Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dont Know What To Do

minibabe

Recommended Posts

minibabe Contributor
minibabe
Posted

So I email my shampoo company and it is the best product.....I love it. I use the John Frieda brillian burnette and it does amazing things for my hair :) .

But here is what they said............

Dear Amanda:

We appreciate your interest in our John Frieda products.

We cannot guarantee that any of our products are always gluten free. Our vendors can change the source for each ingredient at any time due to market conditions.

Cordially,

Kao Brands Consumer Relations Department

Ban Biore Curel Jergens John Frieda

I am so upset......I dont know what to do. I dont know if I have an allergic raction to shampoo or not. how do I find out?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Moongirl Community Regular
Moongirl
Posted

I used to use that too, until they said the same thing to me. I wont use it anymore. I just replaced it with Fructis, i like it a lot more, and its half the price.

KayJay Enthusiast
KayJay
Posted

I stopped using that brand because it said wheat on the ingredients. I use dove and really like it.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I'd just write a note back telling them that, given that they have little regard for keeping abreast of the ingredients in their products, and for the lack of interest in the the health of their consumers, that you will no longer be using their products. In addition, you will be posting their response on the Celiac forum so that other gluten-intolerant patients will know of their apathy, and you will also encourage your friends to discontinue purchasing their products. At least you might get their attention.

casnco Enthusiast
casnco
Posted
I'd just write a note back telling them that, given that they have little regard for keeping abreast of the ingredients in their products, and for the lack of interest in the the health of their consumers, that you will no longer be using their products. In addition, you will be posting their response on the Celiac forum so that other gluten-intolerant patients will know of their apathy, and you will also encourage your friends to discontinue purchasing their products. At least you might get their attention.

GREAT suggestion.

minibabe Contributor
minibabe
Posted
  • Author
I'd just write a note back telling them that, given that they have little regard for keeping abreast of the ingredients in their products, and for the lack of interest in the the health of their consumers, that you will no longer be using their products. In addition, you will be posting their response on the Celiac forum so that other gluten-intolerant patients will know of their apathy, and you will also encourage your friends to discontinue purchasing their products. At least you might get their attention.

I def. think that I am going to do that, but how do I find out if I have a problem with having gluten in my shampoo. Are there any symptoms that anyone else experiences?

thank you

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I just found out I have the same problem. I just read my shampoo bottle and it has wheat in it. I dont know what to do. I really cant use the stuff you buy in supermarkets.. makes my hair fall out. The stuff I use now is 30.00 a bottle. I have the shampoo and conditioner. If anyone has any suggestions I would love to know. Oh and the brand of shampoo I use is Frederic Fekkai, so if anyone is using it... check your ingredients.

Tinkerbell

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
I just found out I have the same problem. I just read my shampoo bottle and it has wheat in it. I dont know what to do. I really cant use the stuff you buy in supermarkets.. makes my hair fall out. The stuff I use now is 30.00 a bottle. I have the shampoo and conditioner. If anyone has any suggestions I would love to know. Oh and the brand of shampoo I use is Frederic Fekkai, so if anyone is using it... check your ingredients.

Tinkerbell

I use products from The Gluten Free Savonnerie (www.gfsoap.com). I was getting sick from my hair gel that contained wheat. My hair had gotten very dry and had begun to fall out--(I was getting lots of it between my fingers every day in the shower). I'm sure a lot of that was due to my being sick. I like that the shampoo and conditioner I use now are even made in a gluten-free facility, so I don't have to worry about it. Added bonus--my hair is healthy and shiny, and it has stopped falling out.

mbg98 Contributor
mbg98
Posted
I just found out I have the same problem. I just read my shampoo bottle and it has wheat in it. I dont know what to do. I really cant use the stuff you buy in supermarkets.. makes my hair fall out. The stuff I use now is 30.00 a bottle. I have the shampoo and conditioner. If anyone has any suggestions I would love to know. Oh and the brand of shampoo I use is Frederic Fekkai, so if anyone is using it... check your ingredients.

Tinkerbell

I'm with you, going through my shampoo changes now. I love Pureology products, some do have wheat you will just have to read the ingredients but the products are great. That's what I am switching to.it is about $17.00 a bottle but it's good stuff!

Good luck!

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Thanks to both of you. Maybe that is my problem, my sickness is making my hair fall out and such. I have sooo much hair its hard to tell how much is falling out sometimes. I will look for both brands of shampoos and give them a try. Anything if it helps me feel better!

Thanks again!

Tinkerbell

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,635
    • Most Online (within 30 mins)
      7,748
    dysmathers
    Newest Member
    dysmathers
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Buckwheat

      By Inkie · Posted

      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Frequent nausea after gluten-free diet

      By Wheatwacked · Posted

      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
    • Inkie
      Thee

      By Inkie · Posted

      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.