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What Happens When You Get Gluten?


CMCM

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CMCM Rising Star

I'm curious about the reactions you all get if you get glutened. I myself have only been gluten free since Nov. 25, with just a couple of slip-ups (a bunch of those blasted Xmas cookies I made for the family found their way into my stomach ). Anyhow, I'm just coming out of 3 horrible days in which my reaction or whatever it was consisted of horrible stomach pain and aching muscles, especially joints. A bit of nausea too. And slight dizziness one day. One night I couldn't sleep at all, I lay there the whole night awake. Does any of this sound familiar?


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darlindeb25 Collaborator

Very familiar! When I get glutened with wheat, I am sick for a few days, but if I get processed soy or corn, I am sick for a few weeks. Regular gluten gives me diarrhea and once my tummy is empty, it cant go much farther--soy and corn constipate me and the stomach cramps last for days. I have never eaten anything on purpose--the only times I have been glutened were accidental. Once I finally knew why I was so sick, I never had the desire to eat something that I knew would make me ill. I also get hives if I get gluten on my skin. Deb

key Contributor

If I get quite a bit of gluten I get very nauseated. Then follows increased bm's and then constipation. Also I have severe aching in my legs and I am exhausted. Also more irritable unable to handle life as well for a day or so. It isn't fun at all. I would never willingly gluten myself. My tests were borderline for celiac and I didn't have a biopsy, because I had already been gluten free for 5 weeks and didn't want to start eating gluten to make myself sick, but I did do a few tests on myself. I learned though and now I am firmly gluten-free for life.

Sounds very familiar.

Monica

nettiebeads Apprentice
I'm curious about the reactions you all get if you get glutened. I myself have only been gluten free since Nov. 25, with just a couple of slip-ups (a bunch of those blasted Xmas cookies I made for the family found their way into my stomach ). Anyhow, I'm just coming out of 3 horrible days in which my reaction or whatever it was consisted of horrible stomach pain and aching muscles, especially joints. A bit of nausea too. And slight dizziness one day. One night I couldn't sleep at all, I lay there the whole night awake. Does any of this sound familiar?

I've been taking L-glutamine faithfully and it has cut down on my physical reactions immensely (the D and C). But I still get real achey legs and horrible fatigue with some brain fog. The L-glutamine really does help with gi health. It was mentioned quite awhile back by one of the regulars.

Annette

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    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
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      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
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