Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired All The Time...

Elizabeth-Elindel

Recommended Posts

Elizabeth-Elindel Rookie
Elizabeth-Elindel
Posted

This past month I've found myself very tired physcally after a little bit of hard work. I can especally tell thsn when I'm romping with kids - after about an hour and a half or so I'm dead. LOL. I've been gluten-free (mostly!) for about three months now. When I say "mostly" I mean that sometimes I do accidently eat small amounts of gluten... but nothing that I can tell that would make my body act like this.

Anyone else have this problem? I've thought that I'm maybe missing some vitimans I should be taking? If I should be taking vitimans, what brands are gluten-free?

Thanks so much, peoples! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

You could very well be anemic or have a thyroid problem, you schould get a CBC blood test and a thyroid screening.

kristing Newbie
kristing
Posted

make sure you're getting enough vitamins and minerals! it's tough to do sometimes with a gluten-free diet. i'm in a nutrition class right now and we had to do a diet analysis. i found that i'd been getting less than half of alot of vitamins and other nutrients i need. i got new vitamins to take daily, but you should check with your doctor first to make sure you're taking the right stuff!

jerseyangel Proficient
jerseyangel
Posted

Getting tested for anemia and thyroid is a good idea. Barring either of those, I find that the fatigue is one of the symptoms that takes a long time to get better. I am 9 months gluten-free, and the fatigue has improved, but I still get tired easily and am ready to go to bed at 7:30! I take a multivitamin and am very careful about gluten. I am hoping that, in time, this will continue to improve.

Canadian Karen Community Regular
Canadian Karen
Posted

I SOOOO hear ya!

Yesterday, after I took the kids to school, I came back, laid down on the couch, and next thing I knew, it was 2 p.m.!!!! I am tired ALL THE TIME! But I already know the reason: I am severely anemic. My family doctor is recommending IV systemic iron. I can't absorb iron if my life depended on it! (Which, of course, it does!)

Hugs.

Karen

Linda352 Rookie
Linda352
Posted

Living here in New Jersey is very drab at this time of the year. It seems that when the sun doesn't shine I don't shine either and I have no energy whatsoever. Every year during these dreary months..Jan, Feb, March....I think that there must be something wrong with me. Last year I actually went and had a physical and all was fine. Come to think of it I don't get as much exercise either so I'm sure that plays a part of my problem. Have you thought of this possibility? Also if you aren't getting a good nights sleep, considering you have little ones that may get you up, these are all possible factors. Hope your exhaustion will be short lived.........

Linda

tarnalberry Community Regular
tarnalberry
Posted

a LOT of things can cause general fatigue. some of the ones I believe have affected me: testosterone deficiency, possible vitamin deficiency, sub-chronic viral infection, sub-chronic asthma flare, seasonal affective disorder, dysthymia, insufficient exercise, and stress. it's well worth talking to your doctor, but it can be tricky to get a doctor to take 'fatigue' seriously, and it's vital that you make it very clear to him/her that it is having a *severe* negative impact on your quality of life, even when you cut back on your own expectations.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


McDougall Apprentice
McDougall
Posted
This past month I've found myself very tired physcally after a little bit of hard work. I can especally tell thsn when I'm romping with kids - after about an hour and a half or so I'm dead. LOL. I've been gluten-free (mostly!) for about three months now. When I say "mostly" I mean that sometimes I do accidently eat small amounts of gluten... but nothing that I can tell that would make my body act like this.

Anyone else have this problem? I've thought that I'm maybe missing some vitimans I should be taking? If I should be taking vitimans, what brands are gluten-free?

Thanks so much, peoples! :)

McDougall Apprentice
McDougall
Posted
This past month I've found myself very tired physcally after a little bit of hard work. I can especally tell thsn when I'm romping with kids - after about an hour and a half or so I'm dead. LOL. I've been gluten-free (mostly!) for about three months now. When I say "mostly" I mean that sometimes I do accidently eat small amounts of gluten... but nothing that I can tell that would make my body act like this.

Anyone else have this problem? I've thought that I'm maybe missing some vitimans I should be taking? If I should be taking vitimans, what brands are gluten-free?

Thanks so much, peoples! :)

If I have a "minor" gluten accident, like my roomate used the same spoon for her food and mine for instance I'm wrecked for a few weeks. This is after 16 months "gluten free" with many such accidents. When I steer clear of any accidents (which is not easy I know) I feel better and better with each passing hour. I suggest being more careful about the accidents. I know little about vitiman supplements but take a complex/complete supplement and a calcium complex regularly, I won't suggest a brand but highly recommend you be sure it is glutten free and says so on label before you take it. Many brands do some cost more but it is worth it IMO. After 3 months I was still feeling God awful though better FWIW, 16 months later I'm a million times better but the accidents are very noticable,and I do mean very. The tiredness (FOR ME) got alot better around the 6 month period. I'm still nowhere near what I remeber of myself but it's gets better everyday as long as I don't have an accident. From my experiences I can't recommend highly enough staying away from those accidents no matter what that takes. For me that means preparing all my own food and only eating what I am 100% (not 99.9999999%) sure is gluten free.

nikki-uk Enthusiast
nikki-uk
Posted
I SOOOO hear ya!

Yesterday, after I took the kids to school, I came back, laid down on the couch, and next thing I knew, it was 2 p.m.!!!! I am tired ALL THE TIME! But I already know the reason: I am severely anemic. My family doctor is recommending IV systemic iron. I can't absorb iron if my life depended on it! (Which, of course, it does!)

Hugs.

Karen

That's exactly what my hubbie does at the moment-nods off after taking kids to school,wakes up around 3o clock when they come home.

He's been doing this for around 4 weeks now.We all went down with a flu type virus back then,but whereas the rest of the family is back to normal,the virus seems to have left him foggy and fatigued :unsure:

Guest nini
Guest nini
Posted

it could be a viral infection that is hanging on. I think that is what is going on with me. I have been gluten-free for 3 years now and am hyper vigilant although my husband is not gluten-free and therefore sometimes I'm sure I get some cross contamination in the kitchen... He's really really bad about putting his pizzas or toast right on the rack and using my cutting board to cut his pizza on... (I hid my pizza stone)

Anyway, the fatigues is overwhelming at times. I get home from work, get my daughter home from school and I pass out til dinner time (this is from about 2:30 - 7:00) then I turn around and go back to bed at 9:30... I can barely stay awake at work.

I do have fibromyalgia which is linked to chronic fatigue syndrome, but I had thought that was getting better. And I take supplements and multi vitamins so I'm pretty sure this is from a lingering viral infection.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.