosing you but something to consider. I have Ulcerative Colitis with my celiac, My UC flares with cramps, gas, and bloody stool, sometimes much worse. Common triggers for UC can be gluten, dairy, hot spices, greasy fatty meats, certain vegetables and rare triggers include but are not limited to, fructose, glucose, coffee, and chocolate.
I manage mine with a herbal remedy and diet, I use a Paleo/Keto diet, and take Marshmallow root, slipper elm, and aloe vera to coat and sooth my gut....I could pay for the expensive Rx and eat more foods but stick to my current method for cost reasons.
 Removing Gluten, dairy and keeping a food diary to find your other triggers can help, cooking veggies super soft, same with meats helps.

Do go see a GI specialist and get scopes from both ends. Colonoscopy would be needed to find UC or what ever is causing your bleeding, Endoscope for Celiac. KEEP eating gluten daily, at least a slice of a bread a day so any testing is valid.

[ravenwoodglass]

What tests did they do and were you gluten free or gluten light when they were done? You need to be eating at least the equivalent of a couple slices of bread a day for about 12 weeks before blood tests if you have been gluten free or gluten light.  Celiac damages the area of the intestine that produces the enzyme needed to digest dairy so dairy will produce issues in most of us. As to the blood if, as you say, you are just seeing a bit of blood on the tissue then it is likely hemmeroids (sp?). We can have them both internally and externally and a bit of blood from them is nothing to be overly concerned about. If you are actively bleeding and turning the bowl water pink then if your doctor won't do a colonoscopy you need to find a new doctor. If you are actively bleeding (as if you had your period) IMHO that would be an emergency and a trip to the ER while it is happening would be in order.

[frieze]

if it is a small amount, and bright red, probably from being constipated.  however, you are not "too" young to have things checked out.  get the full celiac panel done, you may have to pay out of pocket, include allergy to wheat, just to cover the bases.  get really insistant.  if you mom is in your corner, take her with you, perhaps you will be taken more seriously...

[ravenwoodglass]

5 minutes ago, frieze said:

  if you mom is in your corner, take her with you, perhaps you will be taken more seriously...

Dad would be a good idea also. Unfortunately sometimes women are not taken as seriously as men by doctors.

One more thing to add...If by chance you are being woken up at night by stomach issues make sure your doctor knows this. We often get labeled with IBS and IBS does not produce this symptom.

[frieze]

3 minutes ago, ravenwoodglass said:

Dad would be a good idea also. Unfortunately sometimes women are not taken as seriously as men by doctors.

One more thing to add...If by chance you are being woken up at night by stomach issues make sure your doctor knows this. We often get labeled with IBS and IBS does not produce this symptom.

Quote

I ordinarily suggest a male, I thought a female in this case.  but, definitely dad, if you are comfortable with that.