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Burning Pain


ebrbetty

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ebrbetty Rising Star

hi guys, I've been getting weird burning type pain in my right elbow, the right side of my back [bra strap area] and the right groin. I've had a CT scan and ultra sound in the last month..both ok..it feels like its on fire with pain..oh ya..I also have a weird bumpy rash on the right side at the rib area

thanks bunches..starting to scare me..could it be food realated?


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lgleeson Newbie
hi guys, I've been getting weird burning type pain in my right elbow, the right side of my back [bra strap area] and the right groin. I've had a CT scan and ultra sound in the last month..both ok..it feels like its on fire with pain..oh ya..I also have a weird bumpy rash on the right side at the rib area

thanks bunches..starting to scare me..could it be food realated?

hi guys, I've been getting weird burning type pain in my right elbow, the right side of my back [bra strap area] and the right groin. I've had a CT scan and ultra sound in the last month..both ok..it feels like its on fire with pain..oh ya..I also have a weird bumpy rash on the right side at the rib area

thanks bunches..starting to scare me..could it be food realated?

Hi, I don't know if it is the same thing I had or not, but right after being diagnosed I started having burning in my right arm and right leg and on my back. It turned out to be a Vitamin B deficiency. My Vitamin B levels in my blood were normal, but your blood keeps your blood levels normal, so don't let the doctor say that is not it. I have been on vitamin b-12 shots for 4 months now and feel completely back to normal. (Ironically, vitamin b-12 deficiency symptoms tend to be on one side - mine was the right side too.) Hope that helps!

ebrbetty Rising Star

thank you for the reply, its quite painful..Id look at my elbow or under the ribs were it burns thinking my skin must be bright red,but its internal.

I don't take any vitamins, they always upset my stomach..better see if I can find something. someone told me about b12 that you melt under the tongue

dlp252 Apprentice
hi guys, I've been getting weird burning type pain in my right elbow, the right side of my back [bra strap area] and the right groin. I've had a CT scan and ultra sound in the last month..both ok..it feels like its on fire with pain..oh ya..I also have a weird bumpy rash on the right side at the rib area

thanks bunches..starting to scare me..could it be food realated?

I get a burning sensation in my skin....feels like a really bad sunburn but there's no redness or rash. Does the rash go around your rib kind of like a belt? You know, in a thin strip around your waist/rib area?

ebrbetty Rising Star

no, the rash is on the right rib and one above that under my right breast

dlp252 Apprentice
no, the rash is on the right rib and one above that under my right breast

Okay, sorry then, I don't know...I was thinking Shingles, which is a painful rather than itchy rash that follows a nerve. You may want to have a dermatologist look at it.

ebrbetty Rising Star

its very painful, the rash is just a weird,small red bumps, not really itcy. the burning/pain is driving me nuts, in the elbow, groin,rib area all right side, sometime my trunk area gets red..it almost seems nerve realated,but the weird thing is it gets worse after I eat

my dad had shingles bad


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Cecila Newbie
hi guys, I've been getting weird burning type pain in my right elbow, the right side of my back [bra strap area] and the right groin. I've had a CT scan and ultra sound in the last month..both ok..it feels like its on fire with pain..oh ya..I also have a weird bumpy rash on the right side at the rib area

thanks bunches..starting to scare me..could it be food realated?

Wow, I'd been experiencing the same symptoms, except it was my shoulder, not my elbow. I've been taking B 12 & B complex (both under tongue) for two months, and have not noticed any change (I must admit I forget to take at alot of times). I get accupunture treatments and she did some cupping on that area the last two weeks, and I've felt much less pain in those areas.

I've wondered, does anyone else do accupunture?

Elsa

ebrbetty Rising Star

did anyone ever tell you what causes it? does yours get worse sometimes after you eat? [it may be a coincidence] is your pain just in the shoulder?

a few years ago I did accupuncture For about 6 months for fibro pain, it helped for a few months then nothing..I hear that a lot

Cecila Newbie
did anyone ever tell you what causes it? does yours get worse sometimes after you eat? [it may be a coincidence] is your pain just in the shoulder?

a few years ago I did accupuncture For about 6 months for fibro pain, it helped for a few months then nothing..I hear that a lot

Well we knew I had a vit B definciency, however since I began taking them I had not noticed a difference (I started them at the same time I went gluten free approx 2mo. ago). I believe I had not noticed any change due to the malabsorbtion. We actually thought it had something to do with my line of work, I lift my right arm alot (it's in my right top shoulderblade area). It mostly came on at night or when I had not eaten properly. I had stopped working a month ago, still no relief, in fact it was getting worse and that's when she started the cupping treatments, with great success. I have also had it in my right groin area but thought it was caused by pushing a box with my leg last month (I never mentioned it to her), so when you mentioned pain in thoses areas, and someone else mentioned how the B deficency targets one side, it blew my mind, and reminded me to take my B's, in fact I doubled up tonight.

I do find that accupuncture really works for me, I've done it off and on for the past 6 years. However, I went to 3 different accupuncturists before finding one who "understood" what I am going through now.

My celiac was triggered by west nile virus/encephalitis 2 years ago and up until 2 1/2 months ago I thought that was the cause of all my symptoms. You can just imagine the trouble I've had finding someone who would listen.

Peace & Goodnight,

Elsa

danikali Enthusiast
I get a burning sensation in my skin....feels like a really bad sunburn but there's no redness or rash. Does the rash go around your rib kind of like a belt? You know, in a thin strip around your waist/rib area?

I've gotten exactly that too! Right after I had some ham with bourbon in it (when I first went gluten-free, I thought that bourbon was just corn derived, later I found out it ALWAYS has rye and barley in it as well!) that was the first symptom I got. It lasted only a couple of days, but I also had a million other symptoms from this 'glutening.' But that was the first time I ever got that weird burning sensation. It was only in my left arm, and like you said, it was like a bad sunburn in my skin, except there was no rash or redness or anything. Very weird!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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