Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bill To Cut Nih Funding


angel-jd1

Recommended Posts

angel-jd1 Community Regular
National Institute of Health Cuts May Decrease Celiac Disease Funding

See your ad here!

Site Sponsor:

Gluten Free Food

& Drug SmartLists:

Celiac.com 12/27/2005 - Funding for NIH (including the NIDDK which conducts critical research into Celiac disease) in next year's Labor-HHS Appropriations Bill is only slightly above last year's levels-inadequate to compensate for inflation and the development of promising research. However, Congress is also in the process of approving a 1% across-the-board cut to ALL discretionary programs (except Veterans programs)-including NIH.

This cut will decrease the NIH funding level for the first time in a generation and put in mortal jeporady the research that can lead to treatments and eventually a cure for Celiac disease. Not only will this cut affect the work of NIH for this year, but will set back medical research into Celiac disease for many years to come.

Because the Celiac community relies heavily on research conducted by NIH, it is critical that individuals speak out against this bill. Because of the low NIH funding, the Celiac community must demand that the Labor-HHS appropriations bill be rejected, and a new bill that addresses the funding needs of NIH be enacted.

The bill has passed the House of Representatives and awaits a vote in the Senate. If you have not yet contacted your Senator to ask for their "no" vote on this bill, please do so now. If you have, please do so again. To reach your Senator, call the Capitol switchboard at (202) 224-3121 and ask to be connected with the offices of your state's Senators.

The progress of vital research for Celiac disease and countless other ailments and conditions lies in the balance. Please do your part and speak out!

Jonathan R Pawlow, Jr.

Digestive Disease National Coalition

507 Capitol Court, NE, Suite 200

Washington, DC 20002

202-544-7497

202-546-7105 (fax)

Pawlow@HMCW.org

NIH Appropriations Update

Continue to urge congress to support biomedical research in the final fiscal year 2006 labor-hhs-education appropriations bill

The United States Senate was expected to vote on the fiscal year 2006 appropriations bill for the Departments of Labor, Health and Human Services, and Education last week. The health community's advocacy in opposition to the Labor-HHS-Education appropriations bill had an impact in the Senate, as Senate Majority Leader Bill Frist (R-TN) set aside a vote on the bill.

However, on Sunday, December 18th, the House passed the fiscal year 2006 Defense appropriations bill, which included a 1% reduction in appropriations for all federal programs excluding veterans' assistance. This means the budget for the National Institutes of Health (NIH) would receive a cut in funding, leaving the budget below fiscal year 2005 levels, if the Senate approves the fiscal year 2006 Labor-HHS-Education appropriations bill. The Senate is expected to vote this week, as early as today, on the bill.

Requested Action:

Please contact your senators immediately and urge them to vote no on the Labor-HHS Appropriations Conference Report. in addition, ask them to restore funding for nih in the bill to the level originally called for in the senate version of the legislation ($29.3 billion).

To contact your senators, please visit www.senate.gov or call the U.S. Capitol switchboard at (202) 224-3121.

https://www.celiac.com/st_prod.html?p_prodid=1272

I'm not sure how many of you saw this article. But here it is just incase you hadn't seen it yet. Funding for the National Institute of Health could possibly be cut if we don't get moving!! In order to let people know what we need weHAVE to speak out. Folks, we have done this before, and now is a great time to do it again. It is time to write your Senators!! Let them know that passing the bill to cut NIH funding just isn't what we need to do! Cutting funding not only hurts celiacs but it hurts anyone with health concerns. Here is the letter that I composed and sent to my senators.

Mr. ____________,

I understand that a bill has been passed in the House of

Representatives and is awaiting a vote in the senate. This bill cuts

the funding to the National Institute of Health.

This cut will decrease the NIH funding level for the first time in a

generation and put in mortal jeporady the research that can lead to

treatments and eventually a cure for Celiac disease. Not only will

this cut affect the work of NIH for this year, but will set back

medical research into Celiac disease for many years to come.

Because the Celiac community relies heavily on research conducted by

NIH, it is critical that you vote against this bill. Because of the

low NIH funding, the Celiac community must demand that the Labor-HHS

appropriations bill be rejected, and a new bill that addresses the

funding needs of NIH be enacted.

