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- knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders4
Basic metabolic panel results - more flags
@Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency. Your symptoms seem really familiar. Malabsorption is a real thing that happens with Celiac. A multivitamin is not going to prevent nor correct nutritional deficiencies. Doctors do not recognize nutritional deficiency symptoms. Gastrointestinal Beriberi is not recognized... -
- trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8ttg iga high (646 mg/dl) other results are normal
What are your symptoms? What has brought you to the point where you sought celiac disease testing? -
- kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8ttg iga high (646 mg/dl) other results are normal
Thanks so much. This is what I thought but really wanted a second opinion. I appreciate this. -
- xxnonamexx replied to xxnonamexx's topic in Related Issues & Disorders5Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy
I have heard about numerous food sensitivity tests blood and the prick and how nothing is very reliable I think trial and error probably best bet.
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By knitty kitty · Posted
@Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency. Your symptoms seem really familiar. Malabsorption is a real thing that happens with Celiac. A multivitamin is not going to prevent nor correct nutritional deficiencies. Doctors do not recognize nutritional deficiency symptoms. Gastrointestinal Beriberi is not recognized often. Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed. Thiamine deficiency is found in anemia. Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine. Thiamine deficiency can cause high blood sugar which can cause cloudy urine. Dehydration can cause cloudy urine. I'm linking some PubMed articles. You see if your symptoms match. Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon! Just to rule it out. I'm very concerned. I'm linking some PubMed articles. You see if your symptoms match. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/ -
What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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Thanks so much. This is what I thought but really wanted a second opinion. I appreciate this.
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By xxnonamexx · Posted
I have heard about numerous food sensitivity tests blood and the prick and how nothing is very reliable I think trial and error probably best bet. -
As ShariW explained, soy itself doesn't contain gluten but most soy sauces sold in stores and used in restaurants contain wheat as an ingredient so they are not gluten free. As I understand it, there are two traditional ways of making soy sauce. One way contains wheat and one doesn't. The most popular one found out there in the wild does contain wheat, however. Kikkoman offers a line of gluten-free soy sauce and Teriyaki products that are often sold by grocery store chains like Safeway. There are food allergy/food sensitivity tests available and your physician can order them or give you a referral. They fall into two categories, the skin prick kind and the blood test kind. One you might look into is called the ALCAT test which might be the most helpful for foods. However, the reliability of these things is questionable. The results can be helpful as a place to start but the results often don't match up with real life experience. There are reasons for this and you might do well to research food sensitivity testing reliability on the Internet.
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