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My Doctor Dxed Celiac From A Ttg Antibody Test..

Amanda70

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Amanda70 Newbie
Amanda70
Posted

My doctor says I have celiac. She tested 3 different antibodies. I can't remember 2 of them but they were low..like .7 and 1.1 but my TTG antibody was 4.1. The lab says anything under 6 is normal but she says 4.1 is not normal because it's too close to 6. she says my level should be 1 or 2. Does the really indicate celiac? Is there another test I can ask for??

thanks

Amanda

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Rachel--24 Collaborator
Rachel--24
Posted

Are you currently eating gluten and do you have symptoms? Ultimately the most definitive test is your bodies own response to removal of gluten from the diet...assuming you have symptoms of course. You can ask for a biopsy if you're still eating gluten but even if the results of that are negative you could still have Celiac with minimal or no damage yet. The damage can also be missed in a biopsy so it doesnt rule celiac out 100% if its negative.

nettiebeads Apprentice
nettiebeads
Posted
My doctor says I have celiac. She tested 3 different antibodies. I can't remember 2 of them but they were low..like .7 and 1.1 but my TTG antibody was 4.1. The lab says anything under 6 is normal but she says 4.1 is not normal because it's too close to 6. she says my level should be 1 or 2. Does the really indicate celiac? Is there another test I can ask for??

thanks

Amanda

I agree with Rachel. We need more info - how long sick, symptoms, why did you go for the testing in the first place? My dr thinks that most of the testing that comes back negative is because the tests themselves are not as sensitive as they probably should be. Let your body be your guide - have you tried the gluten-free diet?

Let us know.

Annette

Amanda70 Newbie
Amanda70
Posted
  • Author

My symptoms are..bloating, alternating diarrhea and constipation with excess gas, fatigue, dry skin, and I had food allergy testing done and was positive for wheat, rye, sesame, yeast and something else. My doctor says all of those things are gluten foods so she did more testing. I'm starting the gluten diet today. She swears if I will try this I will lose weight and lose some of the fluid/swelling that I have.

I also tested positive for candida.

What do you think??

Guest nini
Guest nini
Posted

even a "slight" positive is still a positive

your symptoms def. sound like Celiac, sounds like a lot of my symptoms before my dx. I'm now almost 3 years into this diet and I've lost 100 pounds... so good luck with it. Keep us posted.

Keep in mind once you start the diet that you have to be 100% gluten free, it will take you some time to figure out all the "hidden" glutens but this board is an excellent resource to help you with that. Also, you may start to feel "better" pretty quickly but don't expect to be all better right away, the average time frame for most Celiac patients before they feel truly "human" again is about 2 years, give or take. At three years I'm still having fatigue and joint pain, but it's getting better. Good luck

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