Ataxia from Gluten ?

[Celiawithceliac]

On 6/13/2020 at 4:29 PM, DJFL77I said:

How long does it take to see any kind of Ataxia symptoms from Gluten Allergy if you keep eating Gluten?        Years?  months?

It took me 15 years to have ataxia. 
my ataxia went away after 4 months on grain and dairy free lifestyle! 

[DebJ14]

My gluten ataxia showed some improvement after the first year on a gluten-free diet, but it is still there 13 years later.  I call it my tilt.  I definitely tend to fall over to one side when walking.  As a result, I always need someone walk on the curb side while out walking so that I do not tilt into the street. If I can't find a buddy to walk with me, I don't go.  I have too often come home scraped up from my falls.  I nearly got hit by a car once, which is what convinced me to never go out alone. 

 My doctor said that the damage is most likely permanent because I was not diagnosed until I was 54 in spite of having multiple symptoms of issues with gluten from early childhood onward.

[Headcloud]

On 6/25/2020 at 10:34 PM, trents said:

Have any studies been done on the actual effect on Celiacs of exposure to gluten transdermally? I could be very wrong but it strikes me that this might be an unfounded fear as long as hands are washed after application and it is kept away from the lips and the mouth.

I have been wondering this myself, as I have recently been getting dermatitis herpetiformis outbreaks, and the only thing I’m aware of that it could be from is my rabbits litter, which I just learned has wheat in it. Unless somehow I am inhaling dust from it. I’m going to have to switch them to the paper kind. I think I’ve become so sensitive that I cannot even be in the house that has any kind of gluten products and it whatsoever. And now I have to check My shampoo, conditioner, body wash, shaving cream, etc.

[Headcloud]

On 6/13/2020 at 4:29 PM, DJFL77I said:

How long does it take to see any kind of Ataxia symptoms from Gluten Allergy if you keep eating Gluten?        Years?  months?

Well first of all there’s no such thing as a gluten allergy. There is a wheat allergy. Celiac disease is an autoimmune disease triggered by gluten, and then there is non-celiac gluten intolerance which could have the same symptoms of celiac disease. I think gluten ataxia can be a symptom of celiac and or gluten intolerance, or maybe even its own unique disease. I get that also very severely as a reaction but I also get dermatitis herpetiformis, severe peripheral edema, neuropathy, joint pain, migraines, and occasional IBS. A wheat allergy would cause anaphylaxis. I have no idea how long it takes, because it took  years of the symptoms gradually accumulating before my doctors finally narrowed it down and figured out it was gluten. Have you been tested for the gene? Why would you want to continue eating gluten if you have celiac disease or gluten sensitivity? Doing so will likely shorten your lifespan by 20 - 25 years