Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Survived!


penguin

Recommended Posts

penguin Community Regular

I hope you all are having a great weekend!

I survived my first gluten-free lock in with my girl scouts! I didn't get glutened!

They all had papa john's pizza, so I brought my own chebe crust & toppings. My co-leader and the parent that were there were good about not making me handle the glutened pizza, or potentially glutened popcorn.

The girls didn't even ask why I had a different pizza :huh:

the funny thing is that when I told the parent I had celiac disease, she looked at me as if my best friend had just died and said, "Oh my God, I am so sorry! That's just awful!"

I was thinking, not so much. You're the one that has to eat the papa john's, and I have my gourmet pesto pizza. Poor me. :rolleyes:;)

I have a feeling the camping trips might prove to be more of a challenge...

How have you guys handled such situations, ie parties, sleepovers with kids, etc?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I haven't had to deal with camping or sleepover situations yet... but last night my daughter went to a Father Daughter dinner dance that was catered, and I talked to the co chair of the event (just so happens she used to work at the daycare my daughter went to, so she's known her since she was a baby) and I got the menu for the dinner and I sent her food with my husband... he delivered her meal to this lady (Sherry) and she made sure that she served my daughter herself, at the appropriate time and put her meal on a pretty plate like everyone elses! My daughter felt so special and no one else noticed that she wasn't having the same thing, because it looked close enough! I love it when a plan comes together like that!

jerseyangel Proficient

Nini--what a sweet story :) . I'm so happy that she felt 'normal' and you all should be so proud that it all happened the way it did. I'm sure your daughter will remember the Father/Daughter Dance for the rest of her life.

Guest nini

I hope so! I'm just glad she had a good time and that the food was not the focus of the evening, and she didn't have to worry about it! I heard from her daddy that at one point she was dancing with her friends and some other dads were commenting on how they could really dance! (my daughter has taken dance since she was 3...)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,173
    • Most Online (within 30 mins)
      7,748

    D Luck
    Newest Member
    D Luck
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...