Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Test Results


Rachel--24

Recommended Posts

Guest BERNESES

Having been "under their care" for a year while I lived in California, i can say I'm glad you're outta there too. There's no doubt you'll get better!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 63
  • Created
  • Last Reply
ianm Apprentice

Best of luck and I hope this is what is really at the root of the problem.

slpinsd Contributor

Jen H: Yeah- it was Blue Steel. Zoolander is my favorite movie, too! I switched it w/the real me now, though.

Rachel: I'm glad you don't have H. Pylori. I'm done w/my course of antibiotics, and onto probiotic treatment. Flagyl tastes nasty. I really don't notice any difference in my symptoms. The reflux is improved but my intestinal issues are pretty much the same. I believe that it may be from Candida that I have. Rachel, did you do a salivary test for the adrenals from BioHealth? I did that same test! Mine showed low DHEA and a high DHEA/cortisol ratio. Yeah, I am really happy with BioHealth's tests.

Nancy M: I am in SD, too. I know a really good Naturopath that does BioHealth's testing. PM me if you are interested. She WILL look for the root causes of your problems!

Rachel--24 Collaborator
Rachel: I'm glad you don't have H. Pylori. I'm done w/my course of antibiotics, and onto probiotic treatment. Flagyl tastes nasty. I really don't notice any difference in my symptoms. The reflux is improved but my intestinal issues are pretty much the same. I believe that it may be from Candida that I have. Rachel, did you do a salivary test for the adrenals from BioHealth? I did that same test! Mine showed low DHEA and a high DHEA/cortisol ratio. Yeah, I am really happy with BioHealth's tests.

I just started my antibiotics. I'm not taking Flagyl. They gave me Tinitazole. Its very new....it wasnt even in the pharmacist's computer yet. I guess its sorta related to Flagyl but with less side-effects....but they did say I'd probably get a metallic taste in my mouth. I just hope it works. Are you doing anything for the Candida? They just told me that once the c-diff is gone the probiotics should get the candida under control but they may decide to give me something for it. They said Candida is not my main problem...its just there cuz I have an infection thats holding it in place right now. Yeah...I did have the same adrenal test. My DHEA was normal but my DHEA/cortisol ratio was a little high. Did you ever take the stool test for pathogens? Thats the test that detected my C-Diff. It seems like people with H. Pylori dont really get very many symptoms from it...if any. Maybe thats why you dont feel any different....also didnt you just start gluten-free?....its gonna take some time for you to heal. Are you going to retest to make sure the H. Pylori's gone? I have to retest 30 days after I finish my antibiotics.

P.S. I see you got your pic up now! No more Zoolander guy. :)

Guest BERNESES

Go Rachel- We're all rooting for you! Please keep us posted as to how things go. Best, Beverly

Rachel--24 Collaborator
Best of luck and I hope this is what is really at the root of the problem.

Thanks Ian! You're one of the people on here who pretty much never complains about life after gluten. Well how could you...new girl, new job, great health! :D

I love how positive you are about the diet. We shared similar symptoms and circumstances and hopefully soon I'll have great health too....and some of that "bonus" stuff wouldn't be so bad either. :D

ianm Apprentice

This is happening to you for a reason. I couldn't see it when it was happening to me then but I can see it clearly now. It is to prepare you for bigger and better things to come but you mind and body have to be ready for them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

[quote name='Rachel--24' date='Feb 14 2006, 10:26 PM' post='103408 Hopefully soon I'll have great health too....and some of that "bonus" stuff wouldn't be so bad either. :D

thomas3000 Rookie

Hey Ian,

What were your symptoms before going gluten free if you don't mind me asking? I think I read it in another thread but can't find it, just curious if you had depression/anxiety/brainfog/headaches and how long did it take before they cleared up??

Rachel--24 Collaborator
This is happening to you for a reason. I couldn't see it when it was happening to me then but I can see it clearly now. It is to prepare you for bigger and better things to come but you mind and body have to be ready for them.

I know my mind is ready...just waiting for my body to catch up now. :D

For anyone interested my doctor gave me the wrong meds. She didnt give me the antibiotic (Flagyl) which is what I need to be taking for C-Diff. She gave me some kind of anti-protazoal agent which clearly states on the instruction sheet that it is NOT effective in treating infections caused by bacteria. So I wasted 2 days and the cost of the perscription. I went on the C-Diff forum and told them what I was taking and everyone questioned why in the heck I was taking that for C-Diff....apparantly its not even an antibiotic. I was just starting to really trust my new doctors and now this. :(

Oh well...starting over today. Picking up the CORRECT meds after work. :)

Judyin Philly Enthusiast
D

For anyone interested my doctor gave me the wrong meds. Oh well...starting over today. Picking up the CORRECT meds after work. :)

Good grief Rachel,

you really aren't catching a break are you.

I know we can research things to death..but it paid off for you going on the c diff forum.

judy in philly

Rachel--24 Collaborator
Good grief Rachel,

you really aren't catching a break are you.

Aint that the truth! I guess life was too easy for me the first 3 decades so now I'm making up for it all in the last 3 years. <_<

BUT... I was definately given a break when I found you guys! ;)

ianm Apprentice
Hey Ian,

What were your symptoms before going gluten free if you don't mind me asking? I think I read it in another thread but can't find it, just curious if you had depression/anxiety/brainfog/headaches and how long did it take before they cleared up??

Severe brain fog, fatigue and obesity. The way those things were destroying my life did lead to a period of depression. Overall it has been a two year process to become completely healthy. The worst symptoms cleared up within a few weeks but better for me would have been still really bad for anyone else. It takes time, no two ways around it.

thomas3000 Rookie

Thanks for the reply Ian.. Lots of my family have depression/brain fog/anxiety/obesity, but won't listen to me about going gluten free. I tried like hell to tell them but they said they "need" their spaghetti...HMMM. Makes you wonder doesn't it. I'm trying to help people with this but nobody seems to believe that gluten can cause mental problems. I'm glad you self diagnosed because your right, doctors are clueless, unless of course you find one like mine and Rachels. I'm doing my best to get the word out that it's our diets that is causing these symptoms. Heck, if I can make a difference in 1 persons life and make some ripples, then I'll be happy with that. Your story is truly inspirational and I'm glad you are trying to help others...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,316
    • Most Online (within 30 mins)
      7,748

    RickT
    Newest Member
    RickT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.