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Eating after Glutened


MariaMart

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MariaMart Newbie

My gastroenterologist mentioned I may be Glutened. I’ve researched and many of my symptoms match. However, I don’t know what to eat as I let my body heal. Suggestions? Thanks! 


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Scott Adams Grand Master

Welcome to the forum. Did you get diagnosed with celiac disease? It sounds like you are on a gluten-free diet now, is that correct? Here is a starter guide if this is correct:

 

ravenwoodglass Mentor

I find Cream of Buckwheat cereal to be soothing and easy to digest. I use Pocono brand. It is grown and processed a couple towns over but is available nationwide and they may have it available off line. Other than that I go with stuff that is easy for me to digest. Homemade chicken soup, well cooked veggies and fruits etc. I hope you heal quickly.

MariaMart Newbie

Thank you for the responses. I’ve had blood test (negative) but have to wait for other test hopefully in June. Therefore my doctor is trying to support until we know for sure. 

notme Experienced
(edited)

for me, personally, I just eat whatever i'm hungry for.  sometimes, just gluten-free toast or something light, a little tea.  or, sometimes, after i'm done feeling icky, i'll eat a huge meal.  that being said, I've been on gluten free diet for 10 years.  your guts might be more sensitive if you're just starting this journey.

fyi - my blood test was negative, too.  but, I went gluten free before doc tested me (at the advice of another doc, lol ?)  but within 2 weeks, I was feeling much better and gained 20 lbs, I was dangerously underweight and could not digest anything before that.  good luck!

edited to add:  I did have a follow up endoscopy that the g.i. doc could see the damage but I was advised not to do a gluten challenge because I was dangerously malnourished.  

what scott said below = true story.  my case was a little different.

Edited by notme!
add info
Scott Adams Grand Master

I think you may know this but in order to get further testing for celiac disease done you need to be eating gluten daily for at least 6 weeks, otherwise your test results might be false negative. 

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    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes!
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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