Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Gone On Vacation?


mbg98

Recommended Posts

mbg98 Contributor

I am very newly diagnosed, going to see the dietition next week. However my husband and I have a vacation planned to Jamaica in 4 weeks, I am a little scared of bieng so new at this and having absolutly no control over and food there. Can anyone relate or help??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackie4 Apprentice

Hi Mbg! I am in the same situation. My daughter was dx 4 weeks ago and about twoweeks before that we booked a trip to the Dominican Republic. I am so nervous because it isn't like vacationing in the US . I don't think that there are any supermarkets to run to. I am going to call the resort ( it is all inclusive so maybe there is one restaurant that will work) and ask them for a frig in our room. Then I am going to pack up the rice cakes, peanut butter, homemade muffins,salad dressing and cereal. the one good thing about going to the islands is that there is always fresh fruit and salads. hopefully it will work out better than our last vacation. We went down the shore and we thought liz had ulcers so I kept pushing bagels, pasta, and cereal bars on her thinking they were mild and wouldn't uspset her stomach. Now I know why she was sick the whole time. AHHH.

Good luck and enjoy your vacation!!

jenvan Collaborator

Hello! Traveling can be hard, especially at first, but you'll be an expert before you know it :) Go here to see my traveling/vacation tips, and some others from a recent post. Good luck!

Open Original Shared Link

StrongerToday Enthusiast

I just got back from a week in Florida. I packed lots of different snack bars, nuts, dried fruits, Progresso soup in the microwave bowl (these were in both the carryon on for having at the airport and more in the suitcase in case I ran out). I also brought my own bread and a jar of cashew butter. We did eat out a few times and I did fine. Do you have the Dining Cards? Those are very helpful.

Oh, and I also went to the supermarket and bought a plain rotisserie chicken which i had for dinner and then made into chicken salad for the plane ride home.

Just plan and research - you'll do great!

jackie4 Apprentice

What are the dining cards? I have heard about them but I am not sure what they are.

jenvan Collaborator

Jackie-

Dining cards are basically business card sized info sheets that give a description of Celiac, what can and can't be eaten. They can be helpful when dining out--esp at places that aren't so familiar with the gluten-free diet. I got mine from Living Without. Triumph also makes some a lot of folks like, and some others make their own or print off free from the internet.

McDougall Apprentice
Jackie-

Dining cards are basically business card sized info sheets that give a description of Celiac, what can and can't be eaten. They can be helpful when dining out--esp at places that aren't so familiar with the gluten-free diet. I got mine from Living Without. Triumph also makes some a lot of folks like, and some others make their own or print off free from the internet.

I'd suggest bringing all your own food, except meats, veggies, fruits ect. Get a room with a kitchen to prepare your own food. I would not eat out. I don't think it is safe to eat out for celiacs, not in the usa and I doubt most places (maybe some countries like Britian but I'm only guessing) I work in resteraunts and have done most my life, to many hazards in a resteraunt in the usa I know that for a safe meal to be prepared.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



christa Contributor

We went away for Christmas and I packed rice crackers, cereal bars, rice bread, waffles (even though they are supposed to be frozen they were fine for the flight and I refrigerated them as soon as I got there. My luggage got lost for two days so lucky I did have some in my carry on. I also brought a insulated lunch box with a little ice pack and put my lunches and snacks in there for days we went on day trips. Just froze the ice pack every night. I tried not to eat out. I did one day and felt crappy for the next two so it just wasn't worth it.

Lollie Enthusiast

I don't know.......I was concerned about traveling and I posted, which Jenvan mentioned previous. I found it incredibly easy. I packed alot of my own food. Lara bars, my favorite nut thins, and dried nut and fruit mix. I had a frig put in the room. I bought yogurt and other parishibles once I arrived. I had the best vacation in 10 years. I always thought that I had ulcers, too, and would eat bagels, crackers, pasta, and finally nothing, because I was so sick. But this past vacation went so well, I ate out, I was very careful about what I ordered but it was feasable, and enjoyable. I would suggest sticking to fruits, vegies and baked or grilled meats! In Jamaica, I would think that here is a wide range of fresh fruit and vegies, and wonderful seafood. I went to the coast for my trip and I had baked fish and boiled shrimp the whole time, and loved it. I always ordered everything with out seasoning, and had no trouble. I don't know if I was just lucky or if being very careful in my ordering was the key (maybe a little of both)!

I think if you plan ahead and really think about what your ordering, you and you daughter will have a wonderful vacation!!!!!!!

Lollie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.