Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

People With Joint/muscle Pain!


Lovinglife

Recommended Posts

Lovinglife Rookie

Hello, I'm sure many of you are getting used to seeing my name associated with joint/muscle pain, stiffness and soreness :P . Hopefully that will soon be a memory.

QUESTION: Has anyone had joint pains and my other symptoms as well as a slightly abnormal Rheumatoid Factor and THEN became okay? As in symptoms are gone and never came back? PLEASE let me know.

Here's my story:

Apparently I have a gluten intolerance or Celiac Disease (this is suddenly in question, but that's another story) for over 4 years. I haven't been eating correctly out of ignorance and/or necessity. Fast forward, for the past almost two months I have had mild to severe joint/muscle pain, stiffness and soreness. I have been gluten and lectin free througout that time. Lately I have actually been experiencing normal hours, and almost full days without a high level of symptoms .

In Dec I got back that my Rheumatoid Factor was less than 20 (normal).

Now, having taken the test again in early January, I got back that it was 21.7, which is a weak positive.

God Bless.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator
Hello, I'm sure many of you are getting used to seeing my name associated with joint/muscle pain, stiffness and soreness :P . Hopefully that will soon be a memory.

QUESTION: Has anyone had joint pains and my other symptoms as well as a slightly abnormal Rheumatoid Factor and THEN became okay? As in symptoms are gone and never came back? PLEASE let me know.

Here's my story:

Apparently I have a gluten intolerance or Celiac Disease (this is suddenly in question, but that's another story) for over 4 years. I haven't been eating correctly out of ignorance and/or necessity. Fast forward, for the past almost two months I have had mild to severe joint/muscle pain, stiffness and soreness. I have been gluten and lectin free througout that time. Lately I have actually been experiencing normal hours, and almost full days without a high level of symptoms .

In Dec I got back that my Rheumatoid Factor was less than 20 (normal).

Now, having taken the test again in early January, I got back that it was 21.7, which is a weak positive.

God Bless.

Benzodiazapines can cause joint pain. It's not widely recognized to be a source of joint pain, but it is. For me the symptoms lasted months after only 14 pills.

key Contributor

My legs especially ached alot in the few months before finding out I had celiac. Then went away for months. THen I started getting gluttened alot in a two month period by accident and it came back. Now that I haven't had gluten. THey feel fine again. If I get gluten, then the pain in my legs comes back. It must be some kind of inflammory response for me I guess. I did go to the doctor, but started feeling better shortly after, so I didn't have anymore testing done. I think for me it is gluten and I am fine otherwise.

MOnica

lonewolf Collaborator
In Dec I got back that my Rheumatoid Factor was less than 20 (normal).

Now, having taken the test again in early January, I got back that it was 21.7, which is a weak positive.

God Bless.

Do you mean Rheumatoid Factor or Sed Rate? I thought that the RF was either positive or negative, but the sed rate has a scale.

Liz

Silver-naki Rookie

I think for me it is gluten and I am fine otherwise.

MOnica

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,974
    • Most Online (within 30 mins)
      7,748

    Karl Harik
    Newest Member
    Karl Harik
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Waterdance
      It is addictive. The dopamine hit I get from a sandwich after being gluten free for a while is insane and I immediately crave more. Maybe if I think of it more like an addiction I'll be able to beat it in the future. 
    • Wheatwacked
      Undiagnosed Celiac Disease was your root cause.  As you heal and adress nutritional deficiencies you'll see lifetime symptoms disapear, some you don't even realize you have.     Until 1951 no one knew the cause.  Around 1900 it was also called "Infantilism", you outgrew it or died.  Dr Hass around 1920 was the first to come up with a treatment with close to 100% survival.  At 63 I followed his diet for a while and it helped me past the early stage of recovery.  Even then it was only considered a childhood disease, eventually the child outgrew it.  Once outgrown the child was reintroduced to wheat.  After that any symptoms that arose were attributed to whatever was popular, gall bladder, allergy, endometriosis, etc.  Often the final diagnosis is "we do not know the cause, it is just normal for some people, but we have medications that will treat your symptoms."   I was bloated, and always colicky.  When my son was born in 1976, my mother commented "You got what you gave."  I pointed out to my wife that he looked like a Biafra baby from the Biafra famine in 1970.  One of the first successful sales of modern wheat was to replace the rice the Biafran Aid Society supplied.  After searching the state where we lived (pop. 6 million) we found the one child gastroenterologist familiar with Celiac.  He only had 13 other children dianosed with the disease under his care and after several endoscopies my son was diagnosed, put on GFD and immediately thrived.  The doctor also suggested my wife and I also do gluten free.  We declined, not having any gastro problems.  That remains my only regret in my life. THE VALUE OF THE BANANA IN THE TREATMENT OF CELIAC DISEASE  Dr Hass' 1924 puplication with diet. There are over 300 symptoms related to celiac disease I believe that if you have the genes, you have Celiac Disease, but your immune system is strong enough to keep it subdued, or your symptoms are misdiagnosed as something not wheat.  Until something happens to weaken the immune system, and symptoms, often misdiagnosed and wrongly treated, until eventually you die, never knowing or you get lucky and end up eating gluten free.  To me it explains the late onset of acute symptoms, many are "just normal for you". Ever wonder why people get so angry if you suggest they may have Celiac Disease.  Wheat is a cultural and economic staple of our lives.  And it is addictive, it numbs our body.  Suddenly, gluten free, all the other irritants are no longer suppressed.  
    • trents
      I don't think we can say that just one thing, whether vitamin D deficiency or emotional trauma, or a viral infection, or what ever is always what triggers the onset of celiac disease. We do know there is a genetic component to it and there is increasing evidence that factors creating gut dysbiosis (such as overuse of antibiotics and preservatives and environmental toxins) are major players. Hybridizing of heirloom wheat strains to increase the gluten content by multiples may also be a factor.
    • trents
      Thanks for the follow-up correction. Yes, so not 10x normal and the biopsy is therefore totally appropriate to rule out a false positive or the unlikely but still possible situation of the elevated lab test number being caused by something besides celiac disease. 
    • Waterdance
      Thanks. I believe I can trace my gluten and milk allergies to specific traumas in my life. I've had some quite severe traumas over my lifetime. Mostly in my history I was so out of sorts surviving that diagnosing gluten sensitivity/allergy/celiac was just not on the table for such a survival mode existence. Vitamin D makes sense too. Now I take very good care of myself, I have a rock solid stability and I do take 1,500 IU of D daily. It's more obvious to me now what's causing problems and so most of the time I only eat protein and vegetables. I cheat sometimes. I end up paying for it though. 
×
×
  • Create New...