Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kids Tested Negative

nothungry

Recommended Posts

nothungry Contributor
nothungry
Posted

My kids have tested negative for celiac disease. I have celiac disease. I feel as though I should put them on a low gluten diet to lessen the chances of them developing it. Does anyone have experience or thoughts on this? I'd really appreciate any insight. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

my thoughts are since you are the one feeding them (I assume), it might be easier on you to have them be gluten free at home with you. You may even want to make them gluten free all the time... The diet is a very healthy diet and won't hurt them. They've already been tested, so it's not like you are going to skew any test results by putting them on the gluten-free diet... Just my opinion that it would be easier ON YOU to have the entire family gluten free (at home at least) so that YOU don't have to worry about it at home. If you want to let your kids have gluten when they are out and about that is your call... You can choose for them to be on a gluten free diet strictly because they may have a genetic predisposition to developing it later on. Always something to keep an eye on.

Also, just because they tested negative now, doesn't mean that if they continued to consume gluten that they would always test negative. They very easily could develop this later on. You may want to look into the genetic testing...

jerseyangel Proficient
jerseyangel
Posted

Yea--I agree with Nini on this. Having them be gluten-free, at least at home, would be so much easier for you--not to mention safer. (less chance of CC). The diet is healthy for anyone. I'm the only one in my house with Celic, but dinner every night is naturally gluten-free. No one complains (or really notices, for that matter) because it's all good and really not all that different than before. I cook the way I always did, just tweak it as needed. My husband and son are at work all day and that's when they eat things with gluten if they want. It works well for us. Gene testing may be something you want to consider because they could be pre-disposed. Sometimes Celiac isn't triggered until puberty or other event later in life (surgery, pregnancy, illness, etc).

nothungry Contributor
nothungry
Posted
  • Author

I have been on the gluten-free diet for celiac disease for over a year. My kids tested negative twice. They do not eat a lot of gluten foods, mostly in their lunchboxes at school and at friends and relatives homes. I do not know much about genetic testing...do insurance companies cover the cost? I went undiagnosed for 30 years and I would never want my kids to get this if I could possibly prevent it.

Guest nini
Guest nini
Posted

They may have tested negative because they are not getting a lot of gluten in their diet and therefore not enough for antibodies to be present even if they do have celiac.

My daughter is five and while she tested negative for Celiac, I still put her on the diet and she even can tell when she gets "glutened" now... she is a very healthy and active five year old, just a gluten free one.

hez Enthusiast
hez
Posted

I had both of my children tested, both were negative. Since I make dinner that meal is always gluten-free.

However, I have decided not to limit their intake of gluten. Instead I try to point out growing food and non-growing food options. In the hope that they will choose a healthy lifestyle. I have also scaled back the gluten choices they do have.

We opted against gene testing for two reasons. One is cost. The second is that we did not want the information to be used against them in anyway (denied for life insurance or health coverage). These are personal decisions that you must decide on.

Keep in mind that you can have the gene but never get the disease. Plus your children have a one in 10 chance of develping celiac disease (I can't find where I got that number, take it with a grain of salt). So there is a possiblility they will not get it. There is also a chance they will.

In the end you need to do what is best for you and your family.

Hez

kathy1 Contributor
kathy1
Posted

would you be denied life insurance because of celiac disease?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted
would you be denied life insurance because of celiac disease?

That's a good question. I hope not, as celiacs off gluten are as healthy (or healthier) as other people.

hez Enthusiast
hez
Posted

I have not been denied life insurance but that is because I got it prior to diagnosis! I have been denied the cheap life insurance rate because of back pain (that does not kill you). I think they can deny you the cheapest rate with this or any other disease. Keep in mind they do not understand celiac disease.

This was a decision that my husband and I made together regarding gene testing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,697
    • Most Online (within 30 mins)
      7,748
    Nicole Poirier
    Newest Member
    Nicole Poirier
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.