Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerence And Thyroid Problems


tiffjake

Recommended Posts

beelzebubble Contributor
Have you done a stool test for parasitic, bacterial, or fungal infections? I suggest you do so and i'll refer you to a doc in your area if you wish. What about dairy and soy products? Are you still using those? Soy can mess up the thyroid as well. It has been scientifically proven that if you are gluten intolerant you most certainly have infections. (Giardia, cryptosporidium, c. difficile, blastocystis hominis, h. pylori, etc..) It's very common in people with celiac, so i would suggest you get tested for these to rule them out..

i'd definitely be interested in talking to someone about a more holistic approach to my health. so far i've been almost completely on my own. if you have any suggestions about where to go, i'd love to hear them.

thanks,

bubble


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DonnaD Apprentice
Soy can mess up the thyroid

Hi Thomas

I use a lot of soy milk, yoghurt etc and have been cutting it out this week

I bought Julia Ross 'the Mood Cure', as you reccomended in my Noisy Knee post. I have been reading the section on thyroid problems and realised that I have lots of the symptoms (especially cold hands and feet). Fibromyalgia also has many similar ones, brain fog, lack of concentration, weight gain etc. So I decided to check what my TSH level was on my tests last month. The doctor had said it was OK.

They faxed it through to me Well, its 2.96mu/L - Julia Ross quotes studies that say that in symptomatic people especailly woman over 40 that is too high.

The reference range is0 .3-3.0 as 'normal' but symptoms go when TSH is bought down to 1.5.- 2.0 indicating that the range is incorrect. I found the following and thought it might be of interest to people here:

Open Original Shared Link (I cut it a bit)

Derry: The consensus of thyroidologists decided in 1973 that the TSH was the blood test they had been looking for all through the years. This was about two years after I started practice. Having been taught how to diagnose hypothyroid conditions clinically I was in a position to watch to see what the relation of the TSH was to the onset of hypothyroidism. What I found was many people would develop classic signs and symptoms of hypothyroidism but the TSH was ever so slow to become abnormal, rise and confirm the clinical diagnosis. Sometimes it never did. Finally I began treat patients with thyroid in the normal manner I was taught. I could not see why I had to wait for the TSH to rise for me to be able to treat them.

If you remember it was a long time before the medical profession admitted that there were two new diseases to appear in the world that were not there before. Chronic fatigue and fibromyalgia were non-existent before 1980. This is seven years after the 1973 consensus meeting. So where did these two new diseases come from? The symptoms and signs of chronic fatigue and fibromyalgia were described in the literature in the 1930's as one way that low thyroid could be expressed. Treated early it was easily fixed with thyroid in adequate doses. But even then the clinicians had noticed that if a patient has low thyroid (chronic fatigue and fibromyalgia) for too long then it became more difficult to reverse all signs and symptoms regardless of what they were.

Mary Shomon: If, as Dr. Weetman suggests, the laboratory's reference range for "normal" TSH includes people who are in the process of developing hypothyroidism, do you feel that the reference range itself should be recalculated?

This all means even if the chronic fatigue patient does have an abnormal TSH the treatment will be inadequate to make them well again. The clinicians of the past (before the TSH) were astute and very observant and were able to diagnose and treat hypothyroidism correctly without the TSH for 80 years-- why do we need it now? They would be aghast at the total missing of the diagnosis of chronic fatigue and fibromyalgia.

Mary Shomon: You indicated that you feel chronic fatigue and fibromyalgia are both hypothyroid conditions. There are some physicians who feel that these two conditions are manifestation of difficult to diagnose hypothyroidism, and yet other studies claim there is no relationship. Can you explain why you feel there is a connection among these conditions?

David Derry: For many years the literature (before the TSH) supported the fact that if your symptoms responded to thyroid hormone you were low thyroid but especially if when you took the person off the thyroid and their symptoms returned. My own patients who develop chronic fatigue or fibromyalgia I treat them with thyroid and all --and I mean all-- of their symptoms disappear. If I stop the thyroid or if they stop it for some reason all the symptoms start to slowly come back over the following months. You might ask do I do thyroid function tests? The answer is yes if for no other reason that I am curious to know what they look like in the face of the patient's obvious clinical diagnosis. The other patients who come to me from outside my practice respond roughly in proportion to how long they have had it. But I have had lots of pleasant surprises of people badly disabled by fibromyalgia or chronic fatigue for six years or more who slowly over 6 months to a year their symptoms completely disappear. It is of course a delight to see this happen.

