Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going gluten-free

chrissy

Recommended Posts

chrissy Collaborator
chrissy
Posted

i finally took the plunge and have gone gluten free with my kids. today is day 4 for me. i don't know about my meds yet, though. i still have to call and check on them. i would love it if going gluten-free could make enough of a difference that i could quit taking alot of my meds. i wish i could say that i was miraculously feeling better already, but time will tell.

christine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

I am sure you are on the right step. Are you the one with the stubborn son? If so, has he come around yet?

Becky6 Enthusiast
Becky6
Posted

I started to notice little things after a few days. Like after 2 days I realized that my stomach was a lot quieter than usual. And within 2 weeks I could not believe how badly my stomach had hurt everyday! My neuropathy took 2-3 weeks to subside a bit as well as for the joint pain. I hope this is the answer to you feeling better!!

penguin Community Regular
penguin
Posted

It's a lot like a toothache, you don't realize how much it hurts until it's gone...

...and then you do something dumb and it reminds you that, dangit that hurt! :rolleyes:

celiacsmom Rookie
celiacsmom
Posted

Good for you! You can do it & I'm sure you'll be feeling great soon!

chrissy Collaborator
chrissy
Posted
  • Author

yep, i'm the one with the stubborn son. once i get my family in the celiac study, he is willing to get tested since it won't be costing him anything.

christine

heli Newbie
heli
Posted

Most meds are gluten free these days, however many are bound with cornstarch and corn is in the same grass family as wheat, barley, rye. I personally have a huge reaction to all corn products. But to encourage you, over about 14 months I was able to eliminate all 12 daily medications.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2Boys4Me Enthusiast
2Boys4Me
Posted
yep, i'm the one with the stubborn son. once i get my family in the celiac study, he is willing to get tested since it won't be costing him anything.

christine

What study? Can you give us more info?

chrissy Collaborator
chrissy
Posted
  • Author

it is a study on celiac at the university of california, irvine. it is open to families with 2 or more members diagnosed with celiac or DH by either biopsy, positive Ttg, EMA, or positive skin biopsy. i found a link to the study from a post on this board----but i can't remember who posted it, or what the thread was about. the woman i have been in contact with is maryam mousavi. they will do antibody testing and gene testing on our immediate family, and, if i understood correctly, they will test other family members that show symptoms. we have 4 older children that have not been tested yet, so it will be great to be able to not have to "convince" them to go pay to test for a disease they may or may not have. if you live in utah or california, they will have someone come to your home to draw blood. we live in idaho, so they will send us a kit to take to our hospital or dr's office to have blood drawn. kevin and i both come from larger families, and our children are "your's, mine, and our's" so i will be interested to see which of us (or both) carry the gene for celiac. our 3 children with celiac are children we have had together. another interesting thing that might come in to play-------when i was looking at some geneology, i discovered that quite a few generations back, (in germany) our family lines cross. weird, huh?----especially since he was born in idaho and i was born in louisiana---what are the chances?!

christine

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,668
    • Most Online (within 30 mins)
      7,748
    CDR40
    Newest Member
    CDR40
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.