Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Do I Keeping Doing This?


CMCM

Recommended Posts

CMCM Rising Star

OK, I've had the tests, I know I should be totally gluten and dairy free. So I eat properly for awhile, and then I feel so much better that I break down and eat something with wheat. Like last night I stupidly bought a Sarah Lee pecan coffee cake and ate 4 small pieces of it. I knew I'd have trouble but I did it anyway. Three hours later I was in horrible pain and felt terrible, then woke up in the middle of the night from the continuing pain. Overall, the pains lasted for 5 or more hours. I feel better today, but just barely and I feel yucky.

I generally seem more motivated to stay away from dairy because my reactions to it are really extreme...guarajnteed to have lots of D and cramping and a sick feeling, plus a strong return of my asthma/coughing symptoms. With gluten it's really varied....can be D and sick and dizzy, but more often it's hours of stomach pain of varying degrees of severity and a tendency towards C rather than D.

Do any of you break down like this? I don't know why I keep testing myself with gluten....it's stupid, and I know it is. I don't know how so many of you stay so true to the diet. Every time I'm in the middle of a reaction I promise myself never again, I don't want to feel like this again, I'll be good, but then when I'm feeling well and having no symptoms I get tempted and I'll think that maybe I will get away with it this time.

This is such an aggravating and insidious and often weird condition. I wish it were more clear-cut. With my mom, it is. Even with a tiny amount of hidden gluten she gets sooooo violently ill, and she truly has no desire to ever cheat. But with me, not being that extreme, I'm not as strong with the dedication to the diet. What gives here, what can I do to get my head around all this??? :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I think the only one who can answer the question of why you do it is you. I'm sure my psychologist would have lots of good leading questions to help you figure out why you do this (it is a form of self-destructive behavior, they're good at asking questions about that stuff), but I don't remember most of the ones she used for me for other things. Maybe it's rebellion? Denial? Frustration? How are you *feeling*, mentally, when you make these choices, about the diet?

penguin Community Regular

I don't get the desire to cheat, but I do go to the grocery store and in the middle of reading a label with questionable ingredients, I think, "oh well, if there's just a little bit it won't hurt me"...

...and then I snap back, put it down, and realize that this is how I know I feel better, when I'm tempted to eat something I shouldn't.

I honestly don't miss anything, which *really* surprises me. I realized I didn't eat a whole lot of gluten anyway.

I take that back, I miss eating out without worry. I'm still shy about it...

Consider your desire to cheat a sign of healing! You feel better and feel invincible, so you do something you shouldn't. Just have someone smack you when you get that kind of urge :P

CMCM Rising Star

Hmmm....how do I feel? Well, I think denial is one aspect of it. I got the tests so I'd know for sure. And now that I know I'm trying to ignore what I know! I spent my childhood with a celiac mom, although she was finally diagnosed around the time I got married, in 1969 so my childhood was spent sort of observing her symptoms, although kids are kind of oblivious to these things anyway. But I spent my years after that never thinking about the possibility I might have celiac becacuse, after all, I wasn't losing weight like she did, so how could I have it? I thought I had skated on that one! But now that I know as sure as I can know without having a biopsy, I guess I'm still sort of in denial about the absolute need to avoid gluten, especially since my test showed no malabsorption going on, and I sort of think well, I'm 56 and after all these years I still don't have malabsorption, so maybe it's not as serious with me, maybe it's just annoying symptoms. And I don't ALWAYS get the same symptoms...sometimes the reaction is almost nothing, sometimes it's bad. So I'm kind of left in limbo with how to view this, given the confusing nature of celiac in the first place.

Now how about rebellion....I suppose that could be part of it too. A subconscious insistence of challenging this whole thing..."See....I can eat this, I didn't react this time, I beat it this time, so maybe it's not such a problem after all."

