Positive Ttg Iga test after years gluten-free

[cyclinglady]

8 minutes ago, GINAGF said:

I'm using the 20mg tablets. See picture below.

She said do no take anything with a starch listed until it can be confirmed it came from potato or corn. If you can't confirm it don't take it.

Meds should have an ndc code on it. She said to go to www.dailymed.nlm.nih.gov and type in that code to verify the source of the starch or to see a listing of the ingredients and where they are derived from.

That website is invaluable.  I used it when hubby was having surgery.  I looked up every med. the nurses were so good about it.  The problem is hospitals use genetic and they literally can change suppliers daily.  Luckily, that NDC code  is printed on those tiny single dose packages.  

 Wouldn’t it be nice if OTC and prescriptions drugs were easy to buy like food?  No worries or jumping through hoops to confirm if the product is gluten free?  I know the pandemic is going on, but we need to push to get the bill passed that is hanging around in Congress.  I need to follow up on that bill.

 

 

Edited July 23, 2020 by cyclinglady

[Posterboy]

10 hours ago, GINAGF said:

My amazing pharmacist sat down with me yesterday and showed me how to look up my meds and ingredients to look for. Not only was the acid reducer not gluten free but neither was the Tylenol in my cabinet. However I take Tylenol infrequently. Turns out store brands like Walmart, target, and CVS are more often gluten free. I picked up a bottle of pepcid of the walmart equate brand yesterday. It said gluten free right on the box. 

I don't take a lot of medication except vitamins which I know are gluten free, so I feel disappointed in myself that I wasn't more diligent with the over the counter meds. This is not my first year as a Celiac and I should have known better. 

GINAGF,

It sounds like you have found your trigger.

If your Ttg levels continue to be up or even rise after making this adjustment  in you medications you might have them check your ANA levels too.....You might have developed a 2nd Auto-immune disease.

Here is a nice article to have in your back pocket if your Ttg levels continue to be elevated after you have made a change in your medicine(s)...

https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/

I had completely forgotten (because I didn't have another follow test) but I had a bad reaction to medicine (I have had several really)....but I started having trouble with Dairy again....so I knew something was wrong...

Turns out my BP medicine was causing my Villi to be blunted again.

Here is the thread on it....after I changed my BP medicine....I was able to add dairy back again.

I am glad you figured out what could be causing it.

I hope this is helpful but it is not medical advise.

Posterboy

[cyclinglady]

5 minutes ago, Posterboy said:

GINAGF,

It sounds like you have found your trigger.

If your Ttg levels continue to be up or even rise after making this adjustment  in you medications you might have them check your ANA levels too.....You might have developed a 2nd Auto-immune disease.

Here is a nice article to have in your back pocket if your Ttg levels continue to be elevated after you have made a change in your medicine(s)...

https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/

I had completely forgotten (because I didn't have another follow test) but I had a bad reaction to medicine (I have had several really)....but I started having trouble with Dairy again....so I knew something was wrong...

Turns out my BP medicine was causing my Villi to be blunted again.

Here is the thread on it....after I changed my BP medicine....I was able to add dairy back again.

I am glad you figured out what could be causing it.

I hope this is helpful but it is not medical advise.

Posterboy

Great info, PB!  😊. I recall the Blood pressure medicine fiasco.  Every drug, even OTC can have unwanted side effects.  

[Posterboy]

21 hours ago, cyclinglady said:

@Posterboy

What?  Nothing in the two links in your response to Trents, indicates that SIBO can cause an elevated TTG.  We already know that SIBO is often linked with celiac disease and that it can cause small intestinal damage.  Over a dozen things can damage small intestinal villi.  You need to respond to the OP (Original Poster’s) question and not discuss a topic that is of interest to you (though I have been guilty of going off topic plenty of times).  😆
 

That Celiac.com article is way too old to be of value (2004).   Look for current 2020 research (or at least within five years).  My daughter would get a scolding and a bad grade for using old research from her teachers.  Medical science is changing rapidly.   Practically daily as evidenced by COVID-19.  Stay current and keep it applicable.  Otherwise, your posts are confusing. 😊

Again, the OP just wanted to know why her TTG is elevated after being normal for years.  She is getting an endoscopy which should help determine what is going on.  
 

Cycylinglady,

The BMJ article I cited was from 2014 and updated the split(s) to show it was more like 50/50 SIBO and Celiac disease.

Sometimes more recent studies are not available....but I did quote the latest I could find on it...

It is kind of like title insurance.....do you want your Mortage company only to certify your house back 10 years or go back 30 or 40 years to verify their are no other liens on your house.

There is a notable property in my town that recently was in the news due to deed restrictions....originally gifted for the purpose for "a community benefit to be used as a Library" but since the city wanted to sell it  to developers'.....it violated the deed restriction and the property sale was halted....at least till the Lawyers can figure out a peaceable solution to moving forward without forfeiting the money...

So far the  Library Clause has keep the property from being sold.....it is in litigation....at least until a suitable price can be negotiated that will let them settle and proceed with the sale as originally planned.

While "old deed restrictions" can be ignored for a while...at least to a sale takes  place....the will eventually hold up the best of intentions...

And that is how I view good "Old Research" .....people will/can ignore it (and often do) till it conflicts with people's profit motive....

All the newer research is strictly about "Medicines" replacing Vitamins....or even Genetics replacing Vitamins...

