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What is really wrong with me

Patrick 1234
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Patrick 1234 Rookie
Patrick 1234
Posted

I don't want to see the doctor as I think I have been misdiagnosed. He gave me antibiotics after explaining all the symptoms related to cealic disease and that I had eaten a game meat which was caught in the wild and tasted ink like. As he stated I have gardinis . Also I had been having liver problems for 4 years now and as I remember I've had a drink and I started bloating, gassy only one drink of alcohol I stopped after, after 2 months I had one drink again and it was worse. My liver was in pain. And that's weight I was stated experiencing all the related cealic symptoms. I started to eat fatty foods, all day and it got really worse. Oh and after the antibiotics things got better. Stool retuned to brown. I was still eating gluten tho. But I just decided to quit eating it as I Googled too much about it and thought maybe I have it. So I don't know if it's my liver or I have cealic now. No one in my family has it. And I'm a black south african and no one knows it were I live even all my family say they don't have it and no one had it. It is rare were I live. When my liver hurts my stool is yellow my gut feels hot. I get bloated and I'm constipated all the time cause I don't eat bread anymore too. When my liver doesn't hurt. I poop brown. Anyone with similar experience 

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cyclinglady Grand Master
cyclinglady
Posted

We can not diagnose you over the internet.  We are not doctors, just people who have celiac disease.  

It sounds like you have several issues and that your doctor is on the right track.  Lactose intolerance (milk sugars) is very common.  A vast majority of the world’s population is lactose intolerant.  Maybe the infection you had triggered your lactose intolerance which may resolve once you have really healed (and it sounds like you are still healing).  Note that antibiotics can cause a temporary imbalance in your GI tract.  Consider avoiding all milk products for a while.  And maybe get back to your doctor when you can.  Your infection may not have completely resolved.  

Celiac disease is primarily in Caucasians (and Northern Indians).    They know this from genes.  You can read about this in this articles.  Are there other genes?  Maybe, but they have not been identified.  Not to say that some South Africans could not have celiac disease.  They might if they have ancestors who hail from Northern Europe.  

https://www.businessinsider.com/celiac-disease-caucasians-most-at-risk-2017-11

Patrick 1234 Rookie
Patrick 1234
Posted
  • Author
21 minutes ago, cyclinglady said:

We can not diagnose you over the internet.  We are not doctors, just people who have celiac disease.  

It sounds like you have several issues and that your doctor is on the right track.  Lactose intolerance (milk sugars) is very common.  A vast majority of the world’s population is lactose intolerant.  Maybe the infection you had triggered your lactose intolerance which may resolve once you have really healed (and it sounds like you are still healing).  Note that antibiotics can cause a temporary imbalance in your GI tract.  Consider avoiding all milk products for a while.  And maybe get back to your doctor when you can.  Your infection may not have completely resolved.  

Celiac disease is primarily in Caucasians (and Northern Indians).    They know this from genes.  You can read about this in this articles.  Are there other genes?  Maybe, but they have not been identified.  Not to say that some South Africans could not have celiac disease.  They might if they have ancestors who hail from Northern Europe.  

https://www.businessinsider.com/celiac-disease-caucasians-most-at-risk-2017-11

True because no one has it in my family. But my mother was anemia when she was alive, may her soul rest in peace.. She ate gluten tho. Didn't have any symptoms. She was taking anemia medicine and was okay. It might be my liver, or the gardinis. Cause before the antibiotics it was worse. But I read that yeast cause bacterial overgrowth in the gut. And I remember I have made fermented alcohol using suger and yeast last year December. After having it I had mild bloating, that's was full blown after ingesting another alcohol after 2 months and that game meat. And my liver must have been affected. Also I used to drink codeine with sprite with my friends, I quit after liver pain. And I just stopped smoking weed after being sick of the symptoms. So it might not be cealic after all. But still I haven't eaten gluten for a month now and I'm freaking out of eating eat again. And yes milk really gives me worse symptoms ever. 

Patrick 1234 Rookie
Patrick 1234
Posted
  • Author
4 minutes ago, Patrick 1234 said:

True because no one has it in my family. But my mother was anemia when she was alive, may her soul rest in peace.. She ate gluten tho. Didn't have any symptoms. She was taking anemia medicine and was okay. It might be my liver, or the gardinis. Cause before the antibiotics it was worse. But I read that yeast cause bacterial overgrowth in the gut. And I remember I have made fermented alcohol using suger and yeast last year December. After having it I had mild bloating, that's was full blown after ingesting another alcohol after 2 months and that game meat. And my liver must have been affected. Also I used to drink codeine with sprite with my friends, I quit after liver pain. And I just stopped smoking weed after being sick of the symptoms. So it might not be cealic after all. But still I haven't eaten gluten for a month now and I'm freaking out of eating eat again. And yes milk really gives me worse symptoms ever. Today I have bought lactose free milk, is it safe for the gut or must I avoid dairy all together? 

 

cyclinglady Grand Master
cyclinglady
Posted

There are many different types of anemia.  Your mother’s may have been genetic (i.e. sickle cell anemia, Thalassemia, etc.) 

Milk products are safe for celiacs.  That is different from being lactose intolerant.  If milk causes you problems then do not drink it.  

Again, the only way to tell if you have celiac disease is to get tested.  

I wish you well.  

Patrick 1234 Rookie
Patrick 1234
Posted
  • Author
25 minutes ago, cyclinglady said:

There are many different types of anemia.  Your mother’s may have been genetic (i.e. sickle cell anemia, Thalassemia, etc.) 

Milk products are safe for celiacs.  That is different from being lactose intolerant.  If milk causes you problems then do not drink it.  

Again, the only way to tell if you have celiac disease is to get tested.  

I wish you well.  

Thank you very much. Appreciated 

Chrysanthemum Newbie
Chrysanthemum
Posted

I’m not a doctor. I have had gallbladder issues, though and some of those symptoms are similar. Maybe talk to your doc (or a different doc) about that? Did the doctor you went to test you for antibodies?

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