Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused


Warren Hall

Recommended Posts

Warren Hall Newbie
(edited)

I was diagnosed in April 2018 from both a biopsy and blood test that I have celiac's disease.  About 6 months after the diagnosis I had what I thought was gluten free bread and I had a violent reaction maybe 16 hours later.  Since that, I have been pretty religious about what I eat.  I get contaminated every once in a while with a similar reaction.

Which brings me to last night.  I confused the gluten free lasagna with the regular lasagna that my wife had made a couple of days before that was in the fridge.  I ate a huge serving of her non-gluten free lasagna about 18 hrs ago and so far, no reaction.  As soon as my wife told me of my mistake, I took two of those "gluten cutter" pills I keep in my briefcase.   I am surprised and confused.  Does this make sense to anyone?  If yes, what is going on and why?

Edited by Warren Hall

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

You have been gluten free for a while.  Your gut has probably healed and your immune response may be slow to activate.  It can take days to activate.  I do know that celiac disease is like a chameleon and symptoms can change.  

Maybe the gluten cutter supplement helped too.  Did you take them before your stomach emptied?   

Please report back and let us know how you are doing. 

Warren Hall Newbie
10 hours ago, cyclinglady said:

You have been gluten free for a while.  - I still get cross contaminated every once in a while

Your gut has probably healed and your immune response may be slow to activate.  It can take days to activate.  - Usually I react between 12 and 24 hours

Maybe the gluten cutter supplement helped too.  Did you take them before your stomach emptied? - When my wife walked into the kitchen she noticed that I had consumed the "wrong" lasagna.  I looked at the two platters at that time, realized my mistake and went and took the "gluten cutters".  So, less than a 1/2 hour after I had consumed the pasta.   I have always thought those "gluten cutter" pills didn't really do anything but I still keep them around.  Maybe they do something?  

Please report back and let us know how you are doing. - Coming up on 36 hrs and nothing.  

Perhaps barilla lasagna noodles have very little gluten in them?

 

Fenrir Community Regular

I don't think Gluten Cutter did much to save you. None of the ingredients in that product have been proven to do anything. ANP-PEP is the only thing that actually works and right now the only product with that in it that has the correct dose is GliadinX. 

People react differently to exposures, some have severe reaction right away and others don't feel it for several days or may not even notice it at all. Just because you don't feel it doesn't mean you're not reacting though. 

Personally, it takes about 3hrs for me to start having a strong reaction if I get exposed to a large amount of gluten. The other possibility here is perhaps you both confused which lasagna was in the fridge and you in fact ate the gluten-free one. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HeloIP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      EGD with flatten mucosa

    2. - HeloIP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      EGD with flatten mucosa

    3. - Joel K posted a topic in Meet Up Room
      0

      Caribbean Sailing with Celiac

    4. - Joel K posted a topic in Board/Forum Technical Help
      0

      Forum Rules

    5. - MelissaClinPsyD replied to MelissaClinPsyD's topic in Coping with Celiac Disease
      4

      Refractory Coeliac Disease research to reduce anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,489
    • Most Online (within 30 mins)
      7,748

    Brandye5
    Newest Member
    Brandye5
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific to celiac disease as a follow-up so, in case he/she does, don't start a gluten-free diet until that blood draw is done.
    • HeloIP
      For years, I’ve had intermittent gut symptoms that included abdominal pain, fatigue, bloating, and gas. I did not have significant diarrhea. A few days ago, I had a EGD that revealed gastritis and mucosal flattening in the duodenum. I’m waiting on the results of the biopsy now. I feel that celiac disease is what has been my problem for years. I’m almost afraid they’ll tell me the test is negative and then I’ll be right back where I started. Any insights on these findings would be helpful. Thank you.
    • Joel K
      Greetings! I would love to get a group going with fellow sailors with celiac disease who would be interested in chartering a sailing yacht down in the Caribbean perhaps a few times a year.  Most likely in the US and/or British Virgin Islands, though other islands may also be considered.  Doesn't have to be the same people and doesn't have to be only experienced sailors.  But everybody would have to be willing to share in the charter, provisioning, and running expenses, in participating in sailing the yacht, and sharing in the work of living on board for a week or two at a time.  This would be a good opportunity to travel safely, foodwise, as all food on board would be provisioned as gluten free.  Of course, I realize many with celiac disease concurrently have additional food interaction issues and we would have to plan around these as well.  But the main concern and commonality among all hands is celiac disease.  We might have some meals ashore as well, and so planning the restaurants out would certainly be a part of our discussions on the trip. The modern yachts will range from 40 to 60 foot long and we'll have berths for six to ten persons, including myself.  Since chartering is such a big deal in the Caribbean, we will need to reserve a boat well in advance.  So firm committment to the venture would need to take place early once the process begins -- often up to a year in advance.  I will have more details once we get some interest. I am a retired ship captain after 48 years at sea, having sailed also in many traditional and modern schooners and a few yachts.  I last chartered a 52 foot sloop out of Road Town, Tortola, in the BVI in April 2025, and am course certified in ASA-101, 103, & 104.  My USCG Master license for Oceans was finally retired in 2022 and no longer active.  I live in Manchester, New Hampshire and work as a Myoskeletal Alignment Therapist with a clinic in Bedford, NH. If you have any interest in chartering with me, please let me know.
    • Joel K
      Greetings! I'd like to post a request for interest in an event I'd like to set up.  But before I do, I'm wondering what the rules for posting in the forum are.  Is there somewhere on this site where the rules for posting in the forum or in meetup groups are located? Thanks in advance.
    • MelissaClinPsyD
      There is no minimum time since diagnosis of refractory coeliac disease to be eligible for this research. The research is a feasibility study for people with refractory coeliac disease since there is currently no psychologically based intervention tailored for refractory coeliac. The aim of this research is to provide therapeutic support that is not routinely offered at gastroenterology clinics thus encourages people to maintain wellbeing in consideration of having symptoms despite a gluten free diet. Hope you gain further clarity and some relief following your endoscopy!
×
×
  • Create New...