Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hyper Sensitive Tongue?


Moongirl

Recommended Posts

Moongirl Community Regular

I feel like everything I eat my tongue is blistering, i dont know what else to call it, but it looks like circle patches where my taste buds burned off or something. I had a sensitive tongue before like when I ate spicy foods, or even something like a walnut would give me these little things, but recent few weeks its with everything i eat!? Is this something that is common? its really annoying cause i have oil and lemon for dressing last night for my salad and my tongue started burning on the side, and i never before had a problem with lemons/citrus.....ahhhh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

I have always had this with spicy and acidic food. This is still happening. Yesterday my tongue and palate was itchy, but I was having allergies at the same time.

penguin Community Regular

I don't get the tounge thing, but I do get a rash on the inside of my mouth if I eat pecans, walnuts, hazelnuts, chestnuts, dark chocolate, eggplant, and some other random things...

Dr says it's an allergic reaction, my guess is that its the same with your tongue thing.

AmandaD Community Regular

It's called geographic tongue, sometimes.

I've had it for years.

I don't get the tounge thing, but I do get a rash on the inside of my mouth if I eat pecans, walnuts, hazelnuts, chestnuts, dark chocolate, eggplant, and some other random things...

Dr says it's an allergic reaction, my guess is that its the same with your tongue thing.

fritzicurls Rookie

I have always had geographic tongue. My tongue is very sensitive to all that you mention above. Plus, I got glutened on Christmas day and my tongue had two big canker sores on the bottom and was lacerated all across the top. Talk about annoying and painful. A very long week ensued!

fritzicurls

Guest cassidy

For about a week my tongue was very sensitive like that. It does happen when I eat a lot of kiwi, pineapple and strawberries, but it doesn't last that long and I can tell it is because of what I just ate. I don't know what caused it that week or how it went away, but it did.

TCA Contributor

My son had a geographic toungue before going gluten-free, but it looks normal now!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Moongirl Community Regular

iI was just reading up on GT, I guess it is considered to be an auto immune disease, whether its true or not im not sure. Some people mentioned that they even has celiac too.....But I figured thats what I have to except I cant put my finger on what triggered mine this time, cause its sticking around longer then most times.....anyone know what to do to ease this? cause i know u cant cure it..... ;)

prinsessa Contributor

I have had Geographic Tongue for years. Sometimes it doesn't bother me and sometimes it feels like my tongue is has ulcers on it. One strange thing is that wheat bread used to bother me as a child. I told my mom that it made my tongue itch. She thought I was just trying to get out of eating my bread, but she brought it up again when I said I was getting tested for Celiac. Does anyone else get an ichy tongue from eating wheat? I thought wheat just bothered people with Celiac's intestines. Has anyone else heard of this?

mommahawk Newbie

After the birth of my daughter 4 years ago, I all of a sudden developed geographic tongue, as well. I believe that my celiac disease was triggered with her birth, so now I attribute it to part of celiac disease. Mine comes and goes, affected by what I eat (citrus, spicy, sometimes salty?--I can't eat guacamole or kiwi at all), but it seems like it's there most of the time. I've been gluten-free for a week now, so we'll see if it gets any better. When it gets really bad after eating something and it's hurting, I brush my teeth and tongue really well to get the food residue out of my mouth. That seems to soothe it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    2. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    3. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    4. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    5. - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,812
    • Most Online (within 30 mins)
      7,748

    Papa Emeritus 79
    Newest Member
    Papa Emeritus 79
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.