I have Celiac disease and the funding that NIH recieves is very

important to me. Please vote NO on this bill. Thank you.

Sincerely,

You can use the direct link to the Celiac Task Force on my support group homepage ( Open Original Shared Link ) to find your senators. It only take a few min. to write. You are more than welcome to use the letter that I used and just insert your name

to save you even more time. Let's get to work folks!!

-Jessica :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kevsmom Contributor

Thank you for making us aware of this issue. It is very important for the Celiac community to notify our senators to let them know how important Celiac research is to us!

Jessica has made it very easy to make our voice heard. To the members of our board, Please take a few minutes to send the letter that she wrote to your senator.

Cindy

Guest nini

I just sent letters to my representatives...

jerseyangel Proficient

Thanks, Jessica--I did read the article and deceided to write after the holidays. It is important to all of us and you've just made it even easier :)

angel-jd1 Community Regular

I hope everyone follows suit and writes. Nobody else is going to do it FOR US. Once the funding is cut, it's gone!! Research declines, and then where do we sit?? If there are no advancements in research we still sit in the dark. Sooooo take the couple of minutes that it takes, use the letter that I have pre-written to speed it up even more and get to writing!! We have to take the inititive ourselves to press for the funding. It worked with the labeling and we can do this too. soooo stop searching the board and get to writing!! :P

-Jessica :rolleyes:

I'm not sure how many of you saw this article. But here it is just incase you hadn't seen it yet. Funding for the National Institute of Health could possibly be cut if we don't get moving!! In order to let people know what we need weHAVE to speak out. Folks, we have done this before, and now is a great time to do it again. It is time to write your Senators!! Let them know that passing the bill to cut NIH funding just isn't what we need to do! Cutting funding not only hurts celiacs but it hurts anyone with health concerns. Here is the letter that I composed and sent to my senators.

You can use the direct link to the Celiac Task Force on my support group homepage ( Open Original Shared Link ) to find your senators. It only take a few min. to write. You are more than welcome to use the letter that I used and just insert your name

to save you even more time. Let's get to work folks!!

-Jessica :rolleyes:

celiac3270 Collaborator

I e-mailed my reps.

tarnalberry Community Regular

I may be the lone holdout, but this isn't a cut *aimed* at celiac disease, this is a cut for the whole of the NIH. Given the budget problems we've got, there's a reason to be cutting back on spending, and I think there are more important things to spend money on than celiac disease research. I'm not saying that it's not important (to me), but in the grand scheme of the nation's priorities, I don't think it's a sufficient reason to scratch and start over on such a major bill as the defense spending bill.

But I do think it's good that people have gotten in contact with their representatives to let them know what they're concerns are.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel-jd1 Community Regular
I may be the lone holdout, but this isn't a cut *aimed* at celiac disease, this is a cut for the whole of the NIH. Given the budget problems we've got, there's a reason to be cutting back on spending, and I think there are more important things to spend money on than celiac disease research. I'm not saying that it's not important (to me), but in the grand scheme of the nation's priorities, I don't think it's a sufficient reason to scratch and start over on such a major bill as the defense spending bill.

But I do think it's good that people have gotten in contact with their representatives to let them know what they're concerns are.

How many cuts are you going to take before you write and show that it IS important to you? We may need to cut spending in places, but you also need to show what is important!! If you just let things pass by then you are saying that it's totally ok by you to cut funding. You have to stand up at some point and say HOLD IT!!

-Jessica :rolleyes:

tarnalberry Community Regular
How many cuts are you going to take before you write and show that it IS important to you? We may need to cut spending in places, but you also need to show what is important!! If you just let things pass by then you are saying that it's totally ok by you to cut funding. You have to stand up at some point and say HOLD IT!!

-Jessica :rolleyes:

It will take as much cutting as would lower it too a point below which I believe research of that priority should be funded at. Yes, I am saying that, to me, it IS ok to cut funding in this area because of the big-picture of economic issues going on in the country. I do not see this, for me, as being the time or place to stand up and say "hold it". ANWR, I would have been willing to do so for, even in the context of the bill it had been reproachably attached to. You also assume that I haven't written in to suggest what is important to me. I can do that without saying "vote yes or no on bill X".

