Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probitics Question

Rachel--24

Recommended Posts

Rachel--24 Collaborator
Rachel--24
Posted

None of the probiotics I've taken have made too much of a difference. I recently found out I have at least one bacteria infection so that may be why nothings helped. I start treatment w/ antibiotics next week and want to take a really good probiotic. I've heard Culturelle is good. Anyone know where I can get some? If you know of another brand which is equally good or better let me know. It doesnt have to be Culturelle....just want something potent.

Thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

I've been taking probiotics for a couple of years now, but I have to say I've never really noticed that they "do" anything. I've been on so many rounds of antibiotics that I just continually take the good stuff too just to repopulate my gut. I was taking NOW brand, but it didn't state specifically on the label that it was dairy free so I recently switched to Country Life PowerDophilus. The breakdown is:

Lactobacillus rhamnosus 4.2 billion

Lactobacillus acidophilus 3.6 billion

Bifidobacterium lactis (bifidum) 3 billion

Bifidobacterium longum 1.2 billion

Other ingredients include maltodextrin, cellulose (capsule shell), cellulose, magnesium stearate, silica.

It has no yeast, wheat, soy, gluten, milk, salt, sugar, starch, preservatives or artificial color.

So, I'm not sure I feel any difference taking it, but I take it to help my gut. I found them at Whole Foods in the refrigerated section.

floridanative Community Regular
floridanative
Posted

I started taking Culterelle Sunday. The Celiac expert I saw speak Saturday says Celiacs need probiotics for life due to issues with too much sugar in our diets. I plan to ask the dietician to explain this further. The doc said she likes Culterelle b/c they are easy to travel with (no refridg. needed). I found them for $20 for a 30 day supply at Walgreen's but they also carry them for CVS - $22 for same box.

Also, the doc mentioned that some people (not all) have a bad problem with gas when they start the probiotics. She promised this would pass in a few days. I have so far had no issues with that (knock wood).

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Hmmm...maybe I'll check that one out on my weekly trip to Whole Foods.

I wonder what makes some probiotics better than others? I recall reading that some probiotics don't even contain any living organisms in them...so you can take them all day long but nothing will happen cuz they're totally useless.

I wanna make sure whatever brand I get has good *living* bacteria in them...although I have no idea how that would be determined. <_<

I started taking Culterelle Sunday. The Celiac expert I saw speak Saturday says Celiacs need probiotics for life due to issues with too much sugar in our diets. I plan to ask the dietician to explain this further. The doc said she likes Culterelle b/c they are easy to travel with (no refridg. needed). I found them for $20 for a 30 day supply at Walgreen's but they also carry them for CVS - $22 for same box.

Thanks Floridanative,

I thought it was gonna be hard to find but its at Walgreens....thats easy enough. I always thought the refridgerated ones were better but who knows. I think Culterelle is suppossed to be a good brand so I'll have to compare between that and the one previously mentioned.

More suggestions are welcome :)

johanna Newbie
johanna
Posted

You can order Culturelle online if you just do a search. I order it online b/c they have two formulations--one with gelatin caps and one with microcellulose, and if I take too many gelatin capsules they make me sick. I've never seen Culturelle at a health food store, but I hear they carry them at Walgreens.

Culturelle and VSL3 are the only probiotics that have made a difference for me. Both improve my acne, reduce environmental sensitivities, and help me tolerate more foods. But with VSL3 it took me a while to get used to it--my heart rate went up and I had trouble sleeping for a while. So even though it's really effective, it can be hard to adjust to.

Question: why do Celiacs always have a problem with too much sugar in the gut?

Guest nini
Guest nini
Posted

I take a digestive enzyme with probiotics from the Isotonix line from Market America... I think it works well for me...

Moongirl Community Regular
Moongirl
Posted

speaking of probiotics, im not sure if i should take some..., my dr prescribed me keflex, an antibiotic, (for my throat) im kind of hesitant to take it cause im only 2 months into my diet and im having some issues with pain around my belly and stomach area....and i dont want it to get worse...any suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


floridanative Community Regular
floridanative
Posted

johanna - if I understood the docs point about sugar it was that the 'replacement' foods many Celiacs eat (gr bread, cookies, etc.) have more sugar or fructose in them than their gluten couterparts. So my guess is that if one doesn't eat a whole lot of those replacement foods, one may not need a probiotic. I don't see the dietician for three weeks but this is one of my questions for her. If she sheds any light on the situtation I'll be sure and post it here.

lorka150 Collaborator
lorka150
Posted

I take the dairy free BioK.

lamood Newbie
lamood
Posted

My daughter had to take culturelle, it was over the counter at Wallgreens. The doctor had us open the capsul and put the powder into her applesauce or soy yogurt.

We just got a dairy free probiotic for her at the health store that has to be refrigerated, which is probably not good for someone if they are on the go.

She had a lot of bloody mucos before taking the probiotics and she did finally clear up.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Thanks everyone for your input.

I just bought Primadophilus Reuteri by Nature Made. I was checking out the C-Diff support forum since I just dx'd with having C-Diff infection. It seemed like alot of people were recommending this probiotic and I happened to see it at the grocery store today so I'll give it a try.

