Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Jenvan-another Question


BamBam

Recommended Posts

BamBam Community Regular

Is all casein the same? I understand giving up the yogurt being a dairy product.

I was wondering if the rice cheeses are the same thing. I know they have a casein in them

but is it the same as the casein in milk products? I really miss my rice cheese.

BamBam


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heli Newbie

CASEIN - "the principal protein in milk." When coagulated by rennin or acid it becomes one of the principal ingredients of cheese. So, casein is the name for the amino acid sequence of protein in milk. In the case of your rice cheese, the company probably went as far as they could with rice and then added the casein to complete the process. So, casein is always casein, a protein derived from milk.

jenvan Collaborator

Yes, Bernadette--it is the same, no matter what it ends up in :( or in what amount. It is really good to hear from you again!! Have things continued to improve or at least stayed better ? What do you like to use your cheeses in? Just eating them plain or on pizza or ? Maybe I can try and help you find some alternative ideas that may make you miss cheese just a little little bit less... I know it can be hard. I really don't miss it as much now since I haven't eaten it in such a long time. It's hard in the moment, but worth it! (How was your birthday ?)

BamBam Community Regular
Yes, Bernadette--it is the same, no matter what it ends up in :( or in what amount. It is really good to hear from you again!! Have things continued to improve or at least stayed better ? What do you like to use your cheeses in? Just eating them plain or on pizza or ? Maybe I can try and help you find some alternative ideas that may make you miss cheese just a little little bit less... I know it can be hard. I really don't miss it as much now since I haven't eaten it in such a long time. It's hard in the moment, but worth it! (How was your birthday ?)

I like to make a spaghetti bake with noodles, sauce, hamburger and cheese on top. I never ate it as a snack, I've always used it in recipes. I love pizza, but I think I got that figured out with that Chreese powdered stuff, if you use enough other stuff, I don't taste the odd flavor of it. It is like a spreadable cheese. I guess I could try that on my spaghetti bake, it is just not like melted cheese.

I am feeling a whole lot better these days. I've been going to the bathroom almost every day now, and so normal it almost makes me scared! I have not known what a normal GI/bowel system should act like for the last 12 years or so. I know I have had good days here and there, but I want my life back! I miss all the fun stuff I used to do. I pretty much stopped doing everything cause I felt so off all the time. But I've had like almost 30 days good, and that is amazing for me!

My birthday was awesome. I had a nagging cold/flu hanging on, but we went to a steakhouse in a little neighboring town. My husband made me chocolate brownies (he eats gluten free also) and he even took my vanilla frozen rice dream. There were black balloons and I think there was close to 20 people there. Lots of fun! He bought me an oak jewelry cupboard that has a full length mirror on the front. I can put all my jewelry on the inside, instead of having jewely all over the place. It is just gorgeous. Jen, thanks for all your help the past few months. My sisters just don't understand that food can play an awful role in what happens on your insides, they are so busy blaming the depression or stress or whatever else is going on in my life. And yes, I have boughts of depression and stress, and so do a lot of other people. But I am a firm believer that what we eat causes 90% of whatever happens otherwise. I keep you in our prayers of thanksgiving every week!

BamBam

jenvan Collaborator
But I've had like almost 30 days good, and that is amazing for me!

Bernadette--You have no idea how happy that makes me feel to hear it! I will continue to pray for sustained improvement!

I have never tried the chreese stuff, I might have to give it a whirl sometime :) I used to do a pasta bake like that too... For me, adding good spices and other things like vegetables helps me replace cheese...or forget about it some :) On sandwiches I use miracle whip and a flavorful horshradish dressing in stead of cheese--great flavor keeps it interesting for me. For pizza, a good thick sauce with plenty of spice and lots of vegetables and meat help. My dh and I didn't eat a lot of dairy really. Mostly our meals are a meat, some veggies and sometimes a rice or quinoa. I don't miss milk on my cereal and really enjoy the rice milk now, although I don't drink it straight in a glass.

Anywho, enough blabbing. So good to hear from you and wonderful about how you're doing! Sounds like your husband threw you a great birthday! His care for you has really shown over the past several months...

PS--You are doing so great and sticking with the diet now!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.