Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finding A Doctor

FairySprinkle

By FairySprinkle
in Doctors

Recommended Posts

FairySprinkle Rookie
FairySprinkle
Posted

Hello, I may not have celiac disease, but I do notice that I may be allergic to gluten. If you look in DH category in the forum or through my profile and check my post, why I believe that gluten is causing my bad acne. I am not so sure about getting a test done because I don't know if anything will come out of the test especially if all I see is bad acne when I eat certain foods or put stuff on my face. I know there's something wrong with certain foods I eat like the cracker that has barley malt and wheat. I am sure soup has gluten, and I have found some give me about 5 huge bad pus-filled acne greeting me in the morning mirror. They are extremelly embarrassing. My hair can be pretty frizzy and sometimes limp-no volume, and so I wonder if I stopped eating them, if my hair might grow more healthier? I have back zits and chest with some clooged pores. I am pretty sure there's something in the food because as I ate crackers the other day and the day before that, I got acne near my ear, and that's not common at all. They are pus-filled.

Do you think I should get a test? Will it show up on a test if I am allergic to them?

I am really new to the topic of gluten and celiac disease, so if anyone has a good book I can read about how to avoid them, I'd like to find out.

Is there a book or booklet of ingredients to watch out for when looking for gluten things that I can carry with me?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

We carry the Gluten-Free Bible with us when we go shopping. My husband also printed out the Delphi list -- it's REALLY lengthy, though, and we just got it, but we plan on taking it on "long" shopping trips. With regard to the break-outs you're having, a good dermatologist can biopsy them and let you know if it is Dermatitis Herpatiformis -- another gluten intolerance ramification. It sounds, though, like you already know the triggers. I would certainly tell the doctor about those. Good luck with your journey . . . . Lynne

SurreyGirl Rookie
SurreyGirl
Posted
Is there a book or booklet of ingredients to watch out for when looking for gluten things that I can carry with me?

Hi FS, have a look at Loren Cordain's research literature. He has papers on acne as well as other gluten-related issues, papers 2, 11, 26 but others too. He has recently presented his acne findings at the deramtology conference in London.

Open Original Shared Link

FairySprinkle Rookie
FairySprinkle
Posted
  • Author

Hi, thank you for the link.

I will do what I can to test the gluten levels, etc. I am not sure where I would find a good dermatologist who will see acne as DH because they don't look like blisters. However, I am seeing a patter from a picture and someone here who says that she gets DH around her mouth like I do as well I see that it runs under my chin. Normally, I don't get bumps under my chin.

Rusla Enthusiast
Rusla
Posted

Have them do a skin biopsy, I forced them to do one on me. It came back as DH and if you have DH you are Celiac. Not all celiacs get it but only Celiacs get it. Getting the skin biopsy saved me going through a stomach biopsy.

slpinsd Contributor
slpinsd
Posted
Have them do a skin biopsy, I forced them to do one on me. It came back as DH and if you have DH you are Celiac. Not all celiacs get it but only Celiacs get it. Getting the skin biopsy saved me going through a stomach biopsy.

yes, i would look into seeing a good dermatologist.

FairySprinkle Rookie
FairySprinkle
Posted
  • Author

My derm takes 3 months to see. I'll see if I can contact a different dermatologist. How is a biopsy done? Does it hurt? Do you have to have skin bumps present in order to have a biopsy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

It doesn't hurt. They scrape off some of the skin that is dry scaley by the sores. The freaking affliction hurts more than the biopsy. I had to go back on gluten for a week just so I would have an huge outbreak. My dh can show up in a few hours with even a slight glutening.

The dermatologist was not going to do it because it wasn't in the "normal" place. I told him to humor me and do it for my peace of mind. He was surprised because he thought all Celiacs were thin and all DH was elbows and knees.

FairySprinkle Rookie
FairySprinkle
Posted
  • Author

Thanks. I am going to start calling when my insurance kicks in in a few weeks or less.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,160
    • Most Online (within 30 mins)
      7,748
    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      EMA Result

      By trents · Posted

      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      Violent reaction to gluten after going gluten-free?

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • Scott Adams
      Seeking advice on potential gluten challenge

      By Scott Adams · Posted

      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      Violent reaction to gluten after going gluten-free?

      By Greymo · Posted

      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      EMA Result

      By trents · Posted

      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.