Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Test Results

Rachel--24

By Rachel--24
in Related Issues & Disorders

Recommended Posts

Guest BERNESES
Guest BERNESES
Posted

Having been "under their care" for a year while I lived in California, i can say I'm glad you're outta there too. There's no doubt you'll get better!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 63
  • Created
  • Last Reply
ianm Apprentice
ianm
Posted

Best of luck and I hope this is what is really at the root of the problem.

slpinsd Contributor
slpinsd
Posted

Jen H: Yeah- it was Blue Steel. Zoolander is my favorite movie, too! I switched it w/the real me now, though.

Rachel: I'm glad you don't have H. Pylori. I'm done w/my course of antibiotics, and onto probiotic treatment. Flagyl tastes nasty. I really don't notice any difference in my symptoms. The reflux is improved but my intestinal issues are pretty much the same. I believe that it may be from Candida that I have. Rachel, did you do a salivary test for the adrenals from BioHealth? I did that same test! Mine showed low DHEA and a high DHEA/cortisol ratio. Yeah, I am really happy with BioHealth's tests.

Nancy M: I am in SD, too. I know a really good Naturopath that does BioHealth's testing. PM me if you are interested. She WILL look for the root causes of your problems!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel: I'm glad you don't have H. Pylori. I'm done w/my course of antibiotics, and onto probiotic treatment. Flagyl tastes nasty. I really don't notice any difference in my symptoms. The reflux is improved but my intestinal issues are pretty much the same. I believe that it may be from Candida that I have. Rachel, did you do a salivary test for the adrenals from BioHealth? I did that same test! Mine showed low DHEA and a high DHEA/cortisol ratio. Yeah, I am really happy with BioHealth's tests.

I just started my antibiotics. I'm not taking Flagyl. They gave me Tinitazole. Its very new....it wasnt even in the pharmacist's computer yet. I guess its sorta related to Flagyl but with less side-effects....but they did say I'd probably get a metallic taste in my mouth. I just hope it works. Are you doing anything for the Candida? They just told me that once the c-diff is gone the probiotics should get the candida under control but they may decide to give me something for it. They said Candida is not my main problem...its just there cuz I have an infection thats holding it in place right now. Yeah...I did have the same adrenal test. My DHEA was normal but my DHEA/cortisol ratio was a little high. Did you ever take the stool test for pathogens? Thats the test that detected my C-Diff. It seems like people with H. Pylori dont really get very many symptoms from it...if any. Maybe thats why you dont feel any different....also didnt you just start gluten-free?....its gonna take some time for you to heal. Are you going to retest to make sure the H. Pylori's gone? I have to retest 30 days after I finish my antibiotics.

P.S. I see you got your pic up now! No more Zoolander guy. :)

Guest BERNESES
Guest BERNESES
Posted

Go Rachel- We're all rooting for you! Please keep us posted as to how things go. Best, Beverly

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Best of luck and I hope this is what is really at the root of the problem.

Thanks Ian! You're one of the people on here who pretty much never complains about life after gluten. Well how could you...new girl, new job, great health! :D

I love how positive you are about the diet. We shared similar symptoms and circumstances and hopefully soon I'll have great health too....and some of that "bonus" stuff wouldn't be so bad either. :D

ianm Apprentice
ianm
Posted

This is happening to you for a reason. I couldn't see it when it was happening to me then but I can see it clearly now. It is to prepare you for bigger and better things to come but you mind and body have to be ready for them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest BERNESES
Guest BERNESES
Posted

[quote name='Rachel--24' date='Feb 14 2006, 10:26 PM' post='103408 Hopefully soon I'll have great health too....and some of that "bonus" stuff wouldn't be so bad either. :D

thomas3000 Rookie
thomas3000
Posted

Hey Ian,

What were your symptoms before going gluten free if you don't mind me asking? I think I read it in another thread but can't find it, just curious if you had depression/anxiety/brainfog/headaches and how long did it take before they cleared up??

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
This is happening to you for a reason. I couldn't see it when it was happening to me then but I can see it clearly now. It is to prepare you for bigger and better things to come but you mind and body have to be ready for them.

I know my mind is ready...just waiting for my body to catch up now. :D

For anyone interested my doctor gave me the wrong meds. She didnt give me the antibiotic (Flagyl) which is what I need to be taking for C-Diff. She gave me some kind of anti-protazoal agent which clearly states on the instruction sheet that it is NOT effective in treating infections caused by bacteria. So I wasted 2 days and the cost of the perscription. I went on the C-Diff forum and told them what I was taking and everyone questioned why in the heck I was taking that for C-Diff....apparantly its not even an antibiotic. I was just starting to really trust my new doctors and now this. :(

Oh well...starting over today. Picking up the CORRECT meds after work. :)

Judyin Philly Enthusiast
Judyin Philly
Posted
D

For anyone interested my doctor gave me the wrong meds. Oh well...starting over today. Picking up the CORRECT meds after work. :)

Good grief Rachel,

you really aren't catching a break are you.

I know we can research things to death..but it paid off for you going on the c diff forum.

judy in philly

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Good grief Rachel,

you really aren't catching a break are you.

Aint that the truth! I guess life was too easy for me the first 3 decades so now I'm making up for it all in the last 3 years. <_<

BUT... I was definately given a break when I found you guys! ;)

ianm Apprentice
ianm
Posted
Hey Ian,

What were your symptoms before going gluten free if you don't mind me asking? I think I read it in another thread but can't find it, just curious if you had depression/anxiety/brainfog/headaches and how long did it take before they cleared up??

Severe brain fog, fatigue and obesity. The way those things were destroying my life did lead to a period of depression. Overall it has been a two year process to become completely healthy. The worst symptoms cleared up within a few weeks but better for me would have been still really bad for anyone else. It takes time, no two ways around it.

thomas3000 Rookie
thomas3000
Posted

Thanks for the reply Ian.. Lots of my family have depression/brain fog/anxiety/obesity, but won't listen to me about going gluten free. I tried like hell to tell them but they said they "need" their spaghetti...HMMM. Makes you wonder doesn't it. I'm trying to help people with this but nobody seems to believe that gluten can cause mental problems. I'm glad you self diagnosed because your right, doctors are clueless, unless of course you find one like mine and Rachels. I'm doing my best to get the word out that it's our diets that is causing these symptoms. Heck, if I can make a difference in 1 persons life and make some ripples, then I'll be happy with that. Your story is truly inspirational and I'm glad you are trying to help others...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748
    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.