Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pe Tubes?!?

VydorScope

Recommended Posts

VydorScope Proficient
VydorScope
Posted

Welp our 2 1/2 yr old son(with celiac disease) has failed his FORTH successive hearing test, completely failed, total 0. I know he can hear cause he responds sounds, but this could be a part of why he is not talking.

Is there any gluten/celiac disease angles I need worry about here? They said they will put him out with gas and they have noted on his records about eggs and gluten.

Any info on this stuff would be a great help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Becky6 Enthusiast
Becky6
Posted

I know nothing about that stuff. But do know that yes that is probably why he is not talking. Very common in kids with ear problems. Have you tried any signs with him? That can help a ton and get him to communicate better. I used them with my daughter since I am fluent in ASL and thought it would help her communicate earlier. It did! And she talked early as well, it really helps some kids.

VydorScope Proficient
VydorScope
Posted
  • Author
I know nothing about that stuff. But do know that yes that is probably why he is not talking. Very common in kids with ear problems. Have you tried any signs with him? That can help a ton and get him to communicate better. I used them with my daughter since I am fluent in ASL and thought it would help her communicate earlier. It did! And she talked early as well, it really helps some kids.

Are you fluent in ASL? Or Signed English or Pigeon English?

I currently in a Signed Eglish class and started with an ASL tutor in addtion. Most deaf around here use a mixture of all three. Almost no pure ASL is used around these parts.

But yes, he can speak in sign, well his on version of ASL, more of TSL (Tymber Sign Language) :D. Drink is overn up by the check, and the volience of it is a clear indication of desire :D. "please" is two handed, and sideways LOL. "I love you" looke more like a 3... but hey it works! :D

Becky6 Enthusiast
Becky6
Posted

Yep fluent in ASL. I also took most of an interpreting program but have these stupid cysts in my wrist so I can't interpret professionally. Hurts too much! I have seen it all. Signed English and modified signs! I work with children and adults with special needs so I have seen many different types over the years. Glad that he is using sign! That is great! And great that you are learning it as well!

VydorScope Proficient
VydorScope
Posted
  • Author
Yep fluent in ASL. I also took most of an interpreting program but have these stupid cysts in my wrist so I can't interpret professionally. Hurts too much! I have seen it all. Signed English and modified signs! I work with children and adults with special needs so I have seen many different types over the years. Glad that he is using sign! That is great! And great that you are learning it as well!

I may one day get in to a professional interpreting program but for now I am getting free lessons via local churches. I started the lessons around 2 years ago, but learned about all I can in the one class, and just started the tutor last week.

nettiebeads Apprentice
nettiebeads
Posted

I had major surgery and a couple of minor out-patient procedures after developing celiac. The gas isn't a problem with being put under. Is it an out-patient procedure? I'd just be very careful if he's offered any food by someone at the facility. Even after clearly stating CELIAC - NO GLUTEN on my menu at the hospital, I was still given crackers (individually wrapped, thank goodness) and such.

I did a semester of ASL - I thought it was neat - I would like to relearn it and go farther with it some time.

VydorScope Proficient
VydorScope
Posted
  • Author
I had major surgery and a couple of minor out-patient procedures after developing celiac. The gas isn't a problem with being put under. Is it an out-patient procedure? I'd just be very careful if he's offered any food by someone at the facility. Even after clearly stating CELIAC - NO GLUTEN on my menu at the hospital, I was still given crackers (individually wrapped, thank goodness) and such.

I did a semester of ASL - I thought it was neat - I would like to relearn it and go farther with it some time.

Yea its outpatient. THey calim the procedure only takes 5 mins.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted

Is he having tubes put into his ears? The procedure does only take 5 minutes, but they'll put him out and will want him to wake up a little before he goes home. My daughter had some cereal before she left, so just bring some crackers or a light snack (similar to toast or crackers) and some juice you know he'll like.

VydorScope Proficient
VydorScope
Posted
  • Author
Is he having tubes put into his ears? The procedure does only take 5 minutes, but they'll put him out and will want him to wake up a little before he goes home. My daughter had some cereal before she left, so just bring some crackers or a light snack (similar to toast or crackers) and some juice you know he'll like.

Yes PE Tubes in his ears.

We are used to travling with large quanties of food, so that wont be a problem.

How long was her recovery? When did she notice a postive change?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    2. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    3. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    4. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748
    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.