Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do They Give Children Biopsy? Also, Been Glutened ...


frustratedneicey

Recommended Posts

frustratedneicey Apprentice

Hi everyone. My 17-year-old daughter is going to have a "Celiac Panel" run on her today at the lab. Do you know if a child comes up for showing they have Celiac, do they do the biopsy, or do they just recommend they start the diet?

Also, I somehow got glutened and was up at 2 am very very sick, and in horrible pain. I will vomit when I have this intense pain. The doctor says that children with Celiac throw-up and it is unsual for adults, but I am very CLEARLY vomitting when I am glutened. Does anyone else (adult) have really violent vomitting episodes with diarrhea when they are glutened....

Great,,, here I go again, back to another month or two of diarrhea and loud bowel sounds until I heal.

And I STILL don't know what I ate!!!!

Denise


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

it depends on your doctor and the circumstances. 2 of my children had biopsies, the 3rd did not.

christine

penguin Community Regular

Does depend on the Dr. I would say that if you're celiac and your child has positive bloodwork, they'll probably forgo the endo.

On the vomiting, horrible pain, big D and all, yes. I have that, they never could figure out why or what it was. I've always had a sensitive stomach, and I throw up over nothing.

Even as a kid, I would wake up in the middle of the night about once a month, throw up, and go back to bed. Made no sense. Since being an adult, it's about the same, but with horrific pain.

Since I haven't been off gluten very long, I don't know if it's due to glutening or not, but it would make sense. I generally have to take phenergan (not orally :o ) when it happens. It helps a lot.

frustratedneicey Apprentice
Does depend on the Dr. I would say that if you're celiac and your child has positive bloodwork, they'll probably forgo the endo.

On the vomiting, horrible pain, big D and all, yes. I have that, they never could figure out why or what it was. I've always had a sensitive stomach, and I throw up over nothing.

Even as a kid, I would wake up in the middle of the night about once a month, throw up, and go back to bed. Made no sense. Since being an adult, it's about the same, but with horrific pain.

Since I haven't been off gluten very long, I don't know if it's due to glutening or not, but it would make sense. I generally have to take phenergan (not orally :o ) when it happens. It helps a lot.

Thank you. I just called my doctors office and left a message for him to give me a prescription for when this happens. Doesn't happen too much anymore, but ya know how people say you forget the pain of having a baby? well......I remember it well when this happens, it is absolutely unbearable.

Denise

cmom Contributor

Yes, I also had uncontrollable diarrhea and when it reached a certain point, vomiting as well. :ph34r:

mamaw Community Regular

My two grandchildren had the bloodwork done then the four year old had the endo and the colonoscope done. It ended up with one intolerant and the four year old full blown celiac's....

Mother is full blown celiac. I'm intolerant.

We are grateful to find out why our daughter and son were so sick for so long.After an adjustment period all is doing well....

mamaw

celiac3270 Collaborator

Children absolutely have biopsies. Now, if you had a 1-2 yr. old, then one would not have a biopsy, but at that age you couldn't reasonably test through bloodwork, either. I've had three biopsies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

my daughter did not have a biopsy... with me having Celiac and her positive dietary response and the fact that when she gets glutened she reacts horribly, we know she's Celiac as well.

One of my main symptoms before dx was vomiting and diarrhea. I would be in my dr.s office at least once or twice a week with horrible diarrhea and I would even be vomiting in the sink in the dr.s office while I was there. That is one of my first symptoms when I get accidentally glutened... I get D and vomiting at the same time... Very uncomfortable! :blink:

fisharefriendsnotfood Apprentice
Children absolutely have biopsies. Now, if you had a 1-2 yr. old, then one would not have a biopsy, but at that age you couldn't reasonably test through bloodwork, either. I've had three biopsies.

I had one when I was 2.

-Jackie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

    2. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748

    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.