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Going gluten-free

chrissy

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chrissy Collaborator
chrissy
Posted

i finally took the plunge and have gone gluten free with my kids. today is day 4 for me. i don't know about my meds yet, though. i still have to call and check on them. i would love it if going gluten-free could make enough of a difference that i could quit taking alot of my meds. i wish i could say that i was miraculously feeling better already, but time will tell.

christine

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Rusla Enthusiast
Rusla
Posted

I am sure you are on the right step. Are you the one with the stubborn son? If so, has he come around yet?

Becky6 Enthusiast
Becky6
Posted

I started to notice little things after a few days. Like after 2 days I realized that my stomach was a lot quieter than usual. And within 2 weeks I could not believe how badly my stomach had hurt everyday! My neuropathy took 2-3 weeks to subside a bit as well as for the joint pain. I hope this is the answer to you feeling better!!

penguin Community Regular
penguin
Posted

It's a lot like a toothache, you don't realize how much it hurts until it's gone...

...and then you do something dumb and it reminds you that, dangit that hurt! :rolleyes:

celiacsmom Rookie
celiacsmom
Posted

Good for you! You can do it & I'm sure you'll be feeling great soon!

chrissy Collaborator
chrissy
Posted
  • Author

yep, i'm the one with the stubborn son. once i get my family in the celiac study, he is willing to get tested since it won't be costing him anything.

christine

heli Newbie
heli
Posted

Most meds are gluten free these days, however many are bound with cornstarch and corn is in the same grass family as wheat, barley, rye. I personally have a huge reaction to all corn products. But to encourage you, over about 14 months I was able to eliminate all 12 daily medications.

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2Boys4Me Enthusiast
2Boys4Me
Posted
yep, i'm the one with the stubborn son. once i get my family in the celiac study, he is willing to get tested since it won't be costing him anything.

christine

What study? Can you give us more info?

chrissy Collaborator
chrissy
Posted
  • Author

it is a study on celiac at the university of california, irvine. it is open to families with 2 or more members diagnosed with celiac or DH by either biopsy, positive Ttg, EMA, or positive skin biopsy. i found a link to the study from a post on this board----but i can't remember who posted it, or what the thread was about. the woman i have been in contact with is maryam mousavi. they will do antibody testing and gene testing on our immediate family, and, if i understood correctly, they will test other family members that show symptoms. we have 4 older children that have not been tested yet, so it will be great to be able to not have to "convince" them to go pay to test for a disease they may or may not have. if you live in utah or california, they will have someone come to your home to draw blood. we live in idaho, so they will send us a kit to take to our hospital or dr's office to have blood drawn. kevin and i both come from larger families, and our children are "your's, mine, and our's" so i will be interested to see which of us (or both) carry the gene for celiac. our 3 children with celiac are children we have had together. another interesting thing that might come in to play-------when i was looking at some geneology, i discovered that quite a few generations back, (in germany) our family lines cross. weird, huh?----especially since he was born in idaho and i was born in louisiana---what are the chances?!

christine

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    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
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