Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Knee Pains


danikali

Recommended Posts

danikali Enthusiast

Hi everyone!

Well, when I was eating gluten, I was having HORRIBLE KNEE PAINS ALL DAY LONG. Well, now that I am gluten free, the pain has subsided, A LOT, but not completely. When I sit down for too long (which is what I do at work everyday), they hurt. Not as bad as before, and they don't hurt when I walk anymore, but it's this annoying lingering pain when I'm at work......

I take calcium/magnesium/zinc pills, but may I ask what else is out there specifically for the joints? What are some things that you take that is gluten/casein free? I feel so good these days, it's just these dumb knee pains that are stubborn to go away completely.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice

The women in my family have a history of knee aches. Walking is the best for me, but like you when I'm glutened they are super achey! Usually some ibuprofen works. My mother swears by that glucosinate/chro-something something. But that's also hard on the tummy. Do you do ROM's during the day?

Annette

danikali Enthusiast
The women in my family have a history of knee aches. Walking is the best for me, but like you when I'm glutened they are super achey! Usually some ibuprofen works. My mother swears by that glucosinate/chro-something something. But that's also hard on the tummy. Do you do ROM's during the day?

Annette

Hi Annette,

What is ROM's? I don't know if I was glutened though, that's the thing. My stomach is only bothering me right now because of my "monthly friend" but before that, it was perfect.....plus, I'm only eating safe foods from home, or fruits in a peel from the store. That's why I'm thinking it has to be the citrus fruits. I wasn't eating oranges for a while because I know that acid is not good for my bladder problems, but now that I noticed it doesn't affect my bladder, I'm eating oranges every day, and the knee pains have come back, a lot. SO, that's all. I'm going to stop eating oranges tomorrow. What other fruits are citrus again? Grapes? I hope not, but hey, whatever it takes!

lonewolf Collaborator

Try Glucosamine Sulfate and Chondroitin Sulfate. You can find them all over. You can get them mixed or just Glucosamine by itself. It helps my mom. I have also found, when I had horrible joint pain/arthritis, that Cod Liver Oil and Flax oil are helpful. Get lemon or mint flavored cod liver oil and it's not bad at all.

Liz

danikali Enthusiast
Try Glucosamine Sulfate and Chondroitin Sulfate. You can find them all over. You can get them mixed or just Glucosamine by itself. It helps my mom. I have also found, when I had horrible joint pain/arthritis, that Cod Liver Oil and Flax oil are helpful. Get lemon or mint flavored cod liver oil and it's not bad at all.

Liz

Thanks so much! Are all brands gluten/dairy free?

jerseyangel Proficient

Carlson Lemon Flavored Cod Liver Oil is very good. Not fishy at all. Best to keep it in the fridge.

tarnalberry Community Regular

What I primarily take is a trip to my ortho's office, followed by a trip to the physical therapist. :-P If they're still hurting, I'd urge you to have them evaluated carefully, *including* by a physical therapist. (A PT was the one who caught my *slight* pronation, which the ortho didn't expect to aggrivate my knee problems, but he was willing to try orthotics, and they do indeed help.)

Generally, I use Aleve or Advil, at prescription strengths myself. In the past I've used glucosamine and chondritin, but didn't find it to be terribly effective over the course of the six weeks I took it. Omega-3 supplements did appear to make a bit of a positive difference as well. For the most part, just getting out and walking, or doing yoga, even when they hurt, can be very important. Getting the circulation going a bit more can help flush through the chemicals that are causing inflammation.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
Hi Annette,

What is ROM's?

Sorry, ROM - Range of Motion. You would periodically straighten out your knee, almost hyper extending it while sitting in a chair, and then pull back as far as you can to keep the joints lose.

danikali Enthusiast

Okay, interesting. This is really good information. Yeah, I guess I do ROM even though I never knew what it was. It does help to walk......it doesn't bother me practically at all when I walk.........I just bought some glucosamine yesterday but not I noticed that there is soy in it so I have to go back to the store today......But I hope this works. It was getting a lot better and for some reason, it just came back........

DonnaD Apprentice
Okay, interesting. This is really good information. Yeah, I guess I do ROM even though I never knew what it was. It does help to walk......it doesn't bother me practically at all when I walk.........I just bought some glucosamine yesterday but not I noticed that there is soy in it so I have to go back to the store today......But I hope this works. It was getting a lot better and for some reason, it just came back........

My knees make a awful 'crunching' noise when I go upstairs, and I find climbing stairs quite tiring, my legs feel weak above the knee. I originally thought it was because of weight gain and moving to an office without stairs, but then I was dx with fibro. My kness were the least of my problems at that point!

They are much better now that I use a 'cross trainer' ski type machine daily and the treadmill. My consultant (pain/fibro) said it was hydrogen bubbles in the joints but am not convinced as my sister had similar and now has osteo arthritis in hers. :unsure: I tried fish oil, glucosamine etc but didn't find it helped.

Does this sound similar to any of you here?? what do you do/take for it?? and WHAT on earth is that noise!

On a more positive note: Today is day 2 of my detox/ellimination diet and I had enough energy today to have a big clear out of my desk area/christmas decorations etc. I slept better last night too, and my sinus seems better today also. :)

lonewolf Collaborator
Thanks so much! Are all brands gluten/dairy free?

I use Carlson too - only fish oil, no gluten or dairy. I can't imagine any of them having any gluten - the only ingredients are the oil and mint or lemon flavoring.

Liz

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,139
    • Most Online (within 30 mins)
      7,748

    kathleen apodaca
    Newest Member
    kathleen apodaca
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.