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Canadians?


EMSPrincess

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lorka150 Collaborator

yay! i'm looking forward to this.


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  • Replies 223
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2Boys4Me Enthusiast

Another Canadian...Calgary, Alberta.

  • 2 weeks later...
smacky Newbie

I'm Canadian. I'm originally from Toronto but I'm now in Hamilton.

kareena Newbie

Hi to all

I just joined your site oh about 5 min ago. :D Yes i am from Ontario Canada (Guelph) I was told i was celiac when i was seventeen. i took me a while to be willing to go without gluten ( it helped that i found out you can claim your food on incom tax). i have 3 children (14, 10 and 10 yes twins) part of the reason i kinda began eating gluten again. i'm not sure if any of them have this disease or not. I'm curently dating a vegan so if anyone out there has any suggestions please feel free to let me know good dinners for the vegan/celiac ( this food must not caontain anything that has a head)

Thanks for your help

Kareen :)

Robix Apprentice

Hi! Me too me too!

I am in Montreal! Anyone else from Montreal? Am desperately seeking an informed GI! I went to my GP with a list of about 12 symptoms and she treated each one separately...need a good doctor who can truly help me figure this out.

So happy to meet all you other canadians! Was looking for a canadian support site but you had to pay to be a member, and it didn't have half the info this one does. Well just have to be a well-informed minority! ;)

lorka150 Collaborator
Hi to all

I just joined your site oh about 5 min ago. :D Yes i am from Ontario Canada (Guelph) I was told i was celiac when i was seventeen. i took me a while to be willing to go without gluten ( it helped that i found out you can claim your food on incom tax). i have 3 children (14, 10 and 10 yes twins) part of the reason i kinda began eating gluten again. i'm not sure if any of them have this disease or not. I'm curently dating a vegan so if anyone out there has any suggestions please feel free to let me know good dinners for the vegan/celiac ( this food must not caontain anything that has a head)

Thanks for your help

Kareen :)

hi kareen!

i am from Niagara, but go to school in Waterloo. There are a lot of great resources - in both places. i have a lot of great vegan recipes on hand. let me know how i can help!

kareena Newbie

Hey thanks any help will do but you know what i'm wishing to for is a rice and cheese (vegan) based pizza crust haven't had pizza in sooooooo long my mom use to have a copy but over time and many folds i can't read a darn thing on it.

Thanks kareena

hi kareen!

i am from Niagara, but go to school in Waterloo. There are a lot of great resources - in both places. i have a lot of great vegan recipes on hand. let me know how i can help!


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lorka150 Collaborator

you can make cheese from nutritional yeast, or buy galaxy foods vegan cheese.

re: the crust, mine doesn't have rice, as i am allergic. i use other flours, so maybe someone else can help you better in that department.

Deej Newbie

It's so good to find this site and to see so many Canadians. I've been reading all day and your product posts are so helpful - thank you!

I'm a native Edmontonian, spent 16 fabulous years in Vancouver, but now I'm back in Edmonton.

sasha1234 Newbie
now I'm back in Edmonton.

can you believe the snow last night?!?!? BAH!

Deej Newbie
:angry: I know, I know! Ugggh.
Robix Apprentice

Deej,

Hi there, just noticed you were diagnosed as pernicious anemia in 96- i was dx in 92. Do you have the deficiency or the absorption problem (ie on monthly injections)?

SO many of my symptoms which I always just attributed to the pernicious anemia am now wondering if it was celiac disease, and am also wondering if the pernicious anemia came from the celiac disease or vice versa.

Am new to this board and am trying to figure this all out, without any insight or help in any way from any of the doctors I have ever had. Neither my hematologist, nor my GP nor my family doctor have ever had any time to give me information or help me manage this better.

Would love to hear if you have any to share! (am a canadian too, a montrealer!)

Deej Newbie

Hi yourself!

As I understand it, it's an absorption problem. But I'm not sure. I was already on the gluten-free diet (about three months if I remember correctly) when I started having symptoms similar to a heart attack. Blood test in emergency determined I was dangerously low on B12. I ended up with a very elevated homocysteine (it was very scary - the cardiologist was nervous). I was on weekly B12 shots for about a year and then moved to once a month (plus taking oral folic acid and B6).

I'm new to this board, too (just joined today) but I found a thread about it on the related diseases board.

It's a confusing disease, isn't it?

Felidae Enthusiast
can you believe the snow last night?!?!? BAH!

Hey, I love the snow. I had a great cross country ski today. Finally we get some winter.LOL

sasha1234 Newbie
Hey, I love the snow. I had a great cross country ski today. Finally we get some winter.LOL

Sweet. I like snow I just had to shovel.

