Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waking Up Every Hour To Pee


wilbragirl

Recommended Posts

AFprincess Newbie

yeah... i actually was having my blood sugars checked because i thought that i was diabetic! it only happened after a large meal (that at the time i wasn't aware was full of gluten!). I randomly fell across all sorts of forums about celiac disease...so i decided since nothing else was working, and docs couldn't tell me what was wrong, that i would try gluten free. It took about 4 days and things were getting better! not up all night, not dizzy all the time, not in that mental fog, and most of all, no more painful tummy!!! i am back on gluten so that i can get the official testing done. But i was finally going to the bathroom on a normal basis, and sleeping almost through the night!!! felt so so good!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 67
  • Created
  • Last Reply
AliSha097 Rookie

I noticed that I am up almost every hour, every night. It is quite annoying. I wish I had the answer to our problem! The restless sleep makes for a rough day.

  • 3 weeks later...
Coolclimates Collaborator

I'm so glad I found this post. I have thought that I was the only one who had this problem (for my age at least...I'm 32). I sometimes wake up as much as 4-6 times per night to pee. Even if I don't have to go that much, I have to pee or otherwise I can't get back to sleep. I've been taking clonazapan every night now and that has greatly reduced the # of times I wake up in the night. Sometimes I don't wake up at all! But I had no idea that this was related to celiac disease.

I also feel like I need to pee all the time during the day. I feel like I'm constantly having to take trips to the bathroom. I haven't noticed being thirsty so much as just having to pee a lot.

I also sometimes have painful or burning urination when I eat foods that are high in oxalic acid. Although I'm not sure if the allergies to oxalic acid have anything to do with celiac disease at all.

lilbit Apprentice

Amazing. I'm not the only "freak of nature" out there who has to pee every 20 minutes! :P It started when I was 20 and slowly got worse and worse over the years

I feel like jumping up and down and waving my arms in the air yelling " ooh! ooh! Me too! Me too!"

I love this board! For me it started when I was 25 and just kept getting worse! (33 now) and I went to the doc who said well, its not diabetes... Don't drink so much!

I try to force myself not to drink alot because its frustrating to get up every hour to pee! During the day its easier to hold it for longer...

I have my upper endo next week and if its not celiac I'm gonna be very annoyed. Not that I want a disease... But I DO want an answer!

bekkaz Apprentice

I just stumbled accross this thread and it caught my attention. I am not yet diagnosed with celiac, but am suspecting I could have it. I don't wake up in the night to pee. However I have these flare up's that keep happeing with horrible bladder pain they happen on and off. I have seen an natropath and a OBGYN who has referred me to a Urologist. I am currently waiting for my appointment. They think I might possibly have Interstical Cystitis IC. My nautropath told me every person she has seen with IC has almost always had a food allergy/intolerance that's caused it. Hopefully this information helps some of you.

Coolclimates Collaborator

You might have an allergy to oxalic acid. I do. For me, it causes tiny crystals in my bladder and when I pee, it burns like hell, not to mention for hours afterwards. You might also want to check out the thread on vulvodynia in the related conditions section.

I just stumbled accross this thread and it caught my attention. I am not yet diagnosed with celiac, but am suspecting I could have it. I don't wake up in the night to pee. However I have these flare up's that keep happeing with horrible bladder pain they happen on and off. I have seen an natropath and a OBGYN who has referred me to a Urologist. I am currently waiting for my appointment. They think I might possibly have Interstical Cystitis IC. My nautropath told me every person she has seen with IC has almost always had a food allergy/intolerance that's caused it. Hopefully this information helps some of you.

Looking for answers Contributor

I had this problem until I was treated for adrenal fatigue, which often results from the dietary stress gluten placed on our bodies. Glad to say today, it is gone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
texasgirl19 Apprentice

Hi I am new to this, I have to use the restroom all the time...I thought it was just me but apparently it has to do with the gluten... :(

munchkinette Collaborator

What is wrong with me? All this time this thread was here and I didn't realize it. I just posted a thread about this problem in the "Related Disorders" section. I'm having major sleep deprivation issues because of water retention and peeing. It looks like it's pretty common on this board. I have recently been glutened, but I haven't had this problem after a glutening before.

I had this problem until I was treated for adrenal fatigue, which often results from the dietary stress gluten placed on our bodies. Glad to say today, it is gone.

What is the treatment for this? I've wondered before if this is an issue for me.

Skylark Collaborator

Here's a weird one. I had bladder pain and urinary frequency. Doctors looked for interstitial cystitis and did an IVP. All negative and I just learned to live with it. I got better all of a sudden when tried a Candida cleanse product and took Threelac when I started on my vitamin supplements. I don't even BELIEVE in "candidiasis" but my stupid bladder seems to. :huh: If I get pain/frequent urination a couple weeks of a good probiotic and maybe a little caprylic acid does the trick.

RiceGuy Collaborator

Interesting. Seems I missed this thread, but now that it has been resurrected, I figure I may as well chime in.

After a while of having to go every hour, I figured it might be an electrolyte imbalance. Mainly because if I didn't keep replenishing by drinking water all the time, I'd get very thirsty in a short period of time. That told me I wasn't retaining it very well. Extra salt helped a little, but not much. So I started taking potassium. Bingo! I could tell it was working after just a day or two, and it took about two weeks or so to completely normalize.

munchkinette Collaborator

Interesting. Seems I missed this thread, but now that it has been resurrected, I figure I may as well chime in.