I don't know...it's stupid and I know I'm too smart to behave like this, but it's hard because I've always enjoyed indulging myself with food, especially to feel better. My husband is sympathetic and understands this to a degree, but he hasn't done the reading I've done and I'm not a person who likes others to know I feel sick etc., I don't thrive on that like some people do (my mom, for one!!), so I don't say a whole lot about it most of the time. And then he'll buy stuff or half encourage me to indulge in something, or at the very least, he doesn't encourage me to NOT eat something I shouldn't. Both he AND my mom of all people said this....that perhaps I can get away with eating gluten occasionally, that the whole thing is no more than just temporary inconvenience. And maybe that really is all that it is for me...who knows?

Maybe I'd feel more "directed" and purposeful if things were more clear with celiac and gluten sensitivity and what you absolutely should or should not do.

I suppose overall, since I got my diagnosis a month ago, I've been denying and rebelling the outcome.

Lollie Enthusiast

Just a thought I have:

Do you feel like you deserve to have the pain if you cheat? I ask this because sometimes, I chose to do things that I know will make me sick and cause me pain.....I deserve it. I know it is not at all healthy but I am working on it and through it. My problem is a weight issue, from way back when I could actually gain weight.

So I guess, when I read your post I got the feeling that you might be trying to punish your self for some reason. Sorry if this throws it way off-I mean if I'm totally off the mark. I just want to try to help! And I would say that 5 hours of pain all through the night, was not a particularly weak response to gluten. It sounds like no fun at all!

Hope you are feeling better!

Lollie

tarnalberry Community Regular
... but it's hard because I've always enjoyed indulging myself with food, especially to feel better.

While I find 'food as reward' to be generally a bad thing for me, you can do this even with gluten free food, you just have to find what your gluten free reward is. You wouldn't go eat some arsnic as an indulgence; gluten's the same way. (It only doesn't *seem* that way because everyone around you is eating it and you used to eat it.) Like chocolate? Ok, then indulge in chocolate - straight up, hot cocoa, flourless cake, ice cream, pudding, etc. Like garlic bread? Ok, then make garlic bread, but find a gluten-free bread (or bread recipe) that you like to make it from. There are plenty of things out there to indulge in, that are still perfectly safe. But the mental process of switching your reward trigger to those may take some time.

skoki-mom Explorer

I use food for comfort. Not a great habit, but hey, it's the truth. I indulge in the stuff I can still have. I confess I ate ice cream and chocolate sauce for breakfast today (it's not a habit, I've never done it before, I just needed it today because I would have cut my right arm off for a piece of toast). I put real butter on my popcorn. I eat chocolate every single day, no word of a lie, I always did. I guess I figure if the Celiac won't kill me I should just go for a heart attack..........

No really, I can't answer why you do what you do. I have often wished to just say to hell with it and go have a hamburger, but I don't want to be self-destructive I guess, so I don't do it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I can't tell you why you do it... I only know why I don't. In my mind gluten equals POISON pure and simple. I wouldn't willingly ingest even a small amount of poison, so why would I ingest gluten? the longer I am gluten free the stronger my reactions get to microscopic accidental glutenings from cross contamination. I think part of your answer is that you are still so new to this. In the beginning I made a few mistakes and ate some things that were questionable at best but I didn't care. I was angry at the world and DAMMIT I wanted a goodie!

Well, As I've gone along I've discovered some amazing gluten-free comfort foods, my most recent discovery is 123 Gluten Free's Muffin and Quick Bread Mix, adding 3 over ripe bananas to this makes the most amazing banana bread... I made 8 small loaves and froze them, heated one up in the microwave this morning with REAL BUTTER melted on it and OMG it was the most amazing thing I've put in my mouth in a while.

