Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Meds


RoseNNJ

Recommended Posts

RoseNNJ Apprentice

On my first dr vist, he put me on a perscription for IBS. After he read the results of my blood test, he said Celiac. So I have been gluten-free for about a week and still taking the Perscription. He also gave me one for viatmins. He had me go give some more blood, but my results are not in yet. My question is, should I still be taking the IBS medicine? My Doc is on vacation till next week. It seems to help I had really bad D. I don't know the name of the Perscription off hand, I have it at home.

Thank you!

Everyone here is awesome :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

YES! By all means, take the meds.

I'm trying to wean myself off the antispasmodics, but I've been on the diet only 3 weeks.

jerseyangel Proficient

My dr. gave me a Rx. for Pamine when I was first Dx and told me to take as needed. I took it for about 2 days, and deceided to just go with any cramping I might get while I was healing. I kept it around--still have it--but never took it again.

penguin Community Regular

Really, it depends on how bad your symptoms are. For me, taking the antispasmodics keeps me from being doubled over in pain all of the time. I haven't really needed them as much, though, since starting the diet.

VydorScope Proficient
On my first dr vist, he put me on a perscription for IBS. After he read the results of my blood test, he said Celiac. So I have been gluten-free for about a week and still taking the Perscription. He also gave me one for viatmins. He had me go give some more blood, but my results are not in yet. My question is, should I still be taking the IBS medicine? My Doc is on vacation till next week. It seems to help I had really bad D. I don't know the name of the Perscription off hand, I have it at home.

Thank you!

Everyone here is awesome :D

That is a question you need to discus with your doctor, I would not stop any med until you have talked with him. Its likly with time you will stop that med, but 1 week is probably too soon.

RoseNNJ Apprentice

Hi,

He called last night with the rest of my test results. He is convinced its Celiac. He told me to stop taking the Levsin, but had already taken one before his phone call. I haven't had any bad D. until 3 am this morning. I think it was from the cream cheese I had on rice crackers. I ended up taking Imodium so I could make it to work. I have to make an appointment today for the Biopsy. I just don't even want to eat today. I am so tired of feeling like crap. :(

penguin Community Regular
Hi,

He called last night with the rest of my test results. He is convinced its Celiac. He told me to stop taking the Levsin, but had already taken one before his phone call. I haven't had any bad D. until 3 am this morning. I think it was from the cream cheese I had on rice crackers. I ended up taking Imodium so I could make it to work. I have to make an appointment today for the Biopsy. I just don't even want to eat today. I am so tired of feeling like crap. :(

Do you know why he told you to stop taking the Levsin? I know a lot of people recently diagnosed (self included) take the anti spasmodics on an as needed basis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RoseNNJ Apprentice

He seems to think if I just stay gluten-free I shouldn't have to take the Levsin.

penguin Community Regular
He seems to think if I just stay gluten-free I shouldn't have to take the Levsin.

Personally, I'm still in limbo, and sometimes I need it. One you're gluten-free for a year you shouldn't need them, but the problems don't disappear overnight. Not to go against your doctor, but if you find you're having trouble without them, ask him if you can take them until you're healed and the GI tract is stable.

I've taken levsin, but now I have Bentyl which is every 6 hrs and works for me better on an as needed basis.

RoseNNJ Apprentice

I still haven't taken the Levsin. I am so bloated, my stomach hurts and haven't gone to the bathroom since taking the Imodium. I have my Biopsy next Thursday. Think I will start taking the Levsin again.

Thank you all for listening :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,791
    • Most Online (within 30 mins)
      7,748

    PamelaMayot
    Newest Member
    PamelaMayot
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • thejayland10
      That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else 
    • RMJ
      I don’t know how common it is, but it happens.  Total IgA going up is not necessarily celiac related.  The body can make IgA antibodies against all sort of things.   But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to the normal range? That also can happen, although not too common. Some people with celiac disease do react even to purity protocol certified gluten free oats. Removing oats from your diet for a few months and retesting is probably a good idea.
    • thejayland10
      interesting I did not know that was that common or could take that long.  When I was diagnosed 15 yrs ago I was told just follow gluten-free diet and follow up with primary care doctor (who never checked celiac panel again). I felt way better and all the major symptoms went away. It wasn't until recently at 25 (14 yrs after diagnosis) that I thought to follow up with a gastro doctor who then did a celiac panel and noted those minor elevations 3 months ago then I got them checked again by another doctor the other week and were showing roughly the same thing.  I am very strict with what I eat and dieitican was maybe thinking it could be oat flour. I do eat a fair amount of processed food but I will not touch anything unless it is certified gluten free.  Do you see this pretty commonly with others? Having mild rises in TTG IGA and IGA who have been on gluten-free diet for years? 
    • RMJ
      Do you have any other results from either of the two labs where you’ve been tested recently?  If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range.  I realized that I had started baking with a different brand of gluten free flour.  When I stopped using that flour the level went back to normal.  Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten? 
    • thejayland10
      Thank you for the clarifcation, how can I get to the bottom of this as to why they may be elevated even on a super strict gluten-free diet? 
×
×
  • Create New...