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Any Silly-acks From Ct?

bluckii

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bluckii Rookie
bluckii
Posted

Hello my fellow Celiacs.

I recently was diagnosed with celiac disease...and I am looking for a suport group in the New Haven, CT area.

Lord knows I need support...LOL.

Hope to meet some new celiac friends.

Brooke

  • 2 months later...
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rootlings Newbie
rootlings
Posted
Hello my fellow Celiacs.

I recently was diagnosed with celiac disease...and I am looking for a suport group in the New Haven, CT area.

Lord knows I need support...LOL.

Hope to meet some new celiac friends.

Brooke

I too am newly diagnosed along with my 19 year old daughter. We live in Simsbury, Hartford County and are looking for a support group also. Any help would be great.

Linda

  • 2 years later...
Reggiac Newbie
Reggiac
Posted

Hi, I just got my official biopsy diagnosis for Celiac disease and want to start a support group in Simsbury and thereabouts. I have already met two people who are interested in meeting to share information, recipes, etc. I was thinking I would post a sign, if they will let me, in Avon's Garden of Light. Anyone out there interested?

sparkle2085 Newbie
sparkle2085
Posted

There are support groups in CT- there is one that meets in Manchester, I have the email of one of the women who runs it if interested.

HAK1031 Enthusiast
HAK1031
Posted

Hey all! I'm from South Windsor, and the Manchester group doesn't meet regularly. However, for the Simsbury crowd, I grew up there, and my Dad still lives in Avon, so I'm over there a few times a week. If you do get a group together, that's be great!

EliLB Newbie
EliLB
Posted
Hello my fellow Celiacs.

I recently was diagnosed with celiac disease...and I am looking for a suport group in the New Haven, CT area.

Lord knows I need support...LOL.

Hope to meet some new celiac friends.

Brooke

Hi,

I am a celiac mom recently diagnosed here in the heart of New Haven. Anyone interested in mutual support?

  • 3 months later...
lalia Newbie
lalia
Posted
Hi, I just got my official biopsy diagnosis for Celiac disease and want to start a support group in Simsbury and thereabouts. I have already met two people who are interested in meeting to share information, recipes, etc. I was thinking I would post a sign, if they will let me, in Avon's Garden of Light. Anyone out there interested?

HI! I don't know if you are still looking to do this - but I live in West Hartford and work in Farmington. I would love to have a support group to work with. I was just diagnosed in the past month and need all the support I can gather.

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    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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