Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Much Gluten To Consume Beffore Testing


TestyTommy

Recommended Posts

TestyTommy Rookie

I'm a newbie, and I've been going through the message board archives to learn more about celiac. One of the things I've read in several places is that you are supposed to eat about 3 slices of bread for 3 months in order for the celiac test to be accurate.

Does anyone know the origin of the "3 slices for 3 months" rule of thumb?

I ask because on the celiac.com FAQ, Dr. Horvath answers the question "How long must gluten be taken for the serological tests to be meaningful?" with:

"Our recommendation is to ingest at least 0.3 g/kg/day of gluten for two months prior to the serological tests. However, if somebody experiences symptoms during the gluten challenge we recommend to perform serological tests earlier.

The protein content of wheat flour is between 7-15% and approximately 90% of the protein content is gluten. That means a slice of bread may have 2-3 g of gluten."

I weigh about 180 lbs, which is about 82 kg. At 0.3 g/kg, I'd need to eat about 24-25 g. of gluten, or about TEN slices per day. If you weigh about 110 lbs, or 50 kg, it works out to 5-6 slices of bread per day. That's a lot more than 3 slices per day.

Anyone have any thoughts/recommendations?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I have heard that from several doctors with good reputations with regards to celiac. You really need to be eating alot of it and if you have been gluten free for any period of time that is especially importamt.

VydorScope Proficient

I do not know the origin of the rule of thumb, but I can say I think its totaly wrong, and I would go with the numbers in the FAQ. Thats just based onmy expence.

Merika Contributor

I've heard some people make antibodies in 3 months, but *everyone* makes them in 6 months, so unless you start feeling really cr&ppy before 6 months, I'd go with that. If you've been eating gluten up til now, though, don't sweat it, just take the test.

Merika

Canadian Karen Community Regular

I think, and although this is not backed up by scientific evidence, but I don't think anyone can put a "number" to the amount of gluten needed for testing. I base my belief on the fact that everybody's body reacts differently, some severely, some mildly, some not at all. You might have some who would react to three slices, but then again, someone who is micro-sensitive, might react to 5 crumbs a day. I honestly don't think there is enough knowledge about it yet to say definitively how much is necessary......

Good Luck with the testing!

Karen

ebrbetty Rising Star

I was 98% gluten-free before my blood test, My Dr said "lets do it anyway, because there are so many ppl that get negative results even eating gluten" my results came back boaderline positive..he said if I was eating gluten everyday it would have been a higher positive result. I was told it stays in our system for 6 months, but I don't know if thats correct..I read so much on celiac disease and get so many different answers!

one Dr, my Gastro actually told me I could not possibly have celiac disease because I don't get diarrhea and thats the only symptom of celiac disease not severe stomach pain!! :blink:

Canadian Karen Community Regular
one Dr, my Gastro actually told me I could not possibly have celiac disease because I don't get diarrhea and thats the only symptom of celiac disease not severe stomach pain!! :blink:

Yikes!!!! :o

Hope you didn't go back to him! ;)

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ebrbetty Rising Star

LOL no never, but I will send him a copy of my blood tests!!

it took my primary care Dr to say lets test you, you've been in severe pain for a year everytime you eat!

VydorScope Proficient
I think, and although this is not backed up by scientific evidence, but I don't think anyone can put a "number" to the amount of gluten needed for testing. I base my belief on the fact that everybody's body reacts differently, some severely, some mildly, some not at all. You might have some who would react to three slices, but then again, someone who is micro-sensitive, might react to 5 crumbs a day. I honestly don't think there is enough knowledge about it yet to say definitively how much is necessary......

Good Luck with the testing!

Karen

ITs worse then that, some ppl liek me and my son will NEVER show postive on the main "screening" test, and yet still have celiac disease. Only the full panel might find it in our case. (Well did in his case, I never got hte full panel!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    5. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.