Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Test Results


Rachel--24

Recommended Posts

Guest BERNESES

Having been "under their care" for a year while I lived in California, i can say I'm glad you're outta there too. There's no doubt you'll get better!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 63
  • Created
  • Last Reply
ianm Apprentice

Best of luck and I hope this is what is really at the root of the problem.

slpinsd Contributor

Jen H: Yeah- it was Blue Steel. Zoolander is my favorite movie, too! I switched it w/the real me now, though.

Rachel: I'm glad you don't have H. Pylori. I'm done w/my course of antibiotics, and onto probiotic treatment. Flagyl tastes nasty. I really don't notice any difference in my symptoms. The reflux is improved but my intestinal issues are pretty much the same. I believe that it may be from Candida that I have. Rachel, did you do a salivary test for the adrenals from BioHealth? I did that same test! Mine showed low DHEA and a high DHEA/cortisol ratio. Yeah, I am really happy with BioHealth's tests.

Nancy M: I am in SD, too. I know a really good Naturopath that does BioHealth's testing. PM me if you are interested. She WILL look for the root causes of your problems!

Rachel--24 Collaborator
Rachel: I'm glad you don't have H. Pylori. I'm done w/my course of antibiotics, and onto probiotic treatment. Flagyl tastes nasty. I really don't notice any difference in my symptoms. The reflux is improved but my intestinal issues are pretty much the same. I believe that it may be from Candida that I have. Rachel, did you do a salivary test for the adrenals from BioHealth? I did that same test! Mine showed low DHEA and a high DHEA/cortisol ratio. Yeah, I am really happy with BioHealth's tests.

I just started my antibiotics. I'm not taking Flagyl. They gave me Tinitazole. Its very new....it wasnt even in the pharmacist's computer yet. I guess its sorta related to Flagyl but with less side-effects....but they did say I'd probably get a metallic taste in my mouth. I just hope it works. Are you doing anything for the Candida? They just told me that once the c-diff is gone the probiotics should get the candida under control but they may decide to give me something for it. They said Candida is not my main problem...its just there cuz I have an infection thats holding it in place right now. Yeah...I did have the same adrenal test. My DHEA was normal but my DHEA/cortisol ratio was a little high. Did you ever take the stool test for pathogens? Thats the test that detected my C-Diff. It seems like people with H. Pylori dont really get very many symptoms from it...if any. Maybe thats why you dont feel any different....also didnt you just start gluten-free?....its gonna take some time for you to heal. Are you going to retest to make sure the H. Pylori's gone? I have to retest 30 days after I finish my antibiotics.

P.S. I see you got your pic up now! No more Zoolander guy. :)

Guest BERNESES

Go Rachel- We're all rooting for you! Please keep us posted as to how things go. Best, Beverly

Rachel--24 Collaborator
Best of luck and I hope this is what is really at the root of the problem.

Thanks Ian! You're one of the people on here who pretty much never complains about life after gluten. Well how could you...new girl, new job, great health! :D

I love how positive you are about the diet. We shared similar symptoms and circumstances and hopefully soon I'll have great health too....and some of that "bonus" stuff wouldn't be so bad either. :D

ianm Apprentice

This is happening to you for a reason. I couldn't see it when it was happening to me then but I can see it clearly now. It is to prepare you for bigger and better things to come but you mind and body have to be ready for them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

[quote name='Rachel--24' date='Feb 14 2006, 10:26 PM' post='103408 Hopefully soon I'll have great health too....and some of that "bonus" stuff wouldn't be so bad either. :D

thomas3000 Rookie

Hey Ian,

What were your symptoms before going gluten free if you don't mind me asking? I think I read it in another thread but can't find it, just curious if you had depression/anxiety/brainfog/headaches and how long did it take before they cleared up??

Rachel--24 Collaborator
This is happening to you for a reason. I couldn't see it when it was happening to me then but I can see it clearly now. It is to prepare you for bigger and better things to come but you mind and body have to be ready for them.

I know my mind is ready...just waiting for my body to catch up now. :D

For anyone interested my doctor gave me the wrong meds. She didnt give me the antibiotic (Flagyl) which is what I need to be taking for C-Diff. She gave me some kind of anti-protazoal agent which clearly states on the instruction sheet that it is NOT effective in treating infections caused by bacteria. So I wasted 2 days and the cost of the perscription. I went on the C-Diff forum and told them what I was taking and everyone questioned why in the heck I was taking that for C-Diff....apparantly its not even an antibiotic. I was just starting to really trust my new doctors and now this. :(

Oh well...starting over today. Picking up the CORRECT meds after work. :)

Judyin Philly Enthusiast
D

For anyone interested my doctor gave me the wrong meds. Oh well...starting over today. Picking up the CORRECT meds after work. :)

Good grief Rachel,

you really aren't catching a break are you.

I know we can research things to death..but it paid off for you going on the c diff forum.

judy in philly

Rachel--24 Collaborator
Good grief Rachel,

you really aren't catching a break are you.

Aint that the truth! I guess life was too easy for me the first 3 decades so now I'm making up for it all in the last 3 years. <_<

BUT... I was definately given a break when I found you guys! ;)

ianm Apprentice
Hey Ian,

What were your symptoms before going gluten free if you don't mind me asking? I think I read it in another thread but can't find it, just curious if you had depression/anxiety/brainfog/headaches and how long did it take before they cleared up??

Severe brain fog, fatigue and obesity. The way those things were destroying my life did lead to a period of depression. Overall it has been a two year process to become completely healthy. The worst symptoms cleared up within a few weeks but better for me would have been still really bad for anyone else. It takes time, no two ways around it.

thomas3000 Rookie

Thanks for the reply Ian.. Lots of my family have depression/brain fog/anxiety/obesity, but won't listen to me about going gluten free. I tried like hell to tell them but they said they "need" their spaghetti...HMMM. Makes you wonder doesn't it. I'm trying to help people with this but nobody seems to believe that gluten can cause mental problems. I'm glad you self diagnosed because your right, doctors are clueless, unless of course you find one like mine and Rachels. I'm doing my best to get the word out that it's our diets that is causing these symptoms. Heck, if I can make a difference in 1 persons life and make some ripples, then I'll be happy with that. Your story is truly inspirational and I'm glad you are trying to help others...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.