Dr. Lonsdale wrote a great article on it....He called it new model for medicine.

https://www.hormonesmatter.com/new-model-medicine/

Kind of like 1.0 (Vitamins) 2.0 Medicine 3.0 Genetics....and says it is time  to create a better medical model of Stress/Nutrition, Genetics and the Environment...that incorporate all 3 factors in to diagnosing a patient...

Not one Genetics or Medicine to the exclusion of the other Stress/Nutrition/Environment.

So I don't quote it out of context I will quote what Dr. Londsdale said about it.

"A New Model: Genetics, Nutrition, and Stress

Throughout life each of us depends on our ability to survive in an essentially hostile environment. The first thing that it depends upon is our genetic inheritance that I have called “the blueprint”. But we also know that the “engines” of our cells, known as mitochondria, have their own genes in which the DNA is more susceptible to damage than our cellular genes. A new model must consider the fact that any stress requires energy in an adaptive response to any form of environmental attack resulting from a mental or physical problem or infection. The only way that we can protect the structural components of our bodies is by the use of the natural ingredients of nutrition, the ancient teaching of Hippocrates. The new science of epigenetics finds evidence that nutrition and lifestyle can make changes to our genes that might be beneficial or not, according to the circumstances. If a person has become sick from an excess of empty calories and refuses to change, the only way to treat that person would be by increasing the concentration of the missing nutritional ingredient in the form of a supplement. It is of paramount interest that in 1962 a paper was written in a prestigious medical journal. The author had found 696 medical journal manuscripts that reported 250 different diseases that had been treated with supplementary thiamine, with varying degrees of success. This suggests the possibility that health is produced by a combination of genetic influence, how we meet the daily impacts of stress and the quality of our nutrition. Disease results from, either genetic failure (cellular or mitochondrial), failure to meet stress because of energy deficiency, malnutrition, or combinations of the three elements."

Read it all when you get a chance....it is a good article about how they all come together and great perspective from a doctor who has studied Vitamins for approx. 40 years.

They all play a role.....and an over reliance on one....cause's an unbalanced view of medicine.

I call it the "Leaning Tower" of Medicine.....genetics is not the end all be all....

It is important no doubt.....but so is "Whole Foods" (Nutrition) etc.

The over reliance on Genes/DNA has been debunked....it is much closer to 50/50 at best. And nutrition and a balanced diet does not get nearly the press it deserves!

https://www.genengnews.com/news/dna-has-relatively-little-say-in-disease-risk-usually/

I hope this is helpful but it is not medical advise.

Posterboy,

[trents]

As far a BP meds causing villi blunting I would wonder if the real issue you were experiencing was that the pills contained gluten.

[cyclinglady]

1 hour ago, trents said:

As far a BP meds causing villi blunting I would wonder if the real issue you were experiencing was that the pills contained gluten.

No, this particular blood pressure drug did cause villi damage and not because of gluten per the FDA.  It affected people who did not have celiac disease.  Just one of the many things that can cause villi damage.  But in the case of the OP, it does not apply.  Chances are gluten is getting into her diet or the test is not accurate,  but the endoscopy should shed more light.  

https://www.fda.gov/drugs/drug-safety-and-availability/fda-drug-safety-communication-fda-approves-label-changes-include-intestinal-problems-sprue

[trents]

Thanks for the clarification, CL.

[Posterboy]

20 hours ago, trents said:

As far a BP meds causing villi blunting I would wonder if the real issue you were experiencing was that the pills contained gluten.

Trents,

I think Cyclinglady covered it well.

Here is the link to the study about this phenomenon that was in the thread for those who don't want to read the whole thread or don't have the time.

Entitled "Letter: sprue‐like enteropathy associated with angiotensin II receptor blockers other than olmesartan" IE Losartan as it was in my case.

https://onlinelibrary.wiley.com/doi/full/10.1002/ccr3.531

Trents it also can cause Skins Lesions as well.....though I did not have them.

See this recent study about this phenomenon entitled "Olmesartan‐induced enteropathy associated with cutaneous lesions" and while the study was on Olmesartan specifically the BP medicines in the ARBs class has been show to have the same effect.  See above research.

https://onlinelibrary.wiley.com/doi/full/10.1002/ccr3.531

They will end in "Stans" to give you a clue if you or others taking this type of BP  medicine could be causing Villious atrophy linked to your BP medicine.

Maybe It will help somebody else!  I know it happened to me and I had to dig out the research like a Volleyball player defending against a Kill Shot.....we as consumers/patients have to dig out the research ourselves.

And no my doctor didn't catch it!  You have to be your own advocate!

I hope this is helpful but it is not medical advise.

Posterboy,

[Gloria L]

On 7/23/2020 at 7:35 AM, GINAGF said:

My amazing pharmacist sat down with me yesterday and showed me how to look up my meds and ingredients to look for. Not only was the acid reducer not gluten free but neither was the Tylenol in my cabinet. However I take Tylenol infrequently. Turns out store brands like Walmart, target, and CVS are more often gluten free. I picked up a bottle of pepcid of the walmart equate brand yesterday. It said gluten free right on the box. 

I don't take a lot of medication except vitamins which I know are gluten free, so I feel disappointed in myself that I wasn't more diligent with the over the counter meds. This is not my first year as a Celiac and I should have known better. 

Hi GINAGF, can you please post a picture of the front of the box, I need to buy the same one, thank you.