Its got Lactobacillus rhamnosus, Lactobacillus rueteri & Lactobacillus acidophilus.

It says it improves intestinal cell structure (longer villi). I'm all for having longer villi so I'm sold. :D

I also had Country Life acidophilus in my fridge which I forgot about so Ill take that too.

Jenn2005 Contributor
Jenn2005
Posted

Rachel - Which grocery store did you find the Primadophilos Reuteri at? Is it liquid or capsule? Does it have to be refridgerated? Sorry for so many questions. Thanks.

Jennifer

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel - Which grocery store did you find the Primadophilos Reuteri at? Is it liquid or capsule? Does it have to be refridgerated? Sorry for so many questions. Thanks.

Jennifer

Jennifer, I got it at Raley's. I'm in CA so I dont know if you have Raley's in your area. It comes in capsules and it was in the refridgerated health section of the store. Raleys has alot of health food and even a glutenfree section. :)

Jenn2005 Contributor
Jenn2005
Posted

Thanks Rachel. I have never seen a rally's around here but I have seen many products by Nature Made so I'm going to see if the Health Food Store I shop at can order them (if they don't have them in stock I've never noticed). I'm glad to hear they are refridgerated. I read somewhere that the better probiotics have to be refridgerated and I can't find where I read it but I remember it. Let us know if you notice anything good from them. I'm going to try and get some tomorrow for my husband.

Jennifer

marciab Enthusiast
marciab
Posted

I wonder what makes some probiotics better than others? I recall reading that some probiotics don't even contain any living organisms in them...so you can take them all day long but nothing will happen cuz they're totally useless.

I wanna make sure whatever brand I get has good *living* bacteria in them...although I have no idea how that would be determined.

Rachel,

I read the same thing. And I've never felt any better from taking probiotics. I posted a question about using Kefir because I thought it might be a better form of probiotics. I was thinking that at least with Kefir you know it has been refrigerated the whole time. With capsules you really never know. I saw where you purchased a probiotic, and was wondering if you ever got an answer to the questions you posted above ?

THanks marcia

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I read the same thing. And I've never felt any better from taking probiotics. I posted a question about using Kefir because I thought it might be a better form of probiotics. I was thinking that at least with Kefir you know it has been refrigerated the whole time. With capsules you really never know. I saw where you purchased a probiotic, and was wondering if you ever got an answer to the questions you posted above ?

I never really got an answer to the questions. As far as Kefir I'm told making your own is the best. For me I cant take the storebought stuff because its too much sugar and I dont want to bother making my own. I saw a poll on another forum titled "which probiotic worked for you". Since many people mentioned getting positive results from the Primodophilus Reuteri...I chose that one.

Someone told me that if I were to have a bacteria infection or parasite the probiotics wont make a difference. I ended up having the C-Diff infection so maybe I'll get better results when that is taken care of....will have to wait and see.

marciab Enthusiast
marciab
Posted

Rachel,

I noticed that the Kefir at Publix was a smoothie and had lots of sugar in it, so I was going to look at my health food store. I tried making my own yogurt 30 years ago and got food poisoning, so I'm leary about trying to make my own Kefir. But, I really don't know enough about making my own to decide at this point.

"Someone told me that if I were to have a bacteria infection or parasite the probiotics wont make a difference. I ended up having the C-Diff infection so maybe I'll get better results when that is taken care of....will have to wait and see. "

Sorry to hear about your infection. Good luck with it ....

I tried Danactive today again. I got "D" the last time I tried it, but wasn't sure if it was just that I drank 2 in a row. The cramping started immediately this time. I think I might puke ...... Lactaid didn't help either.

I wrote down the primodopholous reuteri so I can check it out. Let me know what you think when you try it ....

marcia

Becky6 Enthusiast
Becky6
Posted

I use the CVS formula that is comparative to culturelle and it was $4.99 for 100 pills! It is free of gluten and other things.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I tried Danactive today again. I got "D" the last time I tried it, but wasn't sure if it was just that I drank 2 in a row. The cramping started immediately this time. I think I might puke ...... Lactaid didn't help either.

Marcia,

What is Danactive? Is it a probiotic?

marciab Enthusiast
marciab
Posted

Rachel,

Danactive is a probiotic produced by Dannon and found right next to the yogurt. And I can get it at walmart or publix here in Fl. It has 10 times more cultures than yogurt. THe first ingredient is cultured non fat milk. They say it is clinically proven to improve your body's natural defenses. The website is www.danactive.com. I drank the "lite" yesterday, to cut back on sugar (only 5 g). I assumed it was gluten free, but now I am wondering. I'm bummed that it is upset my stomach. My doc had told me that Yogurt might be ok, even if dairy wasn't because the process kills some of the enzymes people have a problem with. So far, I like all the flavors.

Good luck marcia

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    2. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    3. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    4. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    5. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,422
    • Most Online (within 30 mins)
      7,748
    HAUS
    Newest Member
    HAUS
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.