Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Symptoms... Please Help

romeo77

Recommended Posts

romeo77 Rookie
romeo77
Posted

Hey there guys..

OK

over the last two weeks, my stool movements have not been right .... iv had diarohea a couple of times initally , but mainly the real symptoms are my constant 24/7 feelings of "unfinished movements" therefor i always feel like i have to goto the toilet... like i siad my movements arent necasarily runny or watery, (although they were intially), but i still am going alot more times a day and get that unfinshed feeling all the time... it sucks, it feels like somethings in my body isnt doing its job .... i really want to get a colonoscopy done or some bowel x-rays.... i had a endoscopy and biopsy done like 7 weeks ago which determined i was celiac... but for the first 4/5 weeks things were ok!! but after that everything seems to be going from bad to worse... i tried lactose free diet for a week, that just made me sick so im back on milk and im pretty sure im not lactose/dairy intolerant...

but yeah, im losing weight and getting stressed/depressed about this... its hard cos my local doctors dont re-open for another few dyas being xmas, so its crap just sitting here waiting for the day they open...

any suggesions?? please send your thoughs...im desperate for answers

thanks crew

-dan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kevsmom Contributor
kevsmom
Posted

Hi Dan -

I'm sorry I don't have any words of wisdom for you. I will be interested in looking for anything that anyone else posts. I am having kind of the same sort of problem. Whenever I go to the bathroom to urinate, a little poop comes out too. I don't even realize that I had to go. It's the kind that is sticky and hard to clean up. Like you, I feel that something isn't doing it's job.

I've been gluten free since April, and I thought I was doing pretty well.

Cute pun about it being crap just sitting there :rolleyes: .

Cindy

darlindeb25 Collaborator
darlindeb25
Posted

I am not sure about others, because this isnt something that comes up often. I know exactly what you mean and have gone through it too. It doesnt happen as often to me anymore, but still does. I have been gluten free now for 4 1/2 years. Our systems just work differently and I dont really think there is a normal, only what's normal for us. You may agree that having been sick for years, we really have no idea what normal for us is. I still have days when I know it will be a day where I dont want to be too far from the bathroom, but I have more days were I feel almost normal. Dan--maybe you are getting glutened from something, a vitamin, soap, shampoo, lotion, after shave???????????????? I dont react the same to barley as I do the other glutens and last week I made some puppy chow for my daughter and people at work. I bagged up puppy chow for them and closed their bags, then did some peanut brittle in different bags. I know I popped a piece of peanut brittle in my mouth (yes, it is gluten free), but I didnt think about having closed the bags of puppy chow. I had a nasty tummyache at work and later realized it was probably from getting some barley on my brittle. I have never ate anything on purpose that contained gluten, not since I went gluten-free. I was so sick before finding out about celiacs--there is nothing worth eating that contains gluten for me. I also am soy/corn intolerant. I can handle soy lecithin, a small amount of soy oil and fresh or frozen corn. No processed corn at all and no tomatoes anymore--none. My sweetie is afraid that eventually I will be intolerant of all foods, but I dont think that will happen. He has been with me for most of that 4 yrs. I developed neuropathy before I found out about celiacs, so now I battle that too. The neuropathy slowed in progression, but flares now and has gotten a little worse in the last few months.

Just realize that sometimes normal for us is very different from normal for others. Both of you are still healing inside. Many celiacs can take 2-5 yrs to heal inside. Feel free to email me at darlindeb25@aol.com --the first time, put celiac in the subject line. Merry Christmas! Deb

Nancym Enthusiast
Nancym
Posted

When I first started my gluten-free diet my IBS cleared up for the first time in years. It was amazing. My poops were sterling silver. Well, it felt that way anyway. :) Life was good. But then I went into some terrible constipation, and that feeling of incomplete BMs, and that plagued me for about 6 weeks. But suddenly it has cleared up and I'm back to sterling again! Maybe there was just some healing going on or something?

julie5914 Contributor
julie5914
Posted

Well, if you are sure that you haven't gotten gluten and you are sure it isn't lactose or casein, it could be one of the following:

a stomach bug of some kind (not celiac related),

parasites,

yeast,

bacterial overgrowth,

another food allergy (soy, eggs, corn, nightshades).

If you have the money, it might be worth it to order a stool test from Enterolab that will test one or more of these things.

Nancym Enthusiast
Nancym
Posted

I decided to go ahead and have my testing done by Enterolab.com and found out I'm also casein intolerant! I suspect this is the answer to why I'm still having intestinal issues.

Guess what my NY's resolution is? Yup, give up milk products! (Already gave up gluten... into the 3rd month of my two week trial) :)

*grumble*

Milk products are a major staple on my diet.

MACE Rookie
MACE
Posted
Hi Dan -

I'm sorry I don't have any words of wisdom for you. I will be interested in looking for anything that anyone else posts. I am having kind of the same sort of problem. Whenever I go to the bathroom to urinate, a little poop comes out too. I don't even realize that I had to go. It's the kind that is sticky and hard to clean up. Like you, I feel that something isn't doing it's job.

I've been gluten free since April, and I thought I was doing pretty well.

Cute pun about it being crap just sitting there :rolleyes: .

Cindy

HI, DO NOT KNOW IF THIS WILL HELP YOU OR NOT BUT I WAS HAVING THE SAME KIND OF PROBLEM. I HAVE HAD THE COLONSCOPY DONE AND NOTHING SHOWED. MY DOCTOR THEN TOLD ME TO TAKE A STOOL SOFTNER EVERYDAY. MAKE SURE IT IS A STOOL SOFTNER AND NOT ONE THAT REALLY MAKES YOU GO TO THE BATHROOM LIKE RIGHT NOW. IT SEEMS TO BE HELPING ME ALOT.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jamielee Newbie
Jamielee
Posted
Hey there guys..

OK

over the last two weeks, my stool movements have not been right .... iv had diarohea a couple of times initally , but mainly the real symptoms are my constant 24/7 feelings of "unfinished movements" therefor i always feel like i have to goto the toilet... like i siad my movements arent necasarily runny or watery, (although they were intially), but i still am going alot more times a day and get that unfinshed feeling all the time... it sucks, it feels like somethings in my body isnt doing its job .... i really want to get a colonoscopy done or some bowel x-rays.... i had a endoscopy and biopsy done like 7 weeks ago which determined i was celiac... but for the first 4/5 weeks things were ok!! but after that everything seems to be going from bad to worse... i tried lactose free diet for a week, that just made me sick so im back on milk and im pretty sure im not lactose/dairy intolerant...

but yeah, im losing weight and getting stressed/depressed about this... its hard cos my local doctors dont re-open for another few dyas being xmas, so its crap just sitting here waiting for the day they open...

any suggesions?? please send your thoughs...im desperate for answers

thanks crew

-dan

Hi Dan,

I'm new to this board, but I've had celiac disease for over 20 years, and I was just dx with it in May. I'm also a nurse, and I've had a chance to work with others with celiac. It could possibly be that your bowels are still recovering from all the years of eating gluten. They need time to heal, and you may have a sensitivity to dairy now, but over time it may resolve itself. I am lactose intolerant, and before I found out, I was having the same symptoms. I hope this could help you in some way.

Jamie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,181
    • Most Online (within 30 mins)
      7,748
    Ruby B
    Newest Member
    Ruby B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jane878
      My mo,ther married a bread making when I was 4

      By Jane878 · Posted

      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Sheila mellors
      Is Toblerone Gluten-Free?

      By Sheila mellors · Posted

      I asked about the new fruit and nut one and the Dietician said yes I could eat it safely. Hooe this helps
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
×
×
  • Create New...