Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Glutened


bluelotus

Recommended Posts

bluelotus Contributor

Hi all,

I was doing fairly well, but got glutened somewhere. It sucks, my tummy hurts and had all the normal celiac disease symptoms. I really hate this stupid disease. Sorry, just wanted to moan to someone.........oh....my tummy. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I'm sorry that you're feeling sick :( Did your food get contaminated?

bluelotus Contributor

Thanks for the sympathy.... I would guess its CC, everything I ate was typical. I hate being glutened...feels like little needles in my tummy. Best wishes to all others that are sick out there tonight.

Carriefaith Enthusiast

I get sick from cross contamination very easily. I really have to limit a lot of "gluten free" mainstream foods and even a few "gluten free" foods because of cross contamination issues. Some products that make me sick are Humpty Dumpty chips, Butterball products, Maple Leaf all beef hot dogs, and Bob's Red Mill flaxseed.

bluelotus Contributor

Just in case - here's what I've had in the past day that might be risky b.c I have them less often (though don't recall getting sick) - Silk soymilk raspberry smoothie, Ian's gluten free fish sticks. Also have had 'homemade' gluten-free bread from a Gluten-free pantry mix to go with my homemade soup. I am not suggesting that any of these brands are the problem per se, I eat such a varied diet that it is hard to pin down an item as making me sick. But, if anyone has had problems with any of these, I'd be interested.

Oh....my tummy :(

Rachel--24 Collaborator

I dont know about any of the foods you ate....just wanted to say sorry you feel sick. :(

gabby Enthusiast

Sometimes gluten-free does not mean there's no gluten in it. I had to learn this the hard way. Eg. potatoes do not contain gluten, and a potato chip manufacturer can say that his potato chips are naturally gluten-free. But go back to the company and ask them if the chips are produced in a gluten-free facility....many times they are NOT!

the only way to know is to contact the company. If they don't get back to you with a very clear Yes or No, then do not eat the food.

I had this happen with some organic almond butter. The label said it contained only roasted almonds. But it kept giving me trouble. I finally contacted the company and they said they didn't add anything to the almonds. But when I pressed them further, I asked them if they roasted their own nuts...they said no, they bought them already roasted from another facility. Did this other facility process gluten-containing foods inthe same factory? Well, they weren't sure.

And there was my answer. I don't eat the almond butter anymore...and the problems went away. I've had similar experiences with all sorts of 'gluten-free' products.

Just call or e-mail the companies. They are pretty friendly and it is a really useful resource.

One more thing...I've been gluten free about two years, and just started being unable to handle soy and dairy just these last couple months. If everything you are eating is gluten-free, eliminate the soy and dairy, then add them back in and see if they are the culprits.

Hope this helps,

If you do figure it out, please post here so we can all learn from your experience!

thanks,

Gabby


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

Thanks, Gabby and Rachel. Gabby, I haven't contacted Ian's, but Silk does list their smoothies as gluten-free on their website. Ian's gluten-free fish sticks label themselves as gluten-free on the package. Then again, I am very sensitive to CC, so maybe both or one of the two companies has CC problems. I've got tons going on this week, but maybe I can give them a call sooner or later.

Thanks again for your support. Feeling a little better today, but pretty run down. Oh, and Gabby, I can't tolerate dairy either (found out its casein by testing myself - I miss cheese :( ) I hope soy's not next!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748

    AML2013
    Newest Member
    AML2013
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.