Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerence And Thyroid Problems


tiffjake

Recommended Posts

beelzebubble Contributor
Have you done a stool test for parasitic, bacterial, or fungal infections? I suggest you do so and i'll refer you to a doc in your area if you wish. What about dairy and soy products? Are you still using those? Soy can mess up the thyroid as well. It has been scientifically proven that if you are gluten intolerant you most certainly have infections. (Giardia, cryptosporidium, c. difficile, blastocystis hominis, h. pylori, etc..) It's very common in people with celiac, so i would suggest you get tested for these to rule them out..

i'd definitely be interested in talking to someone about a more holistic approach to my health. so far i've been almost completely on my own. if you have any suggestions about where to go, i'd love to hear them.

thanks,

bubble


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DonnaD Apprentice
Soy can mess up the thyroid

Hi Thomas

I use a lot of soy milk, yoghurt etc and have been cutting it out this week

I bought Julia Ross 'the Mood Cure', as you reccomended in my Noisy Knee post. I have been reading the section on thyroid problems and realised that I have lots of the symptoms (especially cold hands and feet). Fibromyalgia also has many similar ones, brain fog, lack of concentration, weight gain etc. So I decided to check what my TSH level was on my tests last month. The doctor had said it was OK.

They faxed it through to me Well, its 2.96mu/L - Julia Ross quotes studies that say that in symptomatic people especailly woman over 40 that is too high.

The reference range is0 .3-3.0 as 'normal' but symptoms go when TSH is bought down to 1.5.- 2.0 indicating that the range is incorrect. I found the following and thought it might be of interest to people here:

Open Original Shared Link (I cut it a bit)

Derry: The consensus of thyroidologists decided in 1973 that the TSH was the blood test they had been looking for all through the years. This was about two years after I started practice. Having been taught how to diagnose hypothyroid conditions clinically I was in a position to watch to see what the relation of the TSH was to the onset of hypothyroidism. What I found was many people would develop classic signs and symptoms of hypothyroidism but the TSH was ever so slow to become abnormal, rise and confirm the clinical diagnosis. Sometimes it never did. Finally I began treat patients with thyroid in the normal manner I was taught. I could not see why I had to wait for the TSH to rise for me to be able to treat them.

If you remember it was a long time before the medical profession admitted that there were two new diseases to appear in the world that were not there before. Chronic fatigue and fibromyalgia were non-existent before 1980. This is seven years after the 1973 consensus meeting. So where did these two new diseases come from? The symptoms and signs of chronic fatigue and fibromyalgia were described in the literature in the 1930's as one way that low thyroid could be expressed. Treated early it was easily fixed with thyroid in adequate doses. But even then the clinicians had noticed that if a patient has low thyroid (chronic fatigue and fibromyalgia) for too long then it became more difficult to reverse all signs and symptoms regardless of what they were.

Mary Shomon: If, as Dr. Weetman suggests, the laboratory's reference range for "normal" TSH includes people who are in the process of developing hypothyroidism, do you feel that the reference range itself should be recalculated?

This all means even if the chronic fatigue patient does have an abnormal TSH the treatment will be inadequate to make them well again. The clinicians of the past (before the TSH) were astute and very observant and were able to diagnose and treat hypothyroidism correctly without the TSH for 80 years-- why do we need it now? They would be aghast at the total missing of the diagnosis of chronic fatigue and fibromyalgia.

Mary Shomon: You indicated that you feel chronic fatigue and fibromyalgia are both hypothyroid conditions. There are some physicians who feel that these two conditions are manifestation of difficult to diagnose hypothyroidism, and yet other studies claim there is no relationship. Can you explain why you feel there is a connection among these conditions?

David Derry: For many years the literature (before the TSH) supported the fact that if your symptoms responded to thyroid hormone you were low thyroid but especially if when you took the person off the thyroid and their symptoms returned. My own patients who develop chronic fatigue or fibromyalgia I treat them with thyroid and all --and I mean all-- of their symptoms disappear. If I stop the thyroid or if they stop it for some reason all the symptoms start to slowly come back over the following months. You might ask do I do thyroid function tests? The answer is yes if for no other reason that I am curious to know what they look like in the face of the patient's obvious clinical diagnosis. The other patients who come to me from outside my practice respond roughly in proportion to how long they have had it. But I have had lots of pleasant surprises of people badly disabled by fibromyalgia or chronic fatigue for six years or more who slowly over 6 months to a year their symptoms completely disappear. It is of course a delight to see this happen.

