Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having Bowel Problems.....

Lollie

By Lollie
in Coping with Celiac Disease

Recommended Posts

Lollie Enthusiast
Lollie
Posted

Hey every one! I have a question about poop......only here would I feel comfortable about talking about that! :P

Okay, so here goes. I have C for like 3 or 4 days, then I'll start going, which is a relief. But then I go and go and can't stop. Lot's of bulk and truly, I can't believe that much could be in me in the first place! :blink: Then I go again to the C. I have quite a bit of pain with this process, needless to say. And it happens every week. I am never regular. I started probiotics a week ago and they seemed to help, but then I 'm doing this again today. I can't leave my house because I have a 3 and 5 year old and going to public restrooms with them in tow is not my idea of fun. ;)

Anyway, I just wanted to know if anyone else has this problem. I have been gluten-free for 2 months. Prior to gluten-free I had horrible D alot. Every thing would go straight through. Now I have this? Please tell me if this will ever straighten out or if I have to just pick the lessor of two evils!

Thanks!

Lollie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

I have similar problems. My only regularity is that I always cramp first thing in the morning. I think my body's in a routine, because half the time, not a whole lot happens. :blink:

Then I'll approach a normal bm and then have D the rest of the day. I think my body's trying :unsure:

My guess is that you'll straighten out once your body knows what to do with a functional digestive tract :blink: I think it's confused ;)

Hang in there, and keep the immodium handy! :)

francelajoie Explorer
francelajoie
Posted

My doctor suggested Revitalx to speed up the normal bowel movement process. Was feeling good the next day. Took it for a month. Now, I am completely back to normal.

Judyin Philly Enthusiast
Judyin Philly
Posted

Lollie--aren't you going away this weekend?

Hope your still going..

judy

Lollie Enthusiast
Lollie
Posted
  • Author

Thanks everyone! I think I might try the Rivatalx. Was it a prescription, or can I buy it over the counter?

Judy, Yeah, I'm still going, I won't be held back by this crumby disease! And besides I always feel better once I get to my beloved ocean!

Thanks again!

Lollie

Judyin Philly Enthusiast
Judyin Philly
Posted
Thanks everyone! I think I might try the Rivatalx. Was it a prescription, or can I buy it over the counter?

Judy, Yeah, I'm still going, I won't be held back by this crumby disease! And besides I always feel better once I get to my beloved ocean!

Thanks again!

Lollie

KNOW THE FEELING, LOLLIE..GLAD YOUR GOING.

MEANT TO ASK YOU IF YOU'VE READ MY FAVORITE BOOK.

'A GIFT FROM THE SEA' ANN MORROW LINBURG? HAVE BEEN READING IT ONCE A YEAR SINCE 1965..BET YOU WEREN'T EVEN BORN YET. :lol:

HAVE A GREAT SAFE HAPPY HEALTHY TRIP.

JUDY

Lollie Enthusiast
Lollie
Posted
  • Author
KNOW THE FEELING, LOLLIE..GLAD YOUR GOING.

MEANT TO ASK YOU IF YOU'VE READ MY FAVORITE BOOK.

'A GIFT FROM THE SEA' ANN MORROW LINBURG? HAVE BEEN READING IT ONCE A YEAR SINCE 1965..BET YOU WEREN'T EVEN BORN YET. :lol:

HAVE A GREAT SAFE HAPPY HEALTHY TRIP.

JUDY

Thanks Judy! You too! B)

I haven't read it but I will now! I love books about the sea!

We're off-

Lollie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BamBam Community Regular
BamBam
Posted

You may want to consider giving up dairy for awhile, I always thought I was just lactose intolerant, so I drank lactose free milk, ate yogurt constantly. I had horrible constipation/irregularity going maybe once or twice in a week. A friend on the board, Jenvan, suggested I give up all dairy products, the ingredient "casein" which is a milk protein can cause constipation. I gave that up about a month ago and have been going three or four times a week, and usually never more than once a day and so far so good, no diarrhea. I still have to get over the "thinking about it all the time." My system has been so upset for the last 12 years, off and on, I don't know what a normal bowel system is like. So I hope in time I can stop thinking about when I am going to go all the time, and get back to my life.

Bam

paw Apprentice
paw
Posted

I was like that too and I read that Magnesium can help soften and ease constipation. I got Nature Made Magnesium 250 mg and take one daily. It is gluten-free. Sometimes if I am having too much C I will take an extra 1/2 tablet (they split easily). Even 1 1/2 tablets is within the RDA for this mineral. I talked to my GI doctor and he offered me Zelnorm for IBS with constipation (EXPENSIVE!), but he agreed that the Magnesium will do the same thing for a lot less money. It is not prescription and it is easy to find.

It takes your body a week or so to adjust to the new mineral, and you need to be prepared for possible D while you get used to it. I have read about people here who use much more Magnesium than I take. I suggest you talk to your doctor to make sure it is ok for you, and start slowly and increase the dosage if necessary.

Since I started this in Sept, I have soft BMs that are more frequent. It is not unusual to have several in a day. They are not D. I realized I don't know what "normal" is. Also, make sure you drink enough water. Doc told me to use Metamucil too and I have been doing that along with the Magnesium. If I miss a Magnesium, I can tell the next day. I don't notice if I miss a dose of Metamucil, but I try to get some daily.

Good luck getting things working properly.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
    2. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
    3. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations...
    4. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @knitty kitty are you kidding? I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found...
    5. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before. I think maybe the thrush made it worse, I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748
    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.