Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy


Crispy chick

Recommended Posts

Crispy chick Explorer

Hi. 

Do they tell you straight after the procedure if they see damage??? Or do you always have to wait for follow up biopsy results. UK. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
(edited)

It depends on the equipment.  A newer scope can actually see villi destruction, but the older ones can not.  However, damage is often microscopic, so you just have to wait for the pathologist’s report.  

In my case, my diagnosing GI said my small intestine looked fine, but a week later, the pathologist’s report showed a Marsh Stage IIIB (patches of moderate to severe damage).  Five years later, a different GI was able to see healthy villi and take pictures after being on a gluten free diet. The pathologist’s report noted no damage to my small intestine anymore.  

Edited by cyclinglady

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,451
    • Most Online (within 30 mins)
      7,748

    April wingert
    Newest Member
    April wingert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hello @lehum Greetings from the UK.  Another struggler here - and I'm a Moderator on this forum, and have been extremely strict about my diet!  My antibodies took years to come down to normal levels.  Very annoying particularly when had friends who seemed to be the miracle turnaround celiacs that one reads about (although, of course, I am happy for them!) My antibodies didn't descend to normal (under 10 in my local lab) for about 8 years, from memory.  I must admit once that had happened a lot of aches and pains disappeared, but I still have some weird stuff going on like ocular migraines, tingling in my left leg after exercise.  And it doesn't take much to make my stomach upset - too much rich food, antibiotics, overdoing the dairy or even too many pure oats.  This all leads to reflux occasionally, and gastritis like pain.  And during the various lockdowns I developed adult onset eczema - I think I found that eating too many almonds might have been the cause of that. One thing you may need to check - do you use a dishwasher?  Could be a coincidence but it wasn't until we changed from our old one, which on closer inspection left a residue on plates (I share a house with gluten eaters), to a new one which had an extra clean water cycle to rinse plates at the beginning of the wash,  that the numbers really began to fall.  Also buying a new oven and making the lower oven exclusively gluten free,  may have helped. Whatever you do, be very careful eating out - it's a big reason for cross contamination amongst otherwise diet compliant coeliacs.   I am thinking of cutting back again, as my stomach hasn't been quite right these past few months and I've been eating out a lot.  I'm currently awaiting my annual TTG test result to see if it is gluten that is causing this.  Incidentally, what are your TTG levels now? Cristiana
    • elisejunker44
      Dear RebbeccaJ, I have found cortizon cream to be helpful for the sores associated with ingesting trace amounts of gluten, also helps to track those down! For hand cream, Norwegian /Neutrogena hand cream is good, especially at night. Locally made all natural creams, especially made with Goat Milk, are very soothing.
    • Padgmatic
      I appreciate your struggle. I found out I was celiac at 42 and 19 years later I still make mistakes and learn more about what it means to live a healthy life without gluten. I have to ask: have you done an exhaustive purge of your kitchen? Plastic, wood, non stick cooking items? Until I did this I had issues. Good luck
    • FayeBr
      And just as an afterthought, I would love to ask a question that may sound strange. But when I have symptoms, I never have more than one at one time. The inflammation seems to move around my body. Such as a migraine and then it moves to my throat or earache. Brain fog seems to be consistent but it’s almost like I picture the bad cells travelling through my body and stopping off along the way. For instance, this error was predominantly in my stomach with gastritis and also bloating, abdominal pain and GI symptoms for a long while. And then as I stopped the source and started healing, my gastritis has now started to get better (certainly not fully) but all of a sudden the other symptoms I usually suffer from have bombarded me. It’s like the inflammation has started to move on. Maybe I’m just imagining all this. Very possible. But just my experience. I have nightmares about gluten now. The fear is real! 
    • cristiana
      @knitty kitty I saw my consultant yesterday.  He is not worried about my high MCHC levels, he said he was more interested in my MCV levels and they are fine.. The Holocolobim test apparently is going to take time to come back - the report says 17th October which I think isn't actually the true date, I think it's just a random date thrown out by the labs to say 'Don't hold your breath!'.  He mentioned B12 injections if the levels are low which I would really like as I've always felt in other countries my levels, hovering around 250, would be treated as a deficiency.  Doesn't help that currently I'm not sleeping very well at night, I'm so tired all the time, I'm hoping it will help me feel more energetic.  (Mind you, put me in front of the TV and I'm asleep in minutes!)   When taking thiamin, what sort off food source or supplement would you recommend?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.