I would be interested to know if anyone has similar TSH levels to me and what symptoms you have? I have a doctors appointment on thursday (I want to be sent for knee x-rays) but I think I should also look into thyroid problems?

Donna

--------------------------------------------------------------------------------

sjc Newbie
Well I have had my thyroid scan and ultrasound this week and now I am just waiting for the results. When the tech was doing the untrasound I felt like I was choaking (sp?). I didn't realize how tender my neck was! Guess my thyroid is enlarged after all. For those who have had to have the treatment for Hashimoto's (sp? again) what was it like? I am worried. I am starting a new job and going back to college. I am worried that something will have to be put on hold. What is difficult? Time consuming? I don't want to sould like I don't care about my health, it is just bad timing for something else to be going wrong!!! LOL.

I have Hashimoto Hypothyroidism, Narcolepsy, Cataply, Restless Leg Syndrome, anemia and arthritis.

My Dr. told me some of these things can be related. I've been told it is genetic but I am not aware of any other family members with the things I have with exception of arthritis.

DonnaD Apprentice
I have Hashimoto Hypothyroidism, Narcolepsy, Cataply, Restless Leg Syndrome, anemia and arthritis.

My Dr. told me some of these things can be related. I've been told it is genetic but I am not aware of any other family members with the things I have with exception of arthritis.

Lots of my Dad's family are very overweight except one tiny auntie. My family on both sides seem to be riddled with auto immune illness, many never diagnosed, I think.

ms-sillyak-screwed Enthusiast

chubbiegirl -- I read your blogg. Open Original Shared Link

Have your thyroid checked. It could be the reason you can't loose weight, hair loss and sleep problems etc.

Susan sspitzer5 -- Is right once your thyroid is messed up there is no going back. I found that to be true for me. I was GLUTEN & DAIRY FREE for 4-years. At that time I ate night shade veggies and lots and lots of SOY, a big NO NO. I didn't know that at the time. Since I had RAI radiation on my thyroid. I haven't gottten worse, but I am NO BETTER then I was before. No I can't east night shade and soy. SOY makes my hair fall out in a big way, the doc said it is my thyroid.

Oh, and S-T-R-E-S-S is the worst thing of all. The biggest challange I have is living stress free to stay well.

I fear my life on a feeding tube. Open Original Shared Link I have a story I will someday turn into a book. My dear beloved Auntie was handicaped (I havad Power of Attorney)and without my consent the nursinghome doc and hospital place a feeding tube in her and pumped her fill with dairy and gluten until it became unbearable for her and I. All I can say is -- Hospice has angels...

  • 4 months later...
Steve798 Newbie
I have hypothyroidism too, but found out that I don't have either of the main genes for Celiac. I'm most definitely gluten intolerant though, so there's a connection somewhere. My mother and both sisters are also on thyroid meds but none of them are off gluten.

Hi,

I'm in the same boat as you. I recently was diagnosed with hypothyroidism, and as well had the blood test and small intestine sample test for celiac. Well, both the blood and intestine sample came back negative, but from my perspective I definitely have an intollerance to certain types of food, and if gluten is removed from my daily diet, my life improves a heck of a lot more.

Steve

2kids4me Contributor

Ok, too tired to seach this on my own. Can you guys tell me the difference between

Hashimoto's (sp?

Graves Disease

thyroiditis

goiter

See this site for definition of this and many more endocrine terms:Open Original Shared Link

Hashimotos is an inflammtion of the thyroid gland caused by the immune systems attacking it - it sends lymphocytes in to attack - since the process takes months/years to complete - affected individuals may experience both hyper and hypo symptoms

Graves Disease- Hyperthyroidism caused by an overactive gland (which is usually enlarged -aka: goiter)

Thyroiditis - inflammation of the thyroid gland

Goiter - Enlargement of the thyroid gland for any reason.....can be called diffuse goiter if the swelling is smooth, nodular goiter is one with nodules

and just in case you thought that was all - there is something called "euthyroid sick syndrome" where thyroid test will show low levels when a person is sick with a lengthy illness, but there is nothing wrong with the gland.This is why most doctors hesitate to diagnose hypothyroidism or will want to re-do tests once the person is over the illness.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.