Can symptoms keep occurring after gluten has been cut out?

[VickyMarshall]

My daughter was diagnosed August 2019 and we have been a completely gluten free house since then. For the last few week's she has had a rash and no tummy issues. The rash had cleared since cutting out gluten. Does this mean she has somehow eaten some gluten or can symptoms reoccur?

[cyclinglady]

If she has celiac disease, I assume the rash is Dermatitis Herpetiformis (DH) which is a celiac-specific rash.  Those with DH must be extra careful  to avoid gluten.  This blistery,  intensely itchy,  rash can have a mind of its own.  Even trace amounts of gluten seem to trigger it.  

But I am confused.  She diagnosed with tummy aches and rash.  She went gluten free.  Rash and tummy aches resolved.  Now she has a rash, but no tummy issues?  Is that it?  

Those celiacs who have DH can develop the rash and have no GI issues. Most of the antibodies choose to settle in the skin instead of the gut.  While the GI tract in theory can heal in two weeks, it can take a long time for those IgA antibodies to exit the skin.  Both the small intestine and skin can be attacked.  It is why some with DH need a skin biopsy to catch their diagnosis instead of instead of an intestinal biopsy.  

How old is she?  My bet is that she has had a gluten exposure.  Again, DH sufferers are very sensitive.  Try to avoid processed foods.  It might be too much for her.  Every celiac is different.  I wish I had a better answer.  

Try browsing through the DH section for tips and a better understanding.  

Edited February 11, 2020 by cyclinglady

[Fenrir]

School age kids with celiac disease can be difficult to manage. They might eat things they're not supposed to at school, maybe a friend shares a treat or something like that. If she is school age I would just ask if she is eating anything she's not supposed to or if friends gave her things. 

Chances are if she was rash free and it came back she probably got exposed.