Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Survival Kit

Guest nini

By Guest nini
in Gluten-Free Foods, Products, Shopping & Medications

Recommended Posts

Guest nini
Guest nini
Posted

After 3 years of this, I have put together a large zip file of lists and articles that are very helpful to the newly diagnosed celiac.

If you are interested in having a copyof this survival kit e-mailed to you

PLEASE E-MAIL ME AT nisla@comcast.net

in the subject line put "Request Newbie Survival Kit"

this is a large file and it's just helpful stuff I have compiled over the past three years. It includes the Delphi list and several Restaurant menus, School supplies, Candy, articles, information that you can print out and share with others to help explain this diet and the reason for it.

If you have a cable modem it will be a fairly quick download, but if you are on dial up, be prepared to let it sit for a while!

disclaimer:

I did not come up with this info all by myself, I've compiled it with the help of other helpful celiacs over the past two years, and it's all been helpful to me. Also, this file is just a guideline, as always you will need to make your own decision on what works for you and what doesn't.

also, it's a zip file so you will need a program like pk unzip to open it... or any program that opens up archived files.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jaten Enthusiast
jaten
Posted

Request has been sent. Golly so many great folks here.

I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

minibabe Contributor
minibabe
Posted
I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

That is all I have recieved.....except from doctors <_<

I love everyone here! It is such an amazing website :D

Amanda NY

Guest nini
Guest nini
Posted
Request has been sent. Golly so many great folks here.

I can see the headlines now.....

Scientists Discover New Symptom of celiac disease: Extreme Kindness & Generosity!

it's my pleasure to help... I relied on the kindess and generosity of others when I was first dx'ed too...

Guest nini
Guest nini
Posted

bump... just in case any newbies haven't seen this...

ebrbetty Rising Star
ebrbetty
Posted

nini...how kind of you..I wish someone offered this to me last month. your always so helpful

Lisa Mentor
Lisa
Posted

:):):) That is really cool. I sure wished that I had that in August. I know that it will be a great help to all the newly diog. Kinda pay it forward. Very cool. Thank you for your time to do this.

Lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 months later...
Chako Apprentice
Chako
Posted

What is the Delphi list?

And would this survival kit be good for a Canadian? :)

Lister Rising Star
Lister
Posted

not a newb but still could be helpfull, i dont need the delphi lists though but anything else is kewl

Guest nini
Guest nini
Posted

Lister, I thought I already sent you this... But maybe it was just the delphi lists... I'll send it again.

What is the Delphi list?

And would this survival kit be good for a Canadian? :)

I suppose so, just e-mail me at nisla@comcast.net and in the subject put "request newbie survival kit" and I'll send it... and you can judge for yourself if it's useful for a Canadian...

Kaycee Collaborator
Kaycee
Posted

Nisla, I am a New Zealander, (have only been diagnosed since February) so not too sure how much of the kit would be useful, but would like to have it sent to me.

The gluten free forum has been a life saver and wonderful to follow, and I am getting to feel I know quite a few of you all.

Your picture is a bit scary, but hey you obviously have a heart of gold. And when I see your picture with your piece of advise it is comforting.

I must admit that when first diagnosed, I thought coeliac would be a piece of cake, and that with everybody saying to watch this and watch that, I thought they were being a bit too severe. But hey, everybody was right, and I do have to be that careful. I never would've thought I would 've been so sensitive. Most of my immediate family have cast iron stomachs, and I was so used to having quite good health, apart from the diahrea. But now I have arrived here to where any little bit of gluten manages to keep me grounded for a few days, it is quite scary.

This sight is proving to me that I am now on the right track for me, trying to eliminate all manufactured products, and start mostly from scratch. I don't need the treats, as they are not always weight friendly, and I do carry a bit of excess weight. But sometimes I tend to push the boundaries, and that is when I get unstuck, and get to know the loo intimately again, but I am determined to get past that.

I'm quite proud to say, last night was my first dining out in a restuarant for a few months, it was my 49th birthday, and I am happy to say, I survived without any reactions what-so-ever, but I did push boundaries, luckily nothing untoward happened.

Thanks again Nisla.

Daxin Explorer
Daxin
Posted

Bump. Do not need the kit. Just trying to help all those other newbies out there who may be looking for answers.

Guest nini
Guest nini
Posted

Kaycee, I got your e-mail, you should have the kit by now... thanks for your comments!

  • 4 weeks later...
Guest nini
Guest nini
Posted

Open Original Shared Link

Attention!!! I now have uploaded the Newbie kit to my website! Click on the above link, scroll down until you see the link for Newbie Survival Kit, you can then just simply download it on your own computer!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...
    2. knitty kitty
      - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms. The tTg IgA antibodies are made in the intestines. While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten...
    3. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

      Thanks, that's a great addition that I hadn't thought of.
    4. trents
      - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    5. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,354
    • Most Online (within 30 mins)
      7,748
    tealangel09
    Newest Member
    tealangel09
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.