My Symptoms... Please Help

[romeo77]

Hey there guys..

OK

over the last two weeks, my stool movements have not been right .... iv had diarohea a couple of times initally , but mainly the real symptoms are my constant 24/7 feelings of "unfinished movements" therefor i always feel like i have to goto the toilet... like i siad my movements arent necasarily runny or watery, (although they were intially), but i still am going alot more times a day and get that unfinshed feeling all the time... it sucks, it feels like somethings in my body isnt doing its job .... i really want to get a colonoscopy done or some bowel x-rays.... i had a endoscopy and biopsy done like 7 weeks ago which determined i was celiac... but for the first 4/5 weeks things were ok!! but after that everything seems to be going from bad to worse... i tried lactose free diet for a week, that just made me sick so im back on milk and im pretty sure im not lactose/dairy intolerant...

but yeah, im losing weight and getting stressed/depressed about this... its hard cos my local doctors dont re-open for another few dyas being xmas, so its crap just sitting here waiting for the day they open...

any suggesions?? please send your thoughs...im desperate for answers

thanks crew

-dan

[kevsmom]

Hi Dan -

I'm sorry I don't have any words of wisdom for you. I will be interested in looking for anything that anyone else posts. I am having kind of the same sort of problem. Whenever I go to the bathroom to urinate, a little poop comes out too. I don't even realize that I had to go. It's the kind that is sticky and hard to clean up. Like you, I feel that something isn't doing it's job.

I've been gluten free since April, and I thought I was doing pretty well.

Cute pun about it being crap just sitting there .

Cindy

[darlindeb25]

I am not sure about others, because this isnt something that comes up often. I know exactly what you mean and have gone through it too. It doesnt happen as often to me anymore, but still does. I have been gluten free now for 4 1/2 years. Our systems just work differently and I dont really think there is a normal, only what's normal for us. You may agree that having been sick for years, we really have no idea what normal for us is. I still have days when I know it will be a day where I dont want to be too far from the bathroom, but I have more days were I feel almost normal. Dan--maybe you are getting glutened from something, a vitamin, soap, shampoo, lotion, after shave???????????????? I dont react the same to barley as I do the other glutens and last week I made some puppy chow for my daughter and people at work. I bagged up puppy chow for them and closed their bags, then did some peanut brittle in different bags. I know I popped a piece of peanut brittle in my mouth (yes, it is gluten free), but I didnt think about having closed the bags of puppy chow. I had a nasty tummyache at work and later realized it was probably from getting some barley on my brittle. I have never ate anything on purpose that contained gluten, not since I went gluten-free. I was so sick before finding out about celiacs--there is nothing worth eating that contains gluten for me. I also am soy/corn intolerant. I can handle soy lecithin, a small amount of soy oil and fresh or frozen corn. No processed corn at all and no tomatoes anymore--none. My sweetie is afraid that eventually I will be intolerant of all foods, but I dont think that will happen. He has been with me for most of that 4 yrs. I developed neuropathy before I found out about celiacs, so now I battle that too. The neuropathy slowed in progression, but flares now and has gotten a little worse in the last few months.

Just realize that sometimes normal for us is very different from normal for others. Both of you are still healing inside. Many celiacs can take 2-5 yrs to heal inside. Feel free to email me at darlindeb25@aol.com --the first time, put celiac in the subject line. Merry Christmas! Deb

[Nancym]

When I first started my gluten-free diet my IBS cleared up for the first time in years. It was amazing. My poops were sterling silver. Well, it felt that way anyway. Life was good. But then I went into some terrible constipation, and that feeling of incomplete BMs, and that plagued me for about 6 weeks. But suddenly it has cleared up and I'm back to sterling again! Maybe there was just some healing going on or something?

[julie5914]

Well, if you are sure that you haven't gotten gluten and you are sure it isn't lactose or casein, it could be one of the following:

a stomach bug of some kind (not celiac related),

parasites,

yeast,

bacterial overgrowth,

another food allergy (soy, eggs, corn, nightshades).

If you have the money, it might be worth it to order a stool test from Enterolab that will test one or more of these things.

[Nancym]

I decided to go ahead and have my testing done by Enterolab.com and found out I'm also casein intolerant! I suspect this is the answer to why I'm still having intestinal issues.

Guess what my NY's resolution is? Yup, give up milk products! (Already gave up gluten... into the 3rd month of my two week trial)

*grumble*

Milk products are a major staple on my diet.

[MACE]

Hi Dan -

I'm sorry I don't have any words of wisdom for you. I will be interested in looking for anything that anyone else posts. I am having kind of the same sort of problem. Whenever I go to the bathroom to urinate, a little poop comes out too. I don't even realize that I had to go. It's the kind that is sticky and hard to clean up. Like you, I feel that something isn't doing it's job.

I've been gluten free since April, and I thought I was doing pretty well.

Cute pun about it being crap just sitting there .

Cindy

HI, DO NOT KNOW IF THIS WILL HELP YOU OR NOT BUT I WAS HAVING THE SAME KIND OF PROBLEM. I HAVE HAD THE COLONSCOPY DONE AND NOTHING SHOWED. MY DOCTOR THEN TOLD ME TO TAKE A STOOL SOFTNER EVERYDAY. MAKE SURE IT IS A STOOL SOFTNER AND NOT ONE THAT REALLY MAKES YOU GO TO THE BATHROOM LIKE RIGHT NOW. IT SEEMS TO BE HELPING ME ALOT.

[Jamielee]

Hey there guys..

OK

over the last two weeks, my stool movements have not been right .... iv had diarohea a couple of times initally , but mainly the real symptoms are my constant 24/7 feelings of "unfinished movements" therefor i always feel like i have to goto the toilet... like i siad my movements arent necasarily runny or watery, (although they were intially), but i still am going alot more times a day and get that unfinshed feeling all the time... it sucks, it feels like somethings in my body isnt doing its job .... i really want to get a colonoscopy done or some bowel x-rays.... i had a endoscopy and biopsy done like 7 weeks ago which determined i was celiac... but for the first 4/5 weeks things were ok!! but after that everything seems to be going from bad to worse... i tried lactose free diet for a week, that just made me sick so im back on milk and im pretty sure im not lactose/dairy intolerant...

but yeah, im losing weight and getting stressed/depressed about this... its hard cos my local doctors dont re-open for another few dyas being xmas, so its crap just sitting here waiting for the day they open...

any suggesions?? please send your thoughs...im desperate for answers

thanks crew

-dan

Hi Dan,

I'm new to this board, but I've had celiac disease for over 20 years, and I was just dx with it in May. I'm also a nurse, and I've had a chance to work with others with celiac. It could possibly be that your bowels are still recovering from all the years of eating gluten. They need time to heal, and you may have a sensitivity to dairy now, but over time it may resolve itself. I am lactose intolerant, and before I found out, I was having the same symptoms. I hope this could help you in some way.

Jamie