After a while of having to go every hour, I figured it might be an electrolyte imbalance. Mainly because if I didn't keep replenishing by drinking water all the time, I'd get very thirsty in a short period of time. That told me I wasn't retaining it very well. Extra salt helped a little, but not much. So I started taking potassium. Bingo! I could tell it was working after just a day or two, and it took about two weeks or so to completely normalize.

I thought about this for my own situation, but I don't think it worked. I was doing the paleo diet until a few weeks ago, and getting at least 4000 mg of potassium a day naturally through all the vegies I was eating. (RDA is 4700 for me.) I was getting very little salt on this diet as well. I stopped the diet and started getting more salt than potassium again, which is normal for most American diets. How much potassium were you taking?

missy'smom Collaborator

My potassium levels were tested and found to be low. I looked up veggies and fruits that were high in potassium and started eating bananas and broccoli, etc. in larger servings and everday and by the next check, my levels were up. When I was looking up potassium at the time, I found that diabetes was on the list of causes for low potassium. Turns out I do have diabetes and as posted earlier, managing blood sugar made a big difference in that frequent urination(another symptom of diabetes). Not suggesting that you guys have diabietes but just FYI to anyone out there about this combo of problems/symptoms.

RiceGuy Collaborator

I thought about this for my own situation, but I don't think it worked. I was doing the paleo diet until a few weeks ago, and getting at least 4000 mg of potassium a day naturally through all the vegies I was eating. (RDA is 4700 for me.) I was getting very little salt on this diet as well. I stopped the diet and started getting more salt than potassium again, which is normal for most American diets. How much potassium were you taking?

See, that's the fallacy - that just ingesting the nutrients in food is going to mean the body will fully benefit from it. If that were true, there wouldn't be so many of us with nutrient deficiencies. And it wouldn't require the high dosages many find they need to keep levels up. Malabsorption is one of the main problems Celiac causes.

I eat lots of veggies and other wholesome foods which have plenty of potassium, but apparently my digestive system doesn't absorb it very well. I take a multivitamin/mineral and other things for the same reason.

I was, and still do, take the amount suggested on the label. It's not 100% of the RDA, but I find it is enough for me. Besides, potassium chloride can be rather toxic if you overdo it. I started with potassium gluconate, which I'd really prefer, but it costs a lot more. Both are pure powders (more like crystals). I always try to use pure powdered supplements whenever possible, to limit the amount of other ingredients used in pills as fillers, flow agents, etc, and to hopefully maximize absorption. Potassium chloride is also sold as a salt substitute, but I find it tastes awful that way. The gluconate form doesn't have an off taste (if memory serves), and can be sprinkled onto any moist food, or added to smoothies and such.

I suppose one thing you might try is a so-called "sports drink". The kind used to replenish electrolytes. Whether it works for you or not, you'll at least have some answers.

munchkinette Collaborator

See, that's the fallacy - that just ingesting the nutrients in food is going to mean the body will fully benefit from it. If that were true, there wouldn't be so many of us with nutrient deficiencies. And it wouldn't require the high dosages many find they need to keep levels up. Malabsorption is one of the main problems Celiac causes.

Oh man, I should know this better than anyone. :) The whole reason I figured out the gluten intolerance in the first place was 3 years in a row of anemia despite the supplements, which went away just a few months after changing my diet.

I think I need to get back on the multivitamins again. I always take my probiotics and vitamin D, but I haven't been taking the multivitamins since I eat so many vegies. I probably should try double-dosing of vitamins and vegies for a few weeks to see how I feel.

Skylark Collaborator

See, that's the fallacy - that just ingesting the nutrients in food is going to mean the body will fully benefit from it. If that were true, there wouldn't be so many of us with nutrient deficiencies. And it wouldn't require the high dosages many find they need to keep levels up. Malabsorption is one of the main problems Celiac causes.

I sometimes wonder whether the foods even have what they used to. How can foods grown in depleted soil on chemical fertilizers possibly have the same nutritional value as what our great-grandparents ate?

RiceGuy Collaborator

I sometimes wonder whether the foods even have what they used to. How can foods grown in depleted soil on chemical fertilizers possibly have the same nutritional value as what our great-grandparents ate?

I've heard it from multiple sources that food crops today don't have nearly the nutritional value they once did. Though it probably isn't equally bad with every nutrient, there certainly is less of various minerals, and probably some vitamins too. Having a garden or buying fresh, locally grown, organic produce is definitely a good idea whenever you can. I've been wanting to start growing sprouts, since that's pretty easy, and they're supposed to be quite healthy.

munchkinette Collaborator

I sometimes wonder whether the foods even have what they used to. How can foods grown in depleted soil on chemical fertilizers possibly have the same nutritional value as what our great-grandparents ate?

This is absolutely true, for multiple reasons. First, many fruits and vegies are selectively bred for size, sugar content, and taste. When you select for one trait you often select against another trait, like nutrient value. Although I don't have a problem with genetically modified produce in general, sometimes that's another way to lose nutrient value. The soil and available nutrients factor in as well. We use chemical fertilizers, but in nature most plants have some kind of symbiotic fungi in the roots that help fix those nutrients and make them available to plants.

Animal protein is often less nutritious as well. Grain-fed herbivorous animals just don't have the same nutrient composition as grass-fed, or in the case of birds, grass/grub/insect/etc. fed. This is why farmed fish just isn't as good for you either. Grain-fed fish don't have the same high omega-3 content as fish that have been eating algae or smaller fish that ate algae.

And I don't know what the deal is with dairy, but I can eat it in many other countries. I can't handle more than a couple bites of any dairy product in the US.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,875
    • Most Online (within 30 mins)
      7,748

    Jen J.
    Newest Member
    Jen J.
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.