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Late gluten sensitivity

Chris Simmons
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Chris Simmons Rookie
Chris Simmons
Posted

Have struggled with neuropathy for 8 years—no known cause—doctor had me do stool test thru enterlab—Fecal Anti-glossing lgA showed 11 units(normal less than 10—no normal symptoms for this whatsoever—also HLA-DQB1*02:01 & HLA-DQB1*06:03—again no normal gluten symptoms—Fecal Fat Score 1428(way high)—can this cause peripheral neuropathy?

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cyclinglady Grand Master
cyclinglady
Posted
(edited)

Those lab tests are not recognized by celiac disease research centers.  Consider getting the standard blood tests as recommended by the American Gastroenterologists Association.   
 

https://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

The genes?  More than 30% of the population ( that is a lot of people)  carries the genes for celiac disease, but only a few actually develop celiac disease.  Gene testing is to help rule out the possibility of developing celiac disease but not to diagnose.  
 

Neuropathies can be due to many illnesses.  Celiac disease is systemic and has over 200 symptoms.  Problem is those symptoms can overlap with so many illnesses.  Best to get tested.  The real tests.  
 

 

Edited by cyclinglady
Scott Adams Grand Master
Scott Adams
Posted

Peripheral nephropathy is a symptom of untreated celiac disease, as is high fecal fat content, and both can be caused by other things. It would be worth getting a blood test, and in or to do this you need to keep eating gluten daily until all testing is completed. There are also home test kits now available if you can't get this through your doctor presently. More info on the blood tests:

 Also, regarding the stool test you did, there is growing research that shows that certain antibodies will appear in your gut/stool before they show up in your blood. Unfortunately stool tests are not widely accepted as a method of diagnosing celiac disease. Here is some resent research on this that you may find interesting:

 

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