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What Do You Do...

Moongirl

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Moongirl Community Regular
Moongirl
Posted

Anyone have suggestions on when they do when they get glutened? I dont think ive had one yet, but its only been a little over a month, so im going to go out on a limb and say its going to happen, since i am still in the experimenting stage.... ;)

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carriecraig Enthusiast
carriecraig
Posted

I keep a lot of Immodium, Rolaids and peppermint tea on hand. Not sure how much these things help, but my symptoms seem to go away in about 2 days.

jerseyangel Proficient
jerseyangel
Posted

I generally don't use anything--except if I have to go somewhere, I'll use Imodium. I just drink a lot of water and eat according to how I feel.

Moongirl Community Regular
Moongirl
Posted
  • Author
I keep a lot of Immodium, Rolaids and peppermint tea on hand. Not sure how much these things help, but my symptoms seem to go away in about 2 days.

so rolaids are ok? ive been so confused reading about all the antiacid stuff!

Yah I made fresh mint tea last night, seemed to be soothing....

carriecraig Enthusiast
carriecraig
Posted

All Rolaids except the softchews (darn) are ok.

mookie03 Contributor
mookie03
Posted
All Rolaids except the softchews (darn) are ok.

I'm not sure about that-- i called them a few months ago about the soft chews and the other new kind (i cant remember the name right now but they are chewable and the person i spoke to said that neither one was gluten-free-- im not sure the person i spoke to was brilliant, but ive been avoiding that kind too just in case.

my advice? dont take anything at all, let it go through your system, but drink a LOT of water and eat something if your hungry. Thats what i do, but then again, i am also scared of antacids after years of being glutened by tums and rolaids!

jkmunchkin Rising Star
jkmunchkin
Posted

I drink Pepto Bismol, use one of those little pillows you heat up in the microwave and if I have it handy drink some peppermint tea. I actually find walking around helps to, but it's usually the last thing I want to do.

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rmmadden Contributor
rmmadden
Posted

I'm a "Pepto Person," too. I only take it when I'm having a really bad day and then I just want to sleep.

Hope this helps......Best of Luck!

Cleveland Bob B)

Moongirl Community Regular
Moongirl
Posted
  • Author
I'm a "Pepto Person," too. I only take it when I'm having a really bad day and then I just want to sleep.

Hope this helps......Best of Luck!

Cleveland Bob B)

thanks everyone, can u tell i was a girl scout, always be prepared! ;)

thomas3000 Rookie
thomas3000
Posted

Alka-seltzer gold works best!!

Jen H Contributor
Jen H
Posted

Hey Moongirl,

I noticed you are from Boston. I live on Cape Cod. Have you checked into the Healthy Villi support group?

I try to lay low and eat comfort foods when I get glutened. I drink flat ginger ale and water and I eat things in the BRAT diet (bananas, rice, applesauce, tea/toast).

Moongirl Community Regular
Moongirl
Posted
  • Author

I havent gone to the support group yet, my mom has though, i was just dx 1 month ago, but they have a meeting coming up in a few weeks i will go too...do you go? do you find them helpful?

thanks

Canadian Karen Community Regular
Canadian Karen
Posted

Hi Moongirl,

I'm also a Pepto person. Immodium does squat for me due to the collagenous colitis. For me, since I NEVER get rid of the diarrhea even when totally gluten-free, my concern is more for pain management.

I have my heating pad on low, sit on my bed crosslegged, and rock forward and backward. I close my eyes, breath in through the nose and out of the mouth, and try to get myself into kind of a trance. It really does help! And I'm not some kind of Hari Krishna wacko, honest!!! ;)

Also, I stick to the only food that does not hurt when I am glutened. Potatoes. Cooked any way, doesn't matter - as long as it is potatoes, it won't hurt me.....

Karen

Jen H Contributor
Jen H
Posted

Hi Moongirl,

I haven't been to a Healthy Villi meeting yet, but I may go to the one on January 29th @ Mass Bay College. There is a support group on the Cape, but the Healthy Villi seems more organized and geared toward "newbies" like myself.

Moongirl Community Regular
Moongirl
Posted
  • Author

oh thats the one that i am going to go too.... :) even my GI doctor recommended that i go, he said they are very good.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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