I would be interested to know if anyone has similar TSH levels to me and what symptoms you have? I have a doctors appointment on thursday (I want to be sent for knee x-rays) but I think I should also look into thyroid problems?

Donna

--------------------------------------------------------------------------------

sjc Newbie
Well I have had my thyroid scan and ultrasound this week and now I am just waiting for the results. When the tech was doing the untrasound I felt like I was choaking (sp?). I didn't realize how tender my neck was! Guess my thyroid is enlarged after all. For those who have had to have the treatment for Hashimoto's (sp? again) what was it like? I am worried. I am starting a new job and going back to college. I am worried that something will have to be put on hold. What is difficult? Time consuming? I don't want to sould like I don't care about my health, it is just bad timing for something else to be going wrong!!! LOL.

I have Hashimoto Hypothyroidism, Narcolepsy, Cataply, Restless Leg Syndrome, anemia and arthritis.

My Dr. told me some of these things can be related. I've been told it is genetic but I am not aware of any other family members with the things I have with exception of arthritis.

DonnaD Apprentice
I have Hashimoto Hypothyroidism, Narcolepsy, Cataply, Restless Leg Syndrome, anemia and arthritis.

My Dr. told me some of these things can be related. I've been told it is genetic but I am not aware of any other family members with the things I have with exception of arthritis.

Lots of my Dad's family are very overweight except one tiny auntie. My family on both sides seem to be riddled with auto immune illness, many never diagnosed, I think.

ms-sillyak-screwed Enthusiast

chubbiegirl -- I read your blogg. Open Original Shared Link

Have your thyroid checked. It could be the reason you can't loose weight, hair loss and sleep problems etc.

Susan sspitzer5 -- Is right once your thyroid is messed up there is no going back. I found that to be true for me. I was GLUTEN & DAIRY FREE for 4-years. At that time I ate night shade veggies and lots and lots of SOY, a big NO NO. I didn't know that at the time. Since I had RAI radiation on my thyroid. I haven't gottten worse, but I am NO BETTER then I was before. No I can't east night shade and soy. SOY makes my hair fall out in a big way, the doc said it is my thyroid.

Oh, and S-T-R-E-S-S is the worst thing of all. The biggest challange I have is living stress free to stay well.

I fear my life on a feeding tube. Open Original Shared Link I have a story I will someday turn into a book. My dear beloved Auntie was handicaped (I havad Power of Attorney)and without my consent the nursinghome doc and hospital place a feeding tube in her and pumped her fill with dairy and gluten until it became unbearable for her and I. All I can say is -- Hospice has angels...

  • 4 months later...
Steve798 Newbie
I have hypothyroidism too, but found out that I don't have either of the main genes for Celiac. I'm most definitely gluten intolerant though, so there's a connection somewhere. My mother and both sisters are also on thyroid meds but none of them are off gluten.

Hi,

I'm in the same boat as you. I recently was diagnosed with hypothyroidism, and as well had the blood test and small intestine sample test for celiac. Well, both the blood and intestine sample came back negative, but from my perspective I definitely have an intollerance to certain types of food, and if gluten is removed from my daily diet, my life improves a heck of a lot more.

Steve

2kids4me Contributor

Ok, too tired to seach this on my own. Can you guys tell me the difference between

Hashimoto's (sp?

Graves Disease

thyroiditis

goiter

See this site for definition of this and many more endocrine terms:Open Original Shared Link

Hashimotos is an inflammtion of the thyroid gland caused by the immune systems attacking it - it sends lymphocytes in to attack - since the process takes months/years to complete - affected individuals may experience both hyper and hypo symptoms

Graves Disease- Hyperthyroidism caused by an overactive gland (which is usually enlarged -aka: goiter)

Thyroiditis - inflammation of the thyroid gland

Goiter - Enlargement of the thyroid gland for any reason.....can be called diffuse goiter if the swelling is smooth, nodular goiter is one with nodules

and just in case you thought that was all - there is something called "euthyroid sick syndrome" where thyroid test will show low levels when a person is sick with a lengthy illness, but there is nothing wrong with the gland.This is why most doctors hesitate to diagnose hypothyroidism or will want to re-do tests once the person is over the illness.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.