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What Happens When You Get Gluten?

CMCM

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CMCM Rising Star
CMCM
Posted

I'm curious about the reactions you all get if you get glutened. I myself have only been gluten free since Nov. 25, with just a couple of slip-ups (a bunch of those blasted Xmas cookies I made for the family found their way into my stomach ). Anyhow, I'm just coming out of 3 horrible days in which my reaction or whatever it was consisted of horrible stomach pain and aching muscles, especially joints. A bit of nausea too. And slight dizziness one day. One night I couldn't sleep at all, I lay there the whole night awake. Does any of this sound familiar?

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darlindeb25 Collaborator
darlindeb25
Posted

Very familiar! When I get glutened with wheat, I am sick for a few days, but if I get processed soy or corn, I am sick for a few weeks. Regular gluten gives me diarrhea and once my tummy is empty, it cant go much farther--soy and corn constipate me and the stomach cramps last for days. I have never eaten anything on purpose--the only times I have been glutened were accidental. Once I finally knew why I was so sick, I never had the desire to eat something that I knew would make me ill. I also get hives if I get gluten on my skin. Deb

key Contributor
key
Posted

If I get quite a bit of gluten I get very nauseated. Then follows increased bm's and then constipation. Also I have severe aching in my legs and I am exhausted. Also more irritable unable to handle life as well for a day or so. It isn't fun at all. I would never willingly gluten myself. My tests were borderline for celiac and I didn't have a biopsy, because I had already been gluten free for 5 weeks and didn't want to start eating gluten to make myself sick, but I did do a few tests on myself. I learned though and now I am firmly gluten-free for life.

Sounds very familiar.

Monica

nettiebeads Apprentice
nettiebeads
Posted
I'm curious about the reactions you all get if you get glutened. I myself have only been gluten free since Nov. 25, with just a couple of slip-ups (a bunch of those blasted Xmas cookies I made for the family found their way into my stomach ). Anyhow, I'm just coming out of 3 horrible days in which my reaction or whatever it was consisted of horrible stomach pain and aching muscles, especially joints. A bit of nausea too. And slight dizziness one day. One night I couldn't sleep at all, I lay there the whole night awake. Does any of this sound familiar?

I've been taking L-glutamine faithfully and it has cut down on my physical reactions immensely (the D and C). But I still get real achey legs and horrible fatigue with some brain fog. The L-glutamine really does help with gi health. It was mentioned quite awhile back by one of the regulars.

Annette

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      Gluten related ??

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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      My only proof

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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