Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Burning Pain


ebrbetty

Recommended Posts

ebrbetty Rising Star

hi guys, I've been getting weird burning type pain in my right elbow, the right side of my back [bra strap area] and the right groin. I've had a CT scan and ultra sound in the last month..both ok..it feels like its on fire with pain..oh ya..I also have a weird bumpy rash on the right side at the rib area

thanks bunches..starting to scare me..could it be food realated?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lgleeson Newbie
hi guys, I've been getting weird burning type pain in my right elbow, the right side of my back [bra strap area] and the right groin. I've had a CT scan and ultra sound in the last month..both ok..it feels like its on fire with pain..oh ya..I also have a weird bumpy rash on the right side at the rib area

thanks bunches..starting to scare me..could it be food realated?

hi guys, I've been getting weird burning type pain in my right elbow, the right side of my back [bra strap area] and the right groin. I've had a CT scan and ultra sound in the last month..both ok..it feels like its on fire with pain..oh ya..I also have a weird bumpy rash on the right side at the rib area

thanks bunches..starting to scare me..could it be food realated?

Hi, I don't know if it is the same thing I had or not, but right after being diagnosed I started having burning in my right arm and right leg and on my back. It turned out to be a Vitamin B deficiency. My Vitamin B levels in my blood were normal, but your blood keeps your blood levels normal, so don't let the doctor say that is not it. I have been on vitamin b-12 shots for 4 months now and feel completely back to normal. (Ironically, vitamin b-12 deficiency symptoms tend to be on one side - mine was the right side too.) Hope that helps!

ebrbetty Rising Star

thank you for the reply, its quite painful..Id look at my elbow or under the ribs were it burns thinking my skin must be bright red,but its internal.

I don't take any vitamins, they always upset my stomach..better see if I can find something. someone told me about b12 that you melt under the tongue

dlp252 Apprentice
hi guys, I've been getting weird burning type pain in my right elbow, the right side of my back [bra strap area] and the right groin. I've had a CT scan and ultra sound in the last month..both ok..it feels like its on fire with pain..oh ya..I also have a weird bumpy rash on the right side at the rib area

thanks bunches..starting to scare me..could it be food realated?

I get a burning sensation in my skin....feels like a really bad sunburn but there's no redness or rash. Does the rash go around your rib kind of like a belt? You know, in a thin strip around your waist/rib area?

ebrbetty Rising Star

no, the rash is on the right rib and one above that under my right breast

dlp252 Apprentice
no, the rash is on the right rib and one above that under my right breast

Okay, sorry then, I don't know...I was thinking Shingles, which is a painful rather than itchy rash that follows a nerve. You may want to have a dermatologist look at it.

ebrbetty Rising Star

its very painful, the rash is just a weird,small red bumps, not really itcy. the burning/pain is driving me nuts, in the elbow, groin,rib area all right side, sometime my trunk area gets red..it almost seems nerve realated,but the weird thing is it gets worse after I eat

my dad had shingles bad


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cecila Newbie
hi guys, I've been getting weird burning type pain in my right elbow, the right side of my back [bra strap area] and the right groin. I've had a CT scan and ultra sound in the last month..both ok..it feels like its on fire with pain..oh ya..I also have a weird bumpy rash on the right side at the rib area

thanks bunches..starting to scare me..could it be food realated?

Wow, I'd been experiencing the same symptoms, except it was my shoulder, not my elbow. I've been taking B 12 & B complex (both under tongue) for two months, and have not noticed any change (I must admit I forget to take at alot of times). I get accupunture treatments and she did some cupping on that area the last two weeks, and I've felt much less pain in those areas.

I've wondered, does anyone else do accupunture?

Elsa

ebrbetty Rising Star

did anyone ever tell you what causes it? does yours get worse sometimes after you eat? [it may be a coincidence] is your pain just in the shoulder?

a few years ago I did accupuncture For about 6 months for fibro pain, it helped for a few months then nothing..I hear that a lot

Cecila Newbie
did anyone ever tell you what causes it? does yours get worse sometimes after you eat? [it may be a coincidence] is your pain just in the shoulder?

a few years ago I did accupuncture For about 6 months for fibro pain, it helped for a few months then nothing..I hear that a lot

Well we knew I had a vit B definciency, however since I began taking them I had not noticed a difference (I started them at the same time I went gluten free approx 2mo. ago). I believe I had not noticed any change due to the malabsorbtion. We actually thought it had something to do with my line of work, I lift my right arm alot (it's in my right top shoulderblade area). It mostly came on at night or when I had not eaten properly. I had stopped working a month ago, still no relief, in fact it was getting worse and that's when she started the cupping treatments, with great success. I have also had it in my right groin area but thought it was caused by pushing a box with my leg last month (I never mentioned it to her), so when you mentioned pain in thoses areas, and someone else mentioned how the B deficency targets one side, it blew my mind, and reminded me to take my B's, in fact I doubled up tonight.

I do find that accupuncture really works for me, I've done it off and on for the past 6 years. However, I went to 3 different accupuncturists before finding one who "understood" what I am going through now.

My celiac was triggered by west nile virus/encephalitis 2 years ago and up until 2 1/2 months ago I thought that was the cause of all my symptoms. You can just imagine the trouble I've had finding someone who would listen.

Peace & Goodnight,

Elsa

danikali Enthusiast
I get a burning sensation in my skin....feels like a really bad sunburn but there's no redness or rash. Does the rash go around your rib kind of like a belt? You know, in a thin strip around your waist/rib area?

I've gotten exactly that too! Right after I had some ham with bourbon in it (when I first went gluten-free, I thought that bourbon was just corn derived, later I found out it ALWAYS has rye and barley in it as well!) that was the first symptom I got. It lasted only a couple of days, but I also had a million other symptoms from this 'glutening.' But that was the first time I ever got that weird burning sensation. It was only in my left arm, and like you said, it was like a bad sunburn in my skin, except there was no rash or redness or anything. Very weird!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.