Then this afternoon I just HAD to have cotton candy, so I got Fluffy Stuff and pigged out. Hey, it's gluten free, who cares what else in it is bad for me! LOL

penguin Community Regular
Then this afternoon I just HAD to have cotton candy, so I got Fluffy Stuff and pigged out. Hey, it's gluten free, who cares what else in it is bad for me! LOL

Can't be a health nut all the time ;)

CMCM Rising Star
I can't tell you why you do it... I only know why I don't. In my mind gluten equals POISON pure and simple. I wouldn't willingly ingest even a small amount of poison, so why would I ingest gluten? the longer I am gluten free the stronger my reactions get to microscopic accidental glutenings from cross contamination. I think part of your answer is that you are still so new to this. In the beginning I made a few mistakes and ate some things that were questionable at best but I didn't care. I was angry at the world and DAMMIT I wanted a goodie!

Well, As I've gone along I've discovered some amazing gluten-free comfort foods, my most recent discovery is 123 Gluten Free's Muffin and Quick Bread Mix, adding 3 over ripe bananas to this makes the most amazing banana bread... I made 8 small loaves and froze them, heated one up in the microwave this morning with REAL BUTTER melted on it and OMG it was the most amazing thing I've put in my mouth in a while.

Then this afternoon I just HAD to have cotton candy, so I got Fluffy Stuff and pigged out. Hey, it's gluten free, who cares what else in it is bad for me! LOL

YUM....I LOVE banana bread. I don't think I've seen those mixes you mentioned. How do you make it...just a regular muffin recipe on the box or something, and then add the bananas? You don't have to do anything to compensate for the extra moisture from the bananas? I used to make banana bread which had almond flavoring and some coconut....to die for! I'd love to find a decent substitute!

I guess I need to imprint the POISON idea more firmly in my brain. I actually sort of feel that with dairy, which for me is almost worse reaction-wise than gluten. I've passed up without much regret two of my absolute favorite things: cheesecake and creme brulee. And my wonderful home cappuccinos (I got a real Italian cappuccino machine last August...boo hoo). This gluten thing is all the harder and it's a double whammy for me having to avoid BOTH gluten and dairy....and to some extent soy as well. Takes a lot of the fun out of eating.

All my life until maybe 15 years ago I could eat any amount of junk I wanted and never gain a pound...I had/have a terrible sweet tooth, so it's just hard to give up all my sweet goodies. I've been consoling myself lately with Van's blueberry gluten free waffles with Butterworth sugar free syrup. These waffles aren't half bad.....my husband ate one and didn't even realize they were gluten free or anything. The blueberries liven up the flavor and these are better than the plain ones.

Guest nini

Open Original Shared Link

I got the "Meridith's Marvelous Muffin/Quickbread Mix" and just followed the instructions for adding the bananas on the bag... It says to use 3 over ripe bananas, when my bananas get over ripe or "dead" I peel them and stick them in ziplock freezer bags in the freezer. Then I just thawed them out and used them in the mix. It does make a very thick mix, but it rises A BUNCH! So just follow the instructions on the bag and you should be just fine.

I found these at my local health food store, but you can order them from their site. I also LOVE the Southern Glory Biscuit mix and the Aaron's Dinner Rolls and the Buckwheat Pancakes... actually everything I've had by this company is delicious!

just a side note, on the testimonial's page of their web site, towards the bottom is my comment! "Nisla, Marietta, GA" LOL!!!

jenvan Collaborator

As Tiffany mentioned...I would try to find some good gluten-free sweet treats and switch to those. I have honestly never been tempted to cheat...and if I was, I would just picture potential intestinal lymphoma and how that is nearly always is fatal and of course, miserable. Sounds morbid...but for some the fear of death is a good motivator! Not that that should be the only or permanent motivation—b/c eventually that could become dysfunctional too. I don't know your history--do you have Celiac or is it gluten intolerance? It is hard for people to stay motivated when the fruits of their labors (or consequences) are unseen. For me, taking the focus off of food, cultivating discipline and finding good food replacements that feel like splurges or treats has helped... Oh, and how about asking some friends, family to keep you accountable? Good luck!

Nancym Enthusiast

Gluten does to us what heroin does to a heroin addict.

You've got to break off all ties to your drug, whatever it is.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748

    Travis25
    Newest Member
    Travis25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.