How much national defense spending are you willing to put on hold because of celiac disease research? (I do not say this to be trite, or as a "comeback", but what concerns me is the scope issue here. I could see suggesting that NIH funding be separated from defense allocations, so that they can be more fairly evaluated separately, but the actual breakdown of NIH funding, except at a very high level, isn't covered in this bill at all. It would be more efficient to write to the NIH urging them to allocate the money they are given in ways that support celiac research. That would, of course, mean reducing research somewhere else - it's always a give and take.)

angel-jd1 Community Regular

Sorry you feel that way. It's quite a shame.

-Jessica :rolleyes:

It will take as much cutting as would lower it too a point below which I believe research of that priority should be funded at. Yes, I am saying that, to me, it IS ok to cut funding in this area because of the big-picture of economic issues going on in the country. I do not see this, for me, as being the time or place to stand up and say "hold it". ANWR, I would have been willing to do so for, even in the context of the bill it had been reproachably attached to. You also assume that I haven't written in to suggest what is important to me. I can do that without saying "vote yes or no on bill X".

How much national defense spending are you willing to put on hold because of celiac disease research? (I do not say this to be trite, or as a "comeback", but what concerns me is the scope issue here. I could see suggesting that NIH funding be separated from defense allocations, so that they can be more fairly evaluated separately, but the actual breakdown of NIH funding, except at a very high level, isn't covered in this bill at all. It would be more efficient to write to the NIH urging them to allocate the money they are given in ways that support celiac research. That would, of course, mean reducing research somewhere else - it's always a give and take.)

tarnalberry Community Regular

post edited out - and I should point out I made a mistake in reading and hence in which bill i was referring to NIH funding being a part of. my apologies for the mistake, it was the Labor-HHS bill, not the defense appropriations bill.

Candy Contributor

Hi Again,

I did write my state's senator addressing the cuts at NIH that would affect or hinder research of Celiac disease.But like postee TARNALBERRY says there must be a reason for the cuts and it probably is well thought out, I guess-unless the gov. is deliberately cutting things that are important to people of Northern European descent like those that inherit HLA 2 form of Celiac.

That sounds Kooky but the US Gov absolutely hates to do anything for White people and so does British and German Europe. There is a Mediterranean form of the disease too,but very few Americans have that;It's probably more prevalent whereever those breeds tend to live ,but not here in the US. I read that Italy tests all people born there for Celiac,because it's prevalent there,but I bet they have the Mediterranean version 'cause you have to be North European to have that form of it and most Italians ARE Italian.

Of course I could be making up stuff,but I wouldn't be surprised because I believe the US is against the very people they claim to be proud of ,admire ,and aspire to be. I always thought this gov. and others who act like it didn't deserve a citizen as GOOD as ME. They like to use my name,face,and body as a sign of their superiority but in reality they do nothing for us and hate us without a cause.......well not without a cause,they hate us because we're beautiful and perfect ,so they use us to put on their grand about how great this country is.

Not that N.Euro's couldn't be bad people but that they are deliberately discriminated against by lower minds, in higher places.

angel-jd1 Community Regular

Just thought I would post a response that I recieved from one of my congress people.

-Jessica :rolleyes:

Dear Jessica,

Thank you for contacting me regarding funding for the

National Institutes of Health (NIH). I appreciate hearing from you.

Between 1999 and 2003, Congress doubled funding for the

National Institutes of Health, increasing funding from $13.6 billion

in 1999 to $27.2 billion in 2003. The NIH has responded to

specific homeland security needs since 9/11 by focusing resources

on bio-defense research priorities. On December 14, 2005, the

House passed the conference report making FY06 appropriation

for the Departments of Labor, Health and Human Services, and

Education. On December 30, 2005, this became law. The

conference report provides increased funding for medical research

at NIH by $253 million, bringing total funding to $28.6 billion.

Included in the NIH budget is $100 million for the Global Fund to

Fight AIDS, Tuberculosis, and Malaria, as well as funding to

combat influenza and potential pandemics abroad and at home.

It is important that the NIH budget continues to fund

important life-saving research. Please feel free to contact me again

with comments or concerns on matters that are important to you.

God Bless You,

Jim Ryun

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.