Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does DH ever have a "head"?

NoGlutensToday

By NoGlutensToday
in Dermatitis Herpetiformis

 Share

Recommended Posts

NoGlutensToday Enthusiast
NoGlutensToday
Posted

I have a red bump that I assumed was DH on my left temple. I have no idea how I got glutened -- I am extremely careful about what I eat, and when I'm not eating unprocessed meat/veggies/fruit that I prepare myself I am careful to pick items that are certified gluten free. (These latter items are quite limited. Basically some Bob's Red Mill millett, Only Oats gluten free oatmeal, and a couple other things.)

Noticed today that the bump on my left temple appears to be forming a head. My understanding was that DH didn't do this.

I'm wondering if this happens to be something other than DH, and just happens to be appearing in a place that I used to get DH. I have dry skin, and the family has a history of eczema, rosacea, and other skin conditions. As I mentioned above, I have no idea how I would have been glutened due to my strict diet. I also haven't experienced the other symptoms that I used to experience when I got glutened. (I have been on Dapsone for a while, but have been weaning myself off of it for the past year or so, and really only use it if I have what I think is a DH bump appearing.)

So frustrating! I'd attach a photo of my current bump but the camera on my smartphone isn't working.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

It typically looks like tiny blisters that are clear (not white), and they are very itchy. They definitely come to a head, similar to acne, but are clear.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Xravith's topic in Related Issues & Disorders
      2

      Do Gluten Enzymes actually work?

      I agree, unfortunately a gluten challenge means intentional gut damage and inflammation to those with celiac disease, and taking lots of AN-PEP enzymes could potentially decrease this and skew the results, although I've not seen specific studies on this idea.
    2. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Doctors
      1

      Not validated

      I’m really sorry you’re going through this — what you’re describing is, unfortunately, something many long-term celiac patients encounter. A negative blood test after decades gluten-free does not rule out biopsy-proven celiac disease, and it’s frustrating that your documented history isn’t being taken seriously. Being dismissed while you’re dealing with ...
    3. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      My Journey Continues some notes

      It sounds like you’re doing a really thoughtful, disciplined job listening to your body and tightening things up where needed. Tracking symptoms alongside foods in MyFitnessPal is a smart next step, especially since bloating and gas can come from specific GF ingredients (like gums, fibers, or certain flours) rather than gluten itself. Your approach to eating o...
    4. Scott Adams
      - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Going for upper endoscopy today

      Just be sure that she continues eating lots of gluten daily for at least 2 weeks before the endoscopy, otherwise going gluten-free beforehand could create false negative results.
    5. Midwesteaglesfan
      - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Going for upper endoscopy today

      Her results only showed greater then 100 which over 10 is considered positive. But American standards still recommend the endoscopy to confirm. And the Dr explained to us both the European and American standards and asked us what we wanted to do. We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the fut...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,189
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      What's your daily meals? Protein bars?

      By Scott Adams · Posted

      Your approach makes a lot of sense — focusing on balanced meals and being cautious about cross-contamination is smart, especially when you’re traveling or unsure of a kitchen’s gluten-free practices. Many GF foods do lean toward higher sugar or processed ingredients, so prioritizing whole foods (lean protein, fruits, veggies, healthy fats) at meals can help keep energy steady. For snacks that fill you up, look for protein bars with simple ingredients, higher protein, and lower added sugars — reading labels is key on GF bars since “gluten-free” doesn’t always equal healthy. Pairing a salad with a quality protein bar when you’re unsure about a restaurant’s GF safety is a great strategy to avoid symptoms while still feeling nourished. 
    • Scott Adams
      Do Gluten Enzymes actually work?

      By Scott Adams · Posted

      I agree, unfortunately a gluten challenge means intentional gut damage and inflammation to those with celiac disease, and taking lots of AN-PEP enzymes could potentially decrease this and skew the results, although I've not seen specific studies on this idea.
    • Scott Adams
      Not validated

      By Scott Adams · Posted

      I’m really sorry you’re going through this — what you’re describing is, unfortunately, something many long-term celiac patients encounter. A negative blood test after decades gluten-free does not rule out biopsy-proven celiac disease, and it’s frustrating that your documented history isn’t being taken seriously. Being dismissed while you’re dealing with menopause-related changes, neurological concerns, and recovery from a demanding job would exhaust anyone, and it’s understandable that this is affecting your mental health. You deserve care that looks at the full picture, not quick conclusions, and it’s okay to keep advocating for yourself or seek a provider who truly understands complex autoimmune cases. You’re not imagining this, and you’re not alone.
    • Scott Adams
      My Journey Continues some notes

      By Scott Adams · Posted

      It sounds like you’re doing a really thoughtful, disciplined job listening to your body and tightening things up where needed. Tracking symptoms alongside foods in MyFitnessPal is a smart next step, especially since bloating and gas can come from specific GF ingredients (like gums, fibers, or certain flours) rather than gluten itself. Your approach to eating out, avoiding places that can’t confirm safety, and planning ahead for travel is exactly how many people stay well long-term. It’s also very common to discover that even “certified” or restaurant GF pizza doesn’t agree with you, so trusting that pattern makes sense. Overall, this reads like progress, not restriction—and the fact that you’re feeling better most of the time suggests you’re on the right path.
    • Scott Adams
      Going for upper endoscopy today

      By Scott Adams · Posted

      Just be sure that she continues eating lots of gluten daily for at least 2 weeks before the endoscopy, otherwise going gluten-free beforehand could create false negative results.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.