Lynxear Rookie

Well.....I only think I am mildly celiac but that wheat intolerance is the root cause of other problem...so not sure that I qualify here.

I was born and raised in Winnipeg...lived in Toronto for 8 years and for the past 18 years I now live in Calgary....I like it here very much.

Felidae Enthusiast
Sweet. I like snow I just had to shovel.

Yeah, I am in a condo so I don't have to deal with the tiring part of the great snowfall that we got. That's probably part of why I don't mind it too much.

kareena Newbie

Lynxear...... well this may not be the best site but i'm sure it will help. My housemate has a friend that is wheat intorerant and we pass on suggestions to each other quite often.

Lynxear Rookie
Lynxear...... well this may not be the best site but i'm sure it will help. My housemate has a friend that is wheat intorerant and we pass on suggestions to each other quite often.

Well if you have suggestions for another site I will listen....but I am finding some good stuff here for me.

I definately am not "full blown" celiac. I don't have to religiously read labels...for example I love Asian food but I don't have to be carefull about the type of soy sauce used. But I do feel a bloat when I eat bread and pasta.

I have very high blood fats and diabetes (type II) and I found that eliminating wheat flour from my diet has helped both in the past....but that was when I lived in Thailand where wheat is not part of a traditional Thai. As soon as I went back on a western diet I have returned to those problems, big time.

I don't know if high blood fats is a celiac problem yet but I was surprised to find narcolepsy was. I am "borderline" narcoleptic as well. I have always felt that there was a root cause for my little health problems and that I was being only treated for symtoms...not cause.

I do struggle with a wheat free diet...I can do it for a while but in a western diet it is difficult for me. I eat out often and eliminating pizza, sandwiches, pasta, wraps makes menu choices rather small. I feel like a drunk who has been sober for a few months ....then tries one drink....then another...soon he is a lush again. Well bread is my alcohol.

Friendly people here ...

kareena Newbie
Well if you have suggestions for another site I will listen....but I am finding some good stuff here for me.

I definately am not "full blown" celiac. I don't have to religiously read labels...for example I love Asian food but I don't have to be carefull about the type of soy sauce used. But I do feel a bloat when I eat bread and pasta.

I have very high blood fats and diabetes (type II) and I found that eliminating wheat flour from my diet has helped both in the past....but that was when I lived in Thailand where wheat is not part of a traditional Thai. As soon as I went back on a western diet I have returned to those problems, big time.

I don't know if high blood fats is a celiac problem yet but I was surprised to find narcolepsy was. I am "borderline" narcoleptic as well. I have always felt that there was a root cause for my little health problems and that I was being only treated for symtoms...not cause.

I do struggle with a wheat free diet...I can do it for a while but in a western diet it is difficult for me. I eat out often and eliminating pizza, sandwiches, pasta, wraps makes menu choices rather small. I feel like a drunk who has been sober for a few months ....then tries one drink....then another...soon he is a lush again. Well bread is my alcohol.

Friendly people here ...

Well i know i don't feel it as bad as some but i also know what the worst case can be so i try to stay away from gluten all i can i really enjoy the tiai food so that is a help for me. i'll talk to my housemate and ask her to get hold heather and see if she goes on line.

qwertyui Rookie

I'm from just outside Toronto too!

Canadian Karen Community Regular

Welcome! I'm in Clarington region.......

This is a great board with lots of great people here.....

Karen

kareena Newbie

ok ... so i have a question from anyone in the London, ON area.

I use to live there when i found out i was celiac. the health food store just off Richmond St. was great!!!! i think it was one block down from Oxford St. (next to the dool house not sure if it is still there near Wendys) they carried a product by a woman a named Marilyn ( not sure of the last name) i guess my question is can you still get her products they were the best ( i do believe that she has passed away from cancer not 100% sure of that) and if not did anyone take over the business and if it is available how can i get some?

Thanks for the help

lorka150 Collaborator
ok ... so i have a question from anyone in the London, ON area.

I use to live there when i found out i was celiac. the health food store just off Richmond St. was great!!!! i think it was one block down from Oxford St. (next to the dool house not sure if it is still there near Wendys) they carried a product by a woman a named Marilyn ( not sure of the last name) i guess my question is can you still get her products they were the best ( i do believe that she has passed away from cancer not 100% sure of that) and if not did anyone take over the business and if it is available how can i get some?

Thanks for the help

Here is the contact for the celiac chapter in London, maybe she can help:

CCA London Chapter President: Anita Zubko 519 657 2537

kareena Newbie
Here is the contact for the celiac chapter in London, maybe she can help:

CCA London Chapter President: Anita Zubko 519 657 2537

thanks for the info